#RAIRDs

ndosie.bsky.social

@ndosie.bsky.social

9 months ago

Graphical Abstract © The Author(s) 2025. Published by Oxford University Press on behalf of the British Society for Rheumatology. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.

Rare autoimmune rheumatic diseases #RAIRDs like #lupus, #vasculitis, #myositis, systemic sclerosis and #Sjögren’s disease impact lives

Aim: Understand patients' experiences with RAIRDs

Method: Six focus groups (n=26), five themes identified

@robsonjc.bsky.social
Read more doi.org/10.1093/rheu...

RAIRDA

@rairda.bsky.social

1 year ago

People with RAIRDs are often overlooked in health policy and investment. It is key that NHS services don’t lose sight of people living with rare conditions. #RAIRDs #RAIRDaware #HealthcarePolicy

RAIRDA

@rairda.bsky.social

1 year ago

Delays to diagnosis and inadequate care can significantly reduce life expectancy and quality of life for RAIRD patients. There is a need for timely and effective treatment. #RAIRDs #RAIRDaware #TimelyCare

RAIRDA

@rairda.bsky.social

1 year ago

It's crucial that care and treatment for RAIRDs patients are equitable. Prevalence should not determine patient outcomes. #RAIRDs #RAIRDaware #HealthcareEquality

RAIRDA

@rairda.bsky.social

4 years ago

Did you know that approximately 170,000 people with #RAIRDs live in the UK?

We are #RareButNotForgotten

#RareDiseaseDay takes place on 28th February, learn more here: https://bit.ly/3IlLQn0
@rarediseaseday

RAIRDA

@rairda.bsky.social

4 years ago

Around 500,000 people in the UK are #immunosuppressed, including some people with #RAIRDS on certain treatments. Many do not get the same level of protection from the COVID-19 vaccines as everyone else.