Latest posts tagged with #PSCResearch on Bluesky
Two Friday the 13ths in two months?! 😮 Statistically rare, just like PSC. But while the calendar relies on math, we rely on research. Luck won’t find a cure, science will.
Don't leave it to chance. Get involved: buff.ly/cpcufF5
#LetsBeatPSC #PSCResearch
What does a ‘PSC flare’ feel like for you? ✍️
Researchers need to understand the symptoms of acute cholangitis to develop better treatments. If you’ve experienced an attack please take 15 mins to help: ec.europa.eu/eusurvey/run...
Available in 11 languages. #LetsBeatPSC #PSCResearch
A liver transplant is a gift of life, but it is not a cure.
1 in 3 people with PSC need a transplant within 10 yrs. Even after surgery, patients face lifelong medication, rejection risks, and the potential for PSC to recur.
Help us find a cure: pscsupport.org.uk/donate/
#LetsBeatPSC #PSCResearch
The UK’s Medicines and Healthcare products Regulatory Agency (MHRA) plans to update rules for rare disease therapies, including PSC. PSC Support helped develop these plans. More info and PSC research updates: buff.ly/t60RqPD #LetsBeatPSC #PSCSupport #PSCResearch
What a fantastic Ask the Expert with Dr Joshi! Watch or re-watch this session where Dr Joshi shares PSC research updates from last months international liver conference, AASLD. Full video on our YouTube Channel youtu.be/of0y5GYSugI #LetsBeatPSC #PSCResearch #AASLD2025 #LiverHealth #LiverResearch
A liver transplant isn’t a cure for PSC. Recipients must manage lifelong meds, complications, or even PSC returning - like Tom, who’s needed 3 transplants. Donate to our @BigGive #ChristmasChallenge to help accelerate #PSCresearch 👉 buff.ly/JpF8oQy #LetsBeatPSC
#PSCresearch needs to move faster for people like Liyana and her mum, who's been on the transplant list for 15 months. Donate between 2-9 Dec donations and your £20 becomes £40, and with Gift Aid, #PSCSupport receives £45, directly aiding PSC research. 👉 buff.ly/JpF8oQy
Some studies hint that coffee might be linked to slower PSC progression, though we still need more research to be sure (Sources in thread).
One thing we are sure of: we won’t rest until we find effective PSC treatments.
#PSCSupport #LetsBeatPSC #PSCResearch #PSCcommunity
The countdown is on 🎄 Just 2 weeks until our #ChristmasChallenge begins! From 2–9 Dec, your donation will be doubled! Together, we can accelerate PSC research.
Save the date, learn more and make your donation promise.
👉 pscsupport.org.uk/BigGive
#LetsBeatPSC #PSCResearch #GivingBack
PSC research is challenging, but progress is happening faster than ever. There are now more clinical trials testing potential treatments than ever. Every study brings us closer to better care and, one day, a cure.
👉 buff.ly/33bSrx4 #LetsBeatPSC #PSCResearch
Hope → Strength → Action 💪
Together, we push #PSCresearch forward.
#GlobalPSCAwarenessDay #HopeInAction #LetsBeatPSC @EuropeLiver
ℹ️ pscsupport.org.uk/global-psc-a...
Together, no one faces PSC alone 💙 Every step forward grows our hope.
#GlobalPSCAwarenessDay #GlobalPSCAwareness #HopeInAction #LetsBeatPSC #PSCResearch
ℹ️ pscsupport.org.uk/global-psc-a...
Do you have PSC and IBD and haven’t had a liver transplant? You may be eligible to take part in the new CATCH clinical trial, which is now recruiting.
ℹ️ pscsupport.org.uk/find-psc-res... #LetsBeatPSC #PSCResearch #ClinicalTrials #CatchClinicalTrial #PSCIBD #IBD #PSC
How does PSC affect your daily life - socially, emotionally, and financially? Could you share your experience to help improve knowledge of what it’s really like to live with #PSC? ➡️ buff.ly/rbIoRGG #LetsBeatPSC #PatientVoice #PSCResearch @sheffielduni @mirumpharma
Easier said than done, but worth saying anyway: it’s important to keep an eye on your internal battery and take a meaningful break to recharge when you need it.
Full video buff.ly/WyQIlDp
#PSCFatigue #Fatigue #LetsBeatPSC #PSC #PSCExpert #PSCResearch
Every donation, every voice, and every minute matters. Your support not only funds essential PSC research but also drives advocacy that puts the PSC community front and centre. Thank you! #PSCSupport #LetsBeatPSC #PSCResearch
We're proud to fund #Mission2030 research to find the best tests to detect bile duct cancer early in people with PSC. Early diagnosis saves lives—and PSC patients deserve the most accurate tools. 👉🏻 buff.ly/75xV3qO #LetsBeatPSC #PSCResearch #PSC
Positive NorUrso news for PSC patients!
"I’m hopeful and I’m optimistic that the difference will rise from that 20% and 1 in 5 people, to greater numbers.” Dr Palak Trivedi
👉 youtu.be/vpScVn7W814 #LetsBeatPSC #NurUrso #EASLUpdate #PSCResearch
By 2030, we’ll invest over £1M in PSC research — but how do we decide what to fund?
Our expert Scientific Review Committee (SRC) volunteers their time to review every application and guide our decisions.
Thank you to each of them! #LetsBeatPSC #PSCResearch #VolunteersWeek
Missed our Newport Information Day? Catch up now!
We’ve shared all the presentations online—including the latest PSC research, managing symptoms, clinic tips, and more.
👉 View here: pscsupport.org.uk/newport-2025...
#PSCsupport #PSCresearch #LetsBeatPSC #RareDisease
🧠 Love research? Organised & detail-focused? We're looking for a Volunteer Research Administrator. Help advance PSC research behind the scenes in a flexible, remote role with a supportive team.
🔗 Apply by 23rd May: buff.ly/U8ZW7ds
#LetsBeatPSC #PSCResearch
📢 Live PSC Webinar – Sat 17 May, 3:30pm (BST). Dr Palak Trivedi joins us to discuss the breaking research updates from #EASL2025 – with encouraging news for the PSC community.
🎟️ Register for joining details: us06web.zoom.us/webinar/regi...
#PSCsupport #PSCresearch #LetsBeatPSC #AskTheExpert
The lineup for our Newport, Wales Information Day is looking fantastic! 🎉 We’re excited to announce a research highlights session, where PSC researchers will each share summaries of their ground-breaking work. Register here: buff.ly/QYR1bQ9 #LetsBeatPSC #PSCResearch
We are delighted to announce that we’ve awarded £51,060 to a leading expert on PSC in Sweden, Professor Annika Bergquist @ki.se to help fund her clinical trial assessing a type of statin in people with PSC.
Find out more 👉🏻 buff.ly/Vv5WIrS
#LetsBeatPSC #Mission2030 #PSC #PSCResearch
📣 Calling all PSC researchers! Don’t miss your chance to apply for funding for your #PSC research project. We’re offering:
💷 Project Grant: £50k
💷 Seed Funding Grants: £15k
🗓️ Deadline for LOIs: 24 March 2025
👉 buff.ly/NoAncJc
#Mission2030 #PSCResearch #LetsBeatPSC
@crick.ac.uk @inst-of-liver.bsky.social @kingscollegelondon.bsky.social @james-sun.bsky.social @foadrouhani.bsky.social #LetsBeatPSC #PSCResearch #PSCSupport
If you have itch, you might be interested in the VISTAS trial testing a new drug to combat itch in PSC. Find out more and see if you could take part.
➡️ buff.ly/3Xex2jy #LetsBeatPSC #PSCItch #PSCResearch #PSC
Breaking news! Chemomab Therapeutics announces plans for a Phase 3 clinical trial, following positive results from their Phase 2 SPRING study https://buff.ly/3X6OHJK #LetsBeatPSC #PSC #PSCResearch
