Dear MP
I am from IPAG (Insulin Pump Awareness Group) Scotland. We are a small group of Type 1 Diabetics that campaign in Scotland for improvement in our care. We have over 350 years of lived experience between us.
We are asking you to stand for Type 1 Diabetics in the UK. We are asking you to attend Lyla’s Law debate on the 9th March. This will take place in Westminster Hall covering the petition 728677, “Funding so all infants are offered Type 1 Diabetes Testing in routine care.”
If you are unaware, Lyla Story attended the GP presenting with the 4Ts: Toilet, Thirsty, Tired, Thinner but was sent home with a tonsillitis diagnosis and died 16 hours later. Lyla was in DKA (Diabetic Ketoacidosis) this is when there is little or no insulin being produced resulting in blood glucose levels rising to dangerously high levels. For energy the body burns its fat storage producing ketones. This in turn causes the body to become acidic and the body starts to shut down. Unless insulin is administered immediately this will normally result in death.
IPAG Scotland join John & Emma Story in asking that anyone, no matter their age, presenting with the 4Ts is offered a finger prick to check their blood glucose levels. A finger prick test takes 5 seconds to complete and costs less than 10p and more importantly it could save a life.
It is my understanding that both Breakthrough T1D and Diabetes UK will provide briefings before the debate. If you wish to discuss anything about living with Type 1 Diabetes IPAG are more than happy to assist.
Kind regards
IPAG Scotland
Thanks to the dedicated work of John Story a debate will take place in @houseofcommons.parliament.uk at 6pm tonight to discuss #LyalasLaw
Please see the below letter @ipagscot.bsky.social Scot sent to all 57 Scottish MPs. For more info & to watch the debate use the link in the comments.
#T1D