Latest posts tagged with #TAPSSupport on Bluesky
#TwinTuesday | Ask Our Community
Have a question you haven’t had the chance to ask yet?
This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.
#TAPSSupport
#TwinTuesday | Ask Our Community
Have a question you haven’t had the chance to ask yet?
This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.
#TAPSSupport
#TwinTuesday | Ask Our Community
Have a question you haven’t had the chance to ask yet?
This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. So what’s on your mind? You might not be the only person wondering.
#TAPSSupport
Our social media will be coming back online on Monday after a short break.During the break, we’ve refreshed our content and approach, and we’re looking forward to sharing news, research, and our own resources, alongside important updates from the world of monochorionic twins.
#TAPSSupport
Dr Jena Lyn Miller joins Children’s Hospital of Philadelphia in Jan 2026 as co-director for Fetal Diagnosis and Treatment. Her work includes specialist care for monochorionic twins and. www.chop.edu/news/dr-jena-l... Got news to share? Send us a link!
#TAPSSupport #FetalTherapy
Parent-led survey with Leiden University Medical Center on hearing loss after TAPS. Website: ~1 in 8 donor twins have permanent hearing loss in both ears. Open 12 Dec 2025 to 12 Feb 2026. #TAPSSupport #HearingLoss www.tapssupport.com/parent-...
This new resource for teachers and school staff explains Twin Anemia Polycythemia Sequence (TAPS) in clear language and outlines how it can affect learning, behavior and hearing in the classroom. It's free to download on our website: www.tapssupport.com/taps-fo...
#TAPSSupport
Applications are open for the Olivia Norbury Scholarship for early-career clinicians working with monochorionic twins and TAPS. Apply by November 30: www.tapssupport.com/scholar...
#TAPSSupport #EAPM #MonochorionicTwins
Two fully funded TAPS Support scholarships for the EAPM online course on complicated monochorionic twins (TTTS, TAPS, sFGR). Open to early career clinicians and those in low and middle income countries. Details: www.tapssupport.com/scholar...
#EAPM #MonochorionicTwins #TAPSSupport
The October Newsletter for TAPS Support is out! Find out important research updates, information about upcoming events and stories from our community. Click here to go to the newsletter: sbee.link/cnyarxg8fp and subscribe via this link: sbee.link/ydr3a9gnvh
#TAPSSupport
New paper on TAPS after the loss of one twin reviewed 39 cases. Most surviving twins were born in the third trimester, early brain scans were clear, and deaths were rare. Read the study: obgyn.onlinelibrary.wiley.c...
#TAPSTwins #TAPSSupport
New paper on spontaneous TAPS measured ferritin within 48 hours after birth. In 10 twin pairs, donors had lower iron and recipients higher iron. The authors recommend checking iron at birth in all TAPS twins. Full paper: sbee.link/pauchwt7n4
#TAPSTwins #TAPSSupport
We love a good podcast, especially when it's someone sharing their TAPS journey.
Thanks to Marni for sharing her story with Mamamia!
Click here to listen: sbee.link/aybuefgcqn
#TAPSSupport #TwinParent #TAPSTwins
You ask the questions, hold the grief, and stay steady through the unknown. This kind of fatherhood is quiet, real, and essential. Today is not about perfection. It is about presence. And you are here. Happy Father’s Day.
#TAPSSupport #FathersDay
You ask the questions, hold the grief, and stay steady through the unknown. This kind of fatherhood is quiet, real, and essential. Today is not about perfection. It is about presence. And you are here. Happy Father’s Day.
#TAPSSupport #FathersDay
Kangaroo Care is essential, evidence-based support. For families facing complicated twin pregnancies, it restores connection, improves stability, and supports recovery. Zero Separation is not idealism. When safe, babies and parents belong together. #kangaroocareday #zeroseparation #tapssupport
Mother’s Day includes every mother who went through a complicated multiple pregnancy. The ones who faced uncertainty, made difficult choices, and still carry the weight of what happened. However your story ended, this day includes you.
Happy Mother’s Day.
#TAPSSupport #MothersDay #TwinMom
Families facing TAPS, TTTS, TRAP, or sFGR are often asked to consider clinical trials with little support. We’ve created a clear, practical resource to help. Built from lived experience, free to access.
sbee.link/wa9tfndcv4
#TAPSSupport #Twin Research #ClinicalTrials
Tonight I had the pleasure of gifting our Peer Support position paper, coauthored with Footprints Baby Loss, to Prof. Nick Embleton. His encouragement helped us publish it in Infant journal. So proud of this work. Read it here: : sbee.link/phgq3rnvb4
#TAPSSupport #PeerSupport
Chag Pesach Sameach.
Happy Easter.
Kali Anastasi.
Happy Ridván.
As traditions converge this weekend, may we find space for reflection, renewal, and hope. Wherever you are and however you celebrate, may peace, freedom, and connection guide your days.
#TAPSSupport
Some TAPS families are left with questions, missed signs, and outcomes that could have been avoided. There’s still no clear approach to screening, monitoring, or treatment. While some teams lead the way, we need global collaboration. Families deserve better.
#TAPSSupport #TwinLoss #TAPSTwins
To the mums who know the word TAPS all too well, today is for you.
Facing a diagnosis like TAPS is a challenge no parent should face alone. Whether fighting for answers or carrying grief, your story matters. We see you, recognise your strength, and stand with you.
#TAPSSupport #MotheringSunday
We connect parents with experts, research, and each other. Support networks matter, and we believe peer support is essential to care. Families need community as much as medical guidance. More on that here: www.tapssupport.com/positio...
#TAPSSupport #Connections #PatientPerspectives
Advocacy means giving parents the tools to challenge outdated guidelines and push for better care. Guidelines set the minimum standard, but care should go further. We work to correct misinformation, push for better screening, and ensure families understand their options.
#TAPSSupport
Why recognize World Alloimmunization & HDFN Awareness Day? Because we have more in common than you think. Research into these diseases shaped what we know about fetal anemia and helped us understand TAPS. #TAPSSupport #FetalAnemia #MCADoppler
This week, we’re reintroducing TAPS Support - Education is vital. We provide clear, accurate information, create resources, and emphasize shared decision-making to improve care. #TAPSSupport #PatientPerspectives #Education #MultipleBirths
TAPS Support is built on five pillars: Research, Education, Advocacy, Connections, and Hope.
We don’t just support research. We write papers, advise on trials, and ensure patient voices are heard. The future of research is patient-centered. Contact hello@tapssupport.com.
#TAPSSupport #TwinResearch
We celebrated International TAPS Day last week and are excited to see so many new followers! Stichting TAPS Support, founded by the Ernst family, raises awareness of TAPS, supports research, and provides accurate information. Learn more at sbee.link/9dupheqwkn.
#TAPSSupport
Read more about our latest projects, our new partnerships and find updates on the latest research inside, including an exclusive discount for the Monochorionic Twins course: bit.ly/4g9PMXR
Subscribe: bit.ly/3ClPU8P
#TAPSSupport #TwinResearch #Newsletter
🎉 Happy New Year from TAPS Support! 🎉
Thank you for your incredible support. Let’s continue our mission together in 2024. Please consider donating to help us make a difference.
#TAPSSupport #HappyNewYear stichtingtapssupport.com/donate
