Latest posts tagged with #SUDEP on Bluesky
Outrageous! Neurologists offer vital healthcare.
I say this as the grieving mother of a young woman who succumbed to #SUDEP - Sudden Unexpected Death in EPilepsy - 10 years ago. Thanks to her neurologist, Alice (daughter), her father & I knew her #epilepsy put her at risk of early death.
Epilepsie : une étude menée aux Hospices Civils de Lyon met en lumière des biomarqueurs facteurs de risque de mort subite.
🧠 pour en savoir plus sur cette étude : recherche.chu-lyon.fr/SUDEP-biomar...
#Neurologie #Epilepsie #SUDEP
@hospicescivilslyon.bsky.social
This post proves one thing, he (the brother) was loved (is still loved) & that's important!
My daughter was a lesbian & she, too, was loved. I always try to make a point of saying that even though she died of #SUDEP - Sudden Unexpected Death in EPilepsy - 10 years ago, she is STILL loved. Always.
Was ist #SUDEP ? #SuddenUnexpectedDeathInEpilepsy
Den Angehörigen und Freund*innen mein Beileid. 🕯️🖤
www.t-online.de/gesundheit/a...
We review here the electrophysiological and pharmacological features of SD in models of epileptiform synchronization.
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #ictogenesis #seizures #spreadingdepolarization #SUDEP
You are so kind!
George & I were lucky to have each other as well as our son, #MorganLawrence & daughter, #AliceKatharine.
Alice died of #SUDEP - Sudden Unexpected Death in EPilepsy - on 4/20/2015, 10 days before her 30th birthday.
Morgan sufferd from #LongCOVID which required he quit his job.
Thank you. He was a great friend, companion & lover.
#GeorgeXHale was the perfect person to sustain me - & for me to hold onto him - on April 20, 2015, when our beloved second born, #AliceKatharine, left us due to #SUDEP - Sudden Unexpected Death in EPilepsy - 10 days before her 30th birthday. 💜🌈💔
Thank you so much! I miss him more than I realized was possible.
Four years before George died, our daughter, #AliceKatharineHale, was taken by #SUDEP - Sudden Unexpected Death in EPilepsy - 10 days before her 30th birthday. It was awful, but I'm grateful George was still here when Alice died. 💜
It's 7:26 PM on 11/10/25. It's dark & nearly winter in Seattle. I just returned from Uncle Ike's Capitol Hill (at least one of them) Pot Shop.
I love walking to a store to buy weed legally! I only regret that it was legalized AFTER Dad died & #Marriage= became legal AFTER Alice met #SUDEP.
My tablet locked up, but what the hell! So I sent my unfinished post.
My daughter had #epilepsy, but even #AliceKatharineHale (5/1/85-4/20/15
#SUDEP - Sudden Unexpected Death in EPilepsy) danced better as a toddler than the moron does now! Absurd! Trump not Trumble. FUCK IT! Sorry!
999,999 typos+
I'm sorry for your battles, too. (Excuse the following whine - my whines seem to release the poison of self-pity out of my body.)
My daughter died on 4/20/15 of #SUDEP - Sudden Unexpected Death in EPilepsy. Mom died in 2018. My husband of 40 years died on 11/11/2019. I had to move.
Promotional image for the Partners Against Mortality in Epilepsy conference in Atlanta, featuring three attendees focused on a presentation, with event details and a 'Register Today!' call to action.
📅 Mark your calendars! Join leading voices in patient #advocacy, #epilepsy research, and #SUDEP prevention at the 2025 #PAME Conference December 4, 2025, in #Atlanta.
Registration is now open! https://bit.ly/3WQB4he
🧑🤝🧑 Our fellow humans in prison ⛓️ - are not getting the epilepsy care or even the prescriptions they need - because they're in prison. This isn't only impacting quality of life but increasing risk of #SUDEP!
Check out our trailer for this week's podcast here 👇!
🎬 YouTube shorturl.at/qNwkX
#epilepsy
Progressive clonic slowing is associated with marked oxygen desaturation during bilateral tonic–clonic seizures.
doi.org/10.1002/epi4...
#epilepsy #ilae #epilepsiaopen #SUDEP #Progressiveclonicslowing #PostictalImmobility #Tonicclonicseizure #Respiratorydysfunction
💜 SUDEP (Sudden Unexpected Death in Epilepsy) is rare but serious—and often left unspoken.
Awareness + real-time monitoring with My Medic Watch helps protect lives by detecting seizures-like movement instantly and alerting caregivers.
#SUDEP #EpilepsyAwareness #SeizureSafety #MyMedicWatch
🧠💜 Hoy es el #DíaDeAcciónContraSUDEP
Desde la Fundación Síndrome de Dravet alzamos la voz para dar visibilidad, generar esperanza y promover la investigación. Porque cada paso cuenta. Porque la información salva vidas. 💪✨
#SUDEP #Epilepsia #Dravet #Concienciación #Investigación #Esperanza
Atenolol reduced heart rate and QTc interval, without affecting seizure load in both mouse models of SUDEP.
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #atenolol #cardiacarrhythmia #KCNH2 #longQTsyndrome #SUDEP
Risk markers for sudden unexpected death in #epilepsy: an observational, prospective, multicentre cohort study: pubmed.ncbi.nlm.nih.gov/40975113/ #SUDEP
PWEs and CGs generally support AI-CLDs for SUDEP prevention but emphasize the need for accuracy, reliability, and user control over interventions.
doi.org/10.1111/epi....
#epilepsy #ILAE #epilepsia #artificialintelligence #automatedintervention #closedloopsystem #medicaldevice #SUDEP
Following Jason's death last year, we are heading on a sponsored 17ml hike. We are raising awareness of #Epilepsy #SUDEP the rare condition which took Jason from us and raising funds for SUDEP Action.
If you can donate in the link below it would be greatly appreciated:
You're welcome. One last thing: I wish you continued strength.
We had a daughter with poorly controlled #epilepsy. Caring for others calls for strength we're unaware we have until necessary. Alice was taken by #SUDEP - Sudden Unexpected Death in EPilepsy - 10 years ago right before her 30th bday.
Our findings identify augmented ventilatory chemosensitivity and impaired autoresuscitation as critical pathophysiological features of SUDEP.
doi.org/10.1111/epi....
#epilepsy #ILAE #Epilepsia #anoxia #autoresuscitation #chemosensing #respiration #SUDEP
#LittleManDonny thinks he is dancing, but he looks like a fucking moron having a seizure.
I'm not ridiculing people with #epilepsy. My daughter suffered #Epilepsy. We lost her in 2015 to #SUDEP - Sudden Unexpected Death in EPilepsy - 10 days before her 30th birthday.
#SenileTrump has no brain.
Barriers to SUDEP talks include time limits, fear of distress, and doubts about patient understanding.
doi.org/10.1002/epi4...
#epilepsy #ILAE #epilepsiaopen #mortality #seizures #SUDEP #SUDEPcommunication
🔥 New Ep! 🔥
Harvard’s Dr Phillip Pearl 🤩🇺🇸 (Chief of Epilepsy at Boston Children’s Hospital & Prof at Harvard) on:
⚡ Why advocacy matters
🧬 Rare epilepsy & gene therapy
💜 SUDEP & mental health
Catch it here 👇
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
📄 shorturl.at/PDSag
#Epilepsy #Neurology #SUDEP
studying to become a Psychiatric Social Worker.
She wanted to help others as she had been helped. Although she wasn't able to live long enough to achieve her goal, nothing (not even the knowledge of the possibility of #SUDEP) stopped her from living & learning to make the world a better place.
My daughter, Alice, had #EarlyOnsetEpilepsy. She lived a full, but difficult (and seizure-filled) life that included a coma when she was two-years-old when we were told she might die.
However, after being put into a deeper, drug induced coma, Alice came out of it. She suffered #SUDEP - Sudden
Two attendees standing behind a lectern at the 36th International Epilepsy Congress in Lisbon, Portugal, featuring the ILAE logo and IBE logo.
This weekend at #IEC2025, our CSO Dr. Laura Lubbers joined Dr. Dan Lowenstein for the Presidential Symposium on inclusive, patient-centered epilepsy care. She also shared updates on SUDEP Common Data Elements led by CURE Epilepsy. #ILAE #SUDEP #epilepsyresearch
🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more!
#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
Thank you so much to João Ferreira & Miguel França for a brilliant NEUROSENSE EU summit in Porto 🇵🇹! I was chuffed to be part of the round table where I spoke of my Public Patient Involvement, along with fellow leads Prof Sándor Beniczky, Jose Angel Aibar, and Prof. Torbjörn Tomson.
#epilepsy #sudep
