Latest posts tagged with #RightToTry on Bluesky
Philip Kenner is dying in federal prison. The BOP blocked Trump’s Right to Try Act and cut off life-saving treatment. The fraudsters he exposed walk free. This is not justice. It’s a death sentence. #RightToTry #RightToDie
https://loom.ly/Hgpkmak
#PhilipKenner #BOPAbuse #DeepState
Who owns the right to try living when medicine runs out of approved answers? New essay inspired by Boston Legal on experimental treatment, patient autonomy, and whether governments should decide when hope is allowed.
Read here:
chikicha.com/who-owns-rig...
#MedicalEthics #RightToTry #PatientRights
In a move that's sparked both intrigue & alarm across the medical industry, Montana has taken a radical leap in the world of "Right to Try" legislation.
Read more at www.rare360.life/post/montana...
#rare360
#rarediseases
#LivingRare
#rareadvocacy
#Righttotry
📢 Key point on #UCBill, especially for #Labour MPs👇
The #RightToTry - the right to try work without losing benefits *already exists*. It isn't a new provision, it isn't created by this bill, it'll be there if you #BinTheBill.
Nothing in the Bill incentivises work. It's all about cuts.✂️ #TakingThePIP
It’s clear you don’t believe in the #RightToTry that so many patients advocate for. I do believe in that right.
I’ve offered myself in research trials multiple times.
I know very well what has helped me might not be the correct treatment for my friend. But she deserved the right to try something.
Montana's 'Right to Try law' (SB422 & SB535) lets people seeking anti-aging treatments access experimental therapies post-Phase I trials. Should we have this be a blueprint for development of anti-ageing therapeutics 🧬 #RightToTry #Montana #Longevity fastdemocracy.com/bill-search/...
Montana Becomes the Right to Try Anything State, Expanding Access to Experimental Drugs #Technology #Business #HealthTech #RightToTry #ExperimentalDrugs #HealthInnovation
If administered correctly the #RightToTry initiative has the potential to change lives. Something like this is long overdue will hopefully give people confidence of knowing, that if it doesn’t work out they won’t have the trauma of having to apply for benefits all over again. And it is a trauma.
Both the #PBMreform bill and #RightToTry are in the #Colorado House for a floor vote this week! Thursday is 340B (yes on 124, No on 71) to make hospitals give the charity care they are paid for! Big week in healthcare for Coloradans.
Super long work day yesterday. Well over 12 hours! Being very disabled makes it feel like even longer. Worth it though! The #RightToTry bill passed out #Colorado House Health!
Thanks to #COleg for sponsoring the #RareDisease #RightToTry legislation! Yes on HB25-1270! youtu.be/Wo1piZ2rBvE?...
We’d love to thank Rep. Gilchrist for sponsoring the #RightToTry bill!
#HLP19 #HealthLawRocks With regard to @HollyLynchez point that #RightToTry was intended to undermine @US_FDA -- the law's original sponsor @RonJohnsonWI explicitly said so: via @statnews
#RightToTry panel: @ErinPaquetteMD @NorthwesternMed @LurieChildrens @LuriePICU discusses the case study of #nusinersin #Spinraza for #SMA (spinal muscular atrophy) #HLP19 #HealthLawRocks
Seema Shah @NorthwesternMed @LurieChildrens raises important questions with regard to data collection, echoing @HollyLynchez concern about lack of incentives to collect/report data generated from #RightToTry #HLP19 #HealthLawRocks
On #HLP19 #RightToTry panel, @HollyLynchez @UPenn_MedEthics addresses research ethics & patient protection, and the Federal Right To Try Act #HealthLawRocks
#HLP19 #HealthLawRocks @pzettler @GSU_HealthLaw introduces the panel "Ethical and Legal Challenges in a #RightToTry World" by covering the history of access to unapproved drugs and @US_FDA's pre-approval access programs
.@US_FDA official hints at a tough road ahead for #RightToTry cc: @AmeetSarpatwari @HollyLynchez @pzettler via @statnews
This is an incredibly compelling and affecting story.
I think that Pharma's need to pay close attention to this and support existing @US_FDA #CompassionateUse mechanisms, otherwise the drum beat for access under #RightToTry will continue to get louder.
https://t.co/b2oBqrrv1a
T3. @metavivor & @METUPorg support #RightToTry & 1 CA congressman agreed to sign on, others supportive. 3 #BCSM
