Latest posts tagged with #MOGAD on Bluesky
🇮🇹 La nostra prima illuminazione per celebrare i mesi di sensibilizzazione su #NMOSD e #MOGAD è lo Sferisterio, situato nella Città di Macerata.
Siamo grati per il sostegno nell’illuminare l’oscurità delle nostre malattie rare. www.comune.macerata.it/novita/lo-sf...
Line graphs show EBNA-1 peptide antibody titers over time in patients. Graph A compares MS and healthy controls. Graph B compares MS, MS: RIS, MS: CIS, MS: MOG-IgG 20@1, MOGAD: MOG-IgG 160@2, MOGAD: MOG-IgG≥640@3, NMOSD, OIND, and OND.
Persistently high Epstein-Barr nuclear antigen 1 antibody titers distinguished #MultipleSclerosis from #MOGAD and #NMOSD, supporting use as a noninvasive diagnostic biomarker. ja.ma/4svV4U9
On March 8 we celebrate International Women’s Day!
Did you know
🦄 Autoimmune diseases affect women 2:1
🦄 Rare diseases are 10x more likely in women
🦄 #MOGAD shows no female predominance
🦄 Women are 9x more likely to have #NMOSD
Grateful for the women in our community. 🩷🧡💛
This International Women’s Day, we’re celebrating the women who help lead and support the MOGAD community.
Read advice from several of our support group leaders and learn more about our groups:
mogproject.org/support
#InternationalWomensDay #MOGAD
Online now:Dark white matter is a subcortical MRI marker in seizures and systemic disorders: A narrative review. doi.org/10.1016/j.ne... #DarkWhiteMatter #Neuroimaging #Epilepsy #MRI #Seizures #MOGAD #Neurology #Biomarker #MedicalResearch #BrainMRI #StatusEpilepticus #MedSky #neuroskyence
Turning awareness into action this #IWD2026
For women living with #MOGAD, #MS or #NMO, the @emspofficial.bsky.social conference focuses on the issues, the research & how we can improve daily living.
An exceptional organisation & conference in splendid #Berlin 😍
#spéirghorm #Menopause #Neurosky
🇩🇪 Begleiten Sie uns am 7. März in Berlin, um von Expert:innen mehr über #MG, #MOGAD und #NMOSD zu erfahren. Die Teilnahme an der Veranstaltung ist kostenlos, und es wird ein Mittagessen serviert!
Zur Anmeldung besuchen Sie tinyurl.com/TSFBerlin (Anmeldung erforderlich).
#MedCase - A unique case of both #MOGAD and emergent #lupus developing after anti-TNF treatment in a patient with ankylosing #spondylitis, highlighting the need for increased clinical awareness of the immunological consequences of TNF blockade.
👉 buff.ly/CVmjQrw
#RheumSky
🇵🇷 El 24 de enero de 2026, TSF celebró en Puerto Rico su Día del Paciente junto al Centro de EM de PR, reuniendo a +80 pacientes, cuidadores y profesionales impactados por #EA, #MOGAD, #NMOSD, neurosarcoidosis y #SPS.
www.sumairafoundation.org/resumen-del-...
Current evidence and knowledge gaps in family planning and pregnancy in #myastheniagravis, #NMOSD, and #MOGAD
www.thelancet.com/journals/lan...
What if your birthday could change lives?
By starting a fundraiser for The MOG Project on Facebook or Instagram, you can help expand education, support research efforts, and strengthen the global #MOGAD community. It’s simple to set up and powerful in impact!
Celebrate. Give back. Create hope.
We are thrilled to celebrate an incredible achievement by our Medical Advisor, Dr. Jonathan D. Santoro.
🔗 Read the full announcement: www.chla.org/newsroom/press-release/j...
#MOGAD #Neuroimmunology
T-18 days until our Honolulu Patient Day for #MG, #MOGAD and #NMOSD! Meet our panelists🦄🧠
Join us on 2/21 for a day of education and community.
This is a free in-person event and lunch will be provided. www.tinyurl.com/TSFHawaii
🌺 A hui hou
🇯🇵 TSF is excited to host the Gala Dinner for European Charcot Foundation's 2nd Update on #NMOSD & #MOGAD meeting in Tokyo!
Join us for an evening of networking with experts, clinicians, researchers & key stakeholders.
To register for the workshop, visit amarys-jtb.jp/ecfupdate2026
rare don" care February Rare Disease Awareness Month (RAREDISEASEMONTH | FEBRUARY2026 ) SRNA connect. care. cure.™
Siegel Rare Neuroimmune Association - The non-profit advocating for those those with ADEM, AFM, MOGAD, NMOSD, ON, and TM! Having a rare disease is not easy. It is so much more than just a diagnosis. Finding support is difficult because not many people share the same diagnosis. The unanswered questions. The lack of experts close by. The psychological and emotional challenges. And the list goes on. Over 300 million people worldwide live with a rare disease. 28 February is Rare Disease Day, and since 2020, we at SRNA have decided to make the whole month of February "SRNA's Rare Disease Month" because awareness of rare diseases should not be limited to just one day of the year. We will be sharing stories, resources, facts, and helpful tips during the entire month of February. Join us this month to share facts, your personal story, and raise awareness about your rare disorder!
Goedemorgen! ✨ 28 februari is #RareDiseaseDay, maar heel februari is SRNA’s #RareDiseaseAwarenessMonth, omdat bewustwording van zeldzame ziekten niet beperkt mag zijn tot slechts één dag van het jaar. ❤️🔥💪
#ADEM #AFM #MOGAD #NMOSD #ON #TM &
Positive Phase III results from the METEOROID clinical trial!
As the pre-eminent global nonprofit for #MOGAD, we call this a historic day & applaud Hoffmann-LaRoche/Genentech’s landmark achievement and their investment in finding new, safe, & effective treatments for MOGAD.
mogproject.org/meteoroid
We’re excited to partner with MG Holistic Society for our Honolulu Patient Day on February 21st!
Are you or your loved one impacted by #myastheniagravis (#MG), #MOGAD or #NMOSD? Join us for a day of education and community 🌺 www.tinyurl.com/TSFHawaii
🇰🇷🦄 In a study that reviewed records of 100 children with #MOGAD in @SeoulNatlUni Children's Hospital,
- 43 had at least 1 relapse
- Average age at first episode -> 7 years
- Optic neuritis/brain inflammation most common initial presentation
Learn more: sumairafoundation.org/summaries/ph...
Connection matters. Our support groups have started up again this month, offering a welcoming space for people living with #MOGAD, caregivers, and loved ones to connect and share.
This Mental Wellness Month, you can sign up using the Zoom links on our website at mogproject.org/support
This National Eye Care Month, our hope is that no person loses their eyesight. Until then, The MOG Project is proud to provide dedicated resources for our Blind MOGAD community.
👉 Visit mogproject.org/blind to explore support, education, and practical resources.
#NationalEyeCareMonth #MOGAD
ICYMI, here is the top JNO article on Social Media in October 2025: Myelin Oligodendrocyte Glycoprotein–Associated Disease Optic Neuritis w/ Concurrent Combined Central Retinal Artery & Vein Occlusion
Article: tinyurl.com/JNO-MOG-CCRAVO
#brain #eye #OpticNeuritis #MOGAD #Retina #stroke #EyeStroke
Are you or your loved one impacted by #AE, #CNSvasculitis, #MG, #MOGAD, #neurosarcoidosis, #NMOSD or #SPS?
TSF is inviting patients & caregivers impacted by rare neuroinflammatory disorders from all over Hawaii to join us in Honolulu on Saturday, February 21st!
www.eventbrite.com/e/tsfs-honol...
🇨🇦 TSF Canada was pleased to be joined by Dr. Alexander Muccilli who presented the treatment landscape for #NMOSD & #MOGAD in Canada.
She outlined the current and emerging treatments for NMOSD & MOGAD and guidance on navigating care pathways in Canada. youtu.be/VbU6VxpM5WQ
Dark white matter is a subcortical MRI marker in seizures and systemic disorders: A narrative review
#OpenAccess in #NeuroMarkers: doi.org/10.1016/j.ne...
#DarkWhiteMatter #Seizures #Epilepsy #BrainMRI #Neuroimaging #MOGAD #NKH #Biomarker #Neurology
#LetsTalkMS New Episode Drop
Only 48% of people with MS are employed.
We are changing that conversation.
Tune in to learn about:
Employability, disclosure & workplace strategies for young people with #MS #NMOSD #MOGAD
Listen now: bit.ly/4pCQBh3
🇨🇦 Join us on December 11th at 7:30 PM EST for an educational webinar on evolving treatment options for AQP4+/- #NMOSD & #MOGAD in Canada.
Featuring Dr. Alexandra Muccilli on current/emerging therapies + navigating care pathways.
🔗 Register: us02web.zoom.us/webinar/regi...
Updated flow cytometric MOG-Ab cut-offs aligned with 2023 MOGAD criteria: Clear-positive: 90.7% PPV, in core demyelinating events: 100% PPV, High clear-positive: 100% specificity (lower sensitivity)
MOGAD diagnosis accuracy in Korea. #MOGAD #Neuroimmunology
Paper below 👇
Hier der Link zur englischen Veröffentlichung:
neurologyopen.bmj.com/content/7/2/...
via @bmj.com
#neurologie #NMOSD #MOGAD
@unidue.bsky.social
4/4
🌐 Our latest research infographic spotlights a comprehensive review of about 4,700 #MOGAD patients globally.
Read the summary: www.sumairafoundation.org/summaries/mo...
