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#SickleCell
Latest posts tagged with #SickleCell on Bluesky
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Posts tagged #SickleCell
#Health, #SickleCell #Perceptions
Estimated percentage at Black colleges (HBCUs)
Studies of #HBCU athletic programs found about 4.9% of student-athletes had sickle cell trait.
pubmed.ncbi.nlm.nih.gov/39073355/
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We’re delighted to share that the Sickle Cell Society Exhibition — Our Journey, Our Story is now open.
📅 11 Mar – 11 Apr 2026
📍 Royal London Hospital, Inclusion Hub (Level 14)
🕐 Mon–Fri, 1–4pm
We look forward to welcoming you.
#SickleCell #SickleCellSociety #Exhibition
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My double lumen, aphaeresis femoral lines. Pumping donor plasma in w/ my washed rbcells.
2nd to last fem-line before I FINALLY get my port replaced 🥹😭 Apparently it was supposed to be placed today but, I never got the call. Lucky for me, because of staffing, they couldn't do it anyway so, next month it is.
Lucky #7.
#sexyspoonievibes #smuttyspoonie #sicklecell #disablederoticbaddie
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🩸437 patients with Sickle Cell Disease
📊2273 transfusions analysed
👦Children - not so complicated transfusion
👱Adults- more exchange transfusions
Automated exchange was the most prevalent in adults.
The policy of transfusion is affected by age
#SickleCell #MedSky
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Lase Ajayi ( @laseajayi.com) is looking forward to welcoming you as she digs into the policy landscape and the evolving integration of #palliativecare for people living with #SickleCell Disease.
#HAPC26 #PedPC
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Depo in patients with #sicklecell moves from 1/2 ➡️ 3/4 with 2024 update.
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Please see our official statement regarding the Same Day Emergency Care Unit at The Royal London Hospital and the latest update following discussions with commissioners.
#SickleCellSociety #SickleCell #PatientVoice #HealthEquity
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Join us in welcoming Ben Kopp, MD, MPH, ATSF, FAAP, as division chief for Pulmonary and Sleep Medicine at Nationwide Children's! Dr. Kopp is a national leader in clinical and translational research focused on the immunobiology of #CysticFibrosis and #SickleCell lung disease. https://bit.ly/4tM2GU9
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Breaking news: We have been in discussions with commissioners regarding the Same Day Emergency Care Unit at The Royal London Hospital, and as a result, it will reopen.
Full statement to follow.
#SickleCell #SickleCellSociety #PatientVoice #HealthEquity #NHS
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Last year we asked families and volunteers what they thought of our Sickle Cell Family Retreat — here’s what they said.
Registration for 2026 is now open. Secure your place today:
www.sicklecellsociety.org/childrens-ac...
#SickleCell #FamilySupport #ApplyNow
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Happy #RareDiseaseDay. Sickle cell is one of the fastest growing genetic conditions in the UK— yet it remains under-resourced. We’re joining Genetic Alliance UK to call for equity in rare diseases. See powerful artwork by Rose Matheson capturing what equity means. #SickleCell
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We’re honoured to bring back Our Journey, Our Story: History & Memory of Sickle Cell Anaemia in Britain 1950–2020.11 Mar–11 Apr 2026 at The Royal London Hospital Mon–Fri, 1–4pm With thanks to Barts Health, Black Cultural Archives & Wellcome Collection. #SickleCell
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“For Africa, gene therapy treatment currently exists only on paper.”
Nigeria sees 150,000 babies born with sickle cell disease each year, the highest burden globally. Yet CRISPR-based cures remain financially out of reach.
#SciComm #Sicklecell #geneediting
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Rare Disease Day is February 28.
#PH is often associated with other rare diseases such as #scleroderma, #HHT, idiopathic #pulmonaryfibrosis, #sicklecell disease and #lupus.
Raising awareness, improving diagnosis and ensuring access to care can save lives. Learn more: buff.ly/8TU8sC5
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Registration is now OPEN for our 2026 Sickle Cell Family Retreat 🎉A FREE weekend away for families with a child (6–15) living with sickle cell — full of learning, adventure and connection. 📅 31 Jul–2 Aug 2026.
Apply now: buff.ly/D8v5PUe
#SickleCell #FamilySupport
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Do you live with Sickle Cell Disease, or have a loved one who does? What is one thing you wish people knew about SCD?
#sicklecell #sicklecelldisease #raredisease #chronicillness
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A powerful story from @AmericanRedCross: Shayna Criss fights sickle cell with blood donation and advocacy.
Read more: https://ow.ly/ZfZR50YhjhN
#BloodDonation #SickleCell #HealthEquity #PatientAdvocacy #PublicHealth #DisabilityAdvocacy
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Interesting piece:
"Vertex’s CRISPR treatment for #sicklecell disease hits unexpected roadblock - Although Casgevy can cure, a basic hospital procedure is slowing uptake and threatening its edge" www.statnews.com/2026/02/05/v...
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We’re recruiting a North West Programme Manager. After extending our Children & Young People’s Peer Mentoring Programme to Manchester, Liverpool & Sheffield a year ago, we’re looking for someone to lead delivery across the region. Apply here:
buff.ly/joA8oIR #SickleCell
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Promotional graphic for a podcast episode on a red background. Large white text reads “Hakeem’s Kidney Warrior Story: Navigating Sickle Cell, Dialysis & CKD.” On the right is a portrait photo of Hakeem wearing glasses. At the bottom left is a small image of podcast host Dee Moore speaking into a microphone. The Diary of a Kidney Warrior logo appears alongside the Kidney Care UK logo, with a black label reading “Featuring Hakeem.”
New episode 🎙️
Hakeem shares his lived experience of #SickleCell, #chronickidneydisease & #dialysis on #diaryofakidneywarriopodcast 💚
Available on:
🎧 Apple | Spotify | Podbean|YouTube|et al.
🌐 kidneycareuk.org/get-support/...
Please listen, share & comment
#ckd
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Aged 13–24 with sickle cell (or parent/carer)? Join a Healthcare Transition Advisory Group with Manchester & Nottingham researchers + Sickle Cell Society.
Compensation provided. Contact: rachele.salvatelli@manchester.ac.uk
#SickleCell #YouthVoice
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#Medicaid will only pay for costly new #sicklecell treatment if it works via @npr.org #WednesdayMorning www.npr.org/2026/01/20/n...
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Barts Health has shared an update on the SDEC pilot for sickle cell patients at The Royal London Hospital. We know concerns remain and will continue to listen.
Read via our website:
www.sicklecellsociety.org/royal-london...
#SickleCell #NHS
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Living with sickle cell in the North East of England?
You may be invited to take part in the HALO survey, sharing your lived experience to help shape better care and support services. Find out more: buff.ly/spOtCqJ
#SickleCell #PatientVoice #NorthEastEngland #HealthEquity
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Prevent closure of the Sickle Cell Day Unit
Please sign & share this petition
#nhs #sicklecell
www.change.org/p/prevent-cl...
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We welcome the SMC decision to recommend exa-cel (Casgevy) for severe sickle cell disorder in Scotland.
For more information and to submit your expression of interest for our gene therapy webinars, visit:
www.sicklecellsociety.org/gene-therapy...
#SickleCell #Casgevy #GeneTherapy #Scotland
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A racialised capitalism perspective on the employment experiences of people living with sickle cell in the United Kingdom #employment #capitalism #sicklecell onlinelibrary..com/doi/10.1111/...
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We will be joining the @imperialcollegeldn.bsky.social Lates! Visit our stand to learn about #SickleCell: the physical and mental impacts and the personal stories.
📅 Thursday 29 January
⏰️6-9pm
📍Imperial’s South Kensington campus
All info via:
www.imperial.ac.uk/events/20319...
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Legacies of Sickle Cell takes place at the Wellcome Collection on 24 Jan 2026 (1–2pm). Guest speakers include Alinta Sara and Laurel Brumant-Palmer. The venue is fully accessible. Info/tickets + SCS archive: buff.ly/pFG3Nko
buff.ly/u4MS227
#SickleCell #WellcomeCollection #SickleCellSociety
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