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Posts tagged #NLPHL

With courage, patients face the unknown,
In battles quiet, but not alone.
Hope and research, a guiding light,
To conquer challenges with all their might.
Myisha Malone King
Gastroduodenal Crohn's Disease

With courage, patients face the unknown, In battles quiet, but not alone. Hope and research, a guiding light, To conquer challenges with all their might. Myisha Malone King Gastroduodenal Crohn's Disease

I'm sick of winning the lottery -- the rare disease lottery, that is.
Michelle Karen
Diabetes Insipidus, Lymphocytic Hypophysitis, Pyoderma Gangrenosum-Acne-Suppurative Hidradenitis Syndrome, Pituitary Hemorrhage

I'm sick of winning the lottery -- the rare disease lottery, that is. Michelle Karen Diabetes Insipidus, Lymphocytic Hypophysitis, Pyoderma Gangrenosum-Acne-Suppurative Hidradenitis Syndrome, Pituitary Hemorrhage

With horses, I discovered a place where my disability didn't create a communication barrier. The horse did not care if my speech was unclear or if only half my face moved.
Natalie Abbot
Moebius Syndrome

With horses, I discovered a place where my disability didn't create a communication barrier. The horse did not care if my speech was unclear or if only half my face moved. Natalie Abbot Moebius Syndrome

Knowledge is power, so I set out to get to know the enemy I was hoping to evict from  my body.
Michele Ruehs Steinbuch
Nodular Lymphocyte-Predominant Hodgkin Lymphoma

Knowledge is power, so I set out to get to know the enemy I was hoping to evict from my body. Michele Ruehs Steinbuch Nodular Lymphocyte-Predominant Hodgkin Lymphoma

The writers in Kaleidoscope #RareDisease Stories are living proof that even through the darkest of times, there is always hope.
~🦋
https://a.co/d/3HxjJ6P
Proceeds donated to NORD
#Crohns #PASH #MoebiusSyndrome #NLPHL
#ChronicIllness #Rare #SpoonieSky #ZebraStrong

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