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#Rare_Access_Action_Project

Latest posts tagged with #Rare_Access_Action_Project on Bluesky

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Posts tagged #Rare_Access_Action_Project

Thiard News@F4F

@newsen.bsky.social

1 month ago

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RAAP Urges Virginia Legislators to Thoroughly Study PDAB Bill Before Action The Rare Access Action Project calls on Virginia lawmakers to fully evaluate the PDAB bill before making hasty decisions affecting patient care and drug costs.

RAAP Urges Virginia Legislators to Thoroughly Study PDAB Bill Before Action #United_States #Virginia #PDAB #Rare_Access_Action_Project

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Thiard News@F4F

@newsen.bsky.social

2 months ago

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Virginia Legislators Urged to Rethink Prescription Drug Affordability Board Measures Virginia lawmakers are being cautioned against the proposed Prescription Drug Affordability Boards, which may harm patients rather than help. Experts weigh in on the controversy and suggest alternatives.

Virginia Legislators Urged to Rethink Prescription Drug Affordability Board Measures #USA #Virginia #Rare_Access_Action_Project #Prescription_Drug_Affordability #Virginia_Politics

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Thiard News@F4F

@newsen.bsky.social

2 months ago

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The Risks of Alternative Funding Programs for Rare Disease Patients' Health This article explores the dangers posed by Alternative Funding Programs (AFPs), which often compel patients to use unsafe therapies not approved by the FDA.

The Risks of Alternative Funding Programs for Rare Disease Patients' Health #United_States #Washington #Gilead_Sciences #Rare_Access_Action_Project #FDA_warnings

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Thiard News@F4F

@newsen.bsky.social

4 months ago

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The Critical Need for Innovation in Rare Disease Treatments: Moving Beyond Cost Analyses The debate around funding for rare disease therapies must shift from cost to innovation, ensuring access for vulnerable patients. We explore the implications of recent changes.

The Critical Need for Innovation in Rare Disease Treatments: Moving Beyond Cost Analyses #USA #Innovation #Washington #Orphan_Drug_Act #Rare_Access_Action_Project

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