Latest posts tagged with #RealiseD on Bluesky
💫 #RareDiseaseDay reminds us that real progress depends on partnering with patients. Their lived experience shapes better designs, endpoints, and feasibility. At #RealiseD, we co‑create rare disease trials so research is truly practical, and patient‑centred 🤝
Learn more: https://loom.ly/6HpREX0
🌍 On the #RareDiseaseDay we stand with people living with rare and conditions. With therapies for only ~5% of rare diseases, patient‑centred trials are vital. #RealiseD is committed to advancing innovative, equitable research for the rare community 💜
Learn more: https://loom.ly/6HpREX0
🌍 Read the key takeaways from RealiseD General Assembly Meeting, held on January 28–29, featuring insights from the RealiseD coordinator, patient advocate representative, and more🔗 https://loom.ly/hNPsTj8
#RealiseD #RareDiseases #ClinicalTrials
I saw his #fiery #glance as he #reprised the age-old hatreds, imagined the crazed mobs form at #mention of that hateful rhetoric
Too late the many #realised the end was here, and powerless, they were crushed by the cishet, white, perverted Christian machine
#inkMine
#WritingCommunity
#ReaderSky
Highlights from last week’s #RealiseD General Assembly Meeting 🎬💫 Two days of collaboration and shared ambition to advance innovative tools for (ultra) #RareDiseases in Europe and beyond. 🔬 Watch the reel to hear key insights and 🔗 read more: https://loom.ly/hNPsTj8 #ClinicalTrials
Last week Teamit hosted the first #RealiseD General Assembly in Barcelona, an IHI-funded project advancing new gold standards for clinical trials in rare and ultra-rare diseases 🚀 The meeting sparked meaningful discussions and helped set priorities for year two 🤝 #Teamit #RareDisease #IHI
Kicking off the #RealiseD General Assembly Meeting 🚀 One year on from the launch of this public–private partnership, nearly 40 partners have come together to reflect on progress in advancing the design and delivery of clinical trials for rare and ultra-rare diseases. Stay tuned for key insights 🤝
Be part of the change in rare disease research! 🧬✨ Subscribe to the #RealiseD newsletter for the latest updates on how we’re rethinking clinical trials for rare and ultra-rare diseases across Europe. 👉 https://loom.ly/98ISTm8
Find out more: https://loom.ly/AxssNo0 #RareDiseases
🚀 Start 2026 with fresh insights! Join #RealiseD’s webinar series (13 Jan–10 Feb) on innovative clinical trials in rare diseases. Learn key design principles, regulatory strategies, and patient-centric approaches from leading experts.
Register now👇 https://loom.ly/E2cmGmM #RareDiseases
🚀 Start 2026 with fresh insights! Join #RealiseD’s webinar series (13 Jan–10 Feb) on innovative clinical trials in rare diseases. Learn key design principles, regulatory strategies, and patient-centric approaches from leading experts.
Register now👇 https://loom.ly/E2cmGmM #RareDiseases
At #WODC, Ralf-Dieter Hilgers, RealiseD Coordinator from Sigmund Freud Private University, presented the paradigm shift RealiseD is leading in #UltraRareDisease research. 💡This will take shape in Playbooks—practical guides for better, fairer clinical trials. #RareDisease #RealiseD #OrphanDrugs
🎉 Hello #WODC2025! RealiseD, ERDERA & Inventis kicked things off with the congress’s largest workshop on accelerating rare disease drug development.
📢 Workshop insights coming soon on our website—stay tuned!
#RareDiseases #OrphanDrugs #RealiseD
Be part of the change in rare disease research! 🧬✨ Subscribe to the #RealiseD newsletter for the latest updates on how we’re rethinking clinical trials for rare and ultra-rare diseases across Europe. 👉 https://loom.ly/98ISTm8
Find out more: https://loom.ly/AxssNo0 #RareDiseases
Partners from RealiseD will join the EFGCP “Better Medicines for Children” Conference 2025, contributing insights on advancing and optimising orphan medicine development. 👧🧬
📅 21–22 Oct | Amsterdam & online
🔗 Read more: https://loom.ly/KwLN6lw #RealiseD
🎤 Vinciane Pirard (Scientific Advocacy & Insights, Global Medical Affairs – Rare Diseases, #Sanofi) presented the #RealiseD IHI project at the #IRDiRC Consortium Assembly this week! Proud to see our partners advancing innovation in #RareDiseases and orphan medicine development 🚀
Ravi Kishan reveals an unknown story about SRK from 'Fauji' days: 'Realised why he became King Khan' #RaviKishan #SRK #Fauji #Realised #KingKhan #socialnewsxyz
Two weeks ago, the RealiseD project held a workshop in Amsterdam on playbooks to accelerate rare disease clinical trials. Collaborating across Europe, we’re building practical, patient-centred tools to strengthen trial readiness. Read more: 🔗 loom.ly/EXa9SHQ 🌟 #RareDiseases #RealiseD #clinicaltrials
🎙️ Many voices, one #RealiseD goal: improve #ClinicalTrials for #RareDiseases 👉On 16 June, we launched our first #PatientEngagement webinar—bringing patients, researchers, regulators & industry to co-create better trial designs.🔗 More: loom.ly/wwrM7pM | @ihieurope.bsky.social @eurordis.bsky.social
Today is International #ClinicalTrialsDay 2025! 🔬 We celebrate the dedication of researchers & patients who drive medical breakthroughs.
✨ This week, discover insights from patients, researchers, regulators & industry.
👇 Today: #Researcher Ralf Dieter’s perspective. #RealiseD @sfu.ac.at
🙌 One week to go until International Clinical Trials Day 2025! 🔬 On 20 May, we honour the vital role of clinical trials and the people behind them. Stay tuned as we explore their impact from all angles! 💡
#ClinicalTrialsDay #HealthInnovation #MedicalResearch #RealiseD
The #RealiseD project has been cited in @frontiersin.bsky.social ! 🎉 The study highlights our work in advancing clinical trial design for rare diseases, reinforcing our commitment to patient-centric innovation.
📢 Learn more at loom.ly/FP2SRtI ! #RareDiseases #ClinicalTrials
🌍💜 Today is Rare Disease Day, a moment to shine a light on the millions affected by rare and ultra-rare diseases. At RealiseD, we’re transforming clinical trials for ultra-rare conditions to accelerate treatment development and improve lives.
💡 Let’s make rare count!
#RareDiseaseDay #RealiseD
What are the biggest challenges in ultra-rare diseases?
👨🔬 Ralf Dieter, Scientific Coordinator of #RealiseD, shares how the initiative is tackling these challenges.
🚀 Join us on this journey to transform the lives of millions of people living with rare and #UltraRareDiseases!
🔸This Friday is #RareDiseaseDay🔸
💬 We asked Emer Cooke, Executive Director of the @ema.europa.eu, a key partner in the RealiseD project, to share her insights on this special date. 🔬
👀 Read her message below! 👇
#RealiseD #RareDiseases #Innovation
🚀 A new era for clinical trials in rare diseases begins now! 🚀💫
Last week, we launched the IHI #RealiseD Project in Vienna with 40+ partners. 💙 Thanks to all who joined and made this kick-off a success!
📢 Join us on this transformative journey 🔗 loom.ly/Kp7fkk8
#RareDiseases @ihieurope.bsky.social
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Teamit at RealiseD project launch for rare diseases at Vienna 2025.
Teamit at RealiseD project launch for rare diseases at Vienna 2025.
Teamit at RealiseD project launch for rare diseases at Vienna 2025.
🚀 Starting 2025 strong at the #RealiseD project launch in Vienna! An inspiring opening with a keynote speech by Emer Cooke from #EMA & insights from Dieter Hilgers & Dr Solange Corriol-Rohou.
#Teamit is proud to support groundbreaking #ClinicalTrials for ultra-rare diseases! ✨ #RareDiseases
🚀 The #RealiseD project launched with a keynote speech by Emer Cooke, Executive Director of #EMA🎙️ Her call for multistakeholder collaboration & focus on patient experience in rare diseases was truly inspiring. Thank you, Emer! 💫
Read more 👉 shorturl.at/IIVQe
#HealthcareInnovation #RareDiseases
