Latest posts tagged with #LivingLFS on Bluesky
When you're diagnosed with LFS it's recommended a specific regiment of screenings is performed. Early detection saves lives!
livinglfs.org/resources/#s...
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lfsawarenessmonth #lfsawarenessday
People with Li Fraumeni syndrome (LFS) have mutations in a gene called TP53. Do you know the difference between P53 and TP53? We do use them interchangeably a lot. P53 refers to the protein that the gene TP53 makes.
#livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #lfsawarenessmonth #lfsawarenessday
Knowledge is power! Share LFS Facts throughout the month of March. Learn exactly what this rare genetic disease is about!
We are Living LFS!
www.LFSawareness.com
#LFSawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #geneticmutation #rarediseases
Share if you love someone with LFS!
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #rarediseaseday #lfsawareness #rarediseaseday2026
ONE more week until Li-Fraumeni Syndrome Awareness Month! Here are ways you can participate. Check out our website for all details and links: LFSawareness.com
#LFSawarenessmonth #LFSawarenessday #marchislfsawarenessmonth #lfsawareness #lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs
Today is International Childhood Cancer Day, a global campaign to raise awareness for childhood cancer and support children and their families.
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #InternationalChildhoodCancerDay #pediatriccancer #childhoodcancer
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
Thinking of all our friends who know cancering doesn't take a break for the holidays 💙💚


#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
It's official, the 2026 Living LFS Jennifer Mallory Family Camp will be at Camp Korey in Mount Vernon, Washington, August 21-24, 2026! Mark your calendars now! Registration will open on January 3, 2026. More details to come.
www.campkorey.org
#livinglfs #livinglfsfamilycamp2026 #familycamp2026
12 days till the holidays!
THESE are the 12 months of LFS! 💚🐘💙
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter
10 Days of Thankful.
We are Thankful for Elephants! And the researchers like Dr. Joshua Schiffman whose passion and out of the box thinking gives us with LFS -HOPE!
Here’s why: www.youtube.com/watch?v=ThRR...
#lifraumenisyndrome #livinglfs #elephants #elephantsandhope #drjoshuaschiffman
10 Days of Thankful.
We are Thankful for the countless researchers past and present who strive to find answers, treatments and options for our rare families with Li-Fraumeni Syndrome.
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #LLFS #cancerresearch
10 Days of Thankful.
We are thankful for our caregivers. Often times in LFS, multiple family members are facing cancer at the same time- putting a burden on caregivers. Thank you to the caregivers in our lives, it takes a village!
#lifraumenisyndrome #livinglfs #iamlivinglfs #caregivers
Thinking of our stage 4 friends today and those we have lost from this horrible disease. Stage 4 needs more!
#lifraumenisyndrome #livinglfs #iamlivinglfs #breastcancer #breastcancerawareness #breastcancerawarenessmonth #metastaticawareness #stage4needsmore #metastaticawarenessday #metavivor
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #LLFS #mentalhealth #breastcancerawareness #breastcancerawarenessmonth
Link to the Toronto Protocol: livinglfs.org/screening-th...
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #cancerfighter #breastcancer #breastcancerawarenessmonth #breastcancer #feelitonthefirst
You can find the book here: amzn.to/3PQnvf2
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember #BrysonBrave
Our applications for the 2025 Fall Living LFS Spring Hardship Grants are now closed!
If you'd like to contribute to Living LFS Hardship Grants donate here:
livinglfs.org/donate/ .
#lifraumenisyndrome #livinglfs #iamlivinglfs #cancergenetics
#LLFShardshipgrants #hardshipgrants
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
Some Li Fraumeni syndrome pediatric cancer facts. But remember, not everyone gets cancer and many children live happy normal lives. Our little heroes!
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
Help us help families like Andrea’s and make the financial burden of Living with LFS a little easier.
More donations means more LFS Hardship Grants! Please encourage people in your community to donate today!
Donate here:
livinglfs.org/donate/
#LLFShardshipgrants #hardshipgrants #LivingLFS
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #childhoodcancerawareness #childhoodcancerawarenessmonth #pediatriccancer #childhoodcancer #gogoldinseptember
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #lifraumenisyndromeawareness #p53 #tp53 #tp53gene #cancergenetics #geneticcancer #geneticmutation #rarediseases #cancerfighter #genetictesting #saturdayquote
livinglfs.org/screening-th...
#lifraumeni #lifraumenisyndrome #livinglfs #iamlivinglfs #p53 #tp53 #tp53gene #lifraumenisyndromeawareness #sarcomaawarenessmonth #sarcomaawareness #sarcoma #oncology #clinicaltrials
