#WorldMEday

@intensivdiva.bsky.social

10 months ago

Graphic with text in top centre ‘Together, let’s replace the myths with facts this #WorldMEDay’. Beneath is a dark blue box with text in white ‘Read, share & print the World ME Alliance’s ME Factsheet’ with 2 images, each a page of the World ME Alliance ME Factsheet. Action for ME logo in top right corner.

The World ME Alliance has updated their free ME Factsheet! It's a valuable resource for anyone looking to learn more about ME.

Read, print or download the factsheet, which is available in several languages👇

worldmealliance.org/worldmeday/

#WorldMEDay #MECFS #pwME #MyalgicEncephalomyelitis

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ME Association

@meassociation.org.uk

10 months ago

IMAGE DESCRIPTION: Photo of a doctor smiling. Wording reads: Myth: Doctors cannot help people with ME. Fact: Doctors can help people manage ME symptoms. While there is no cure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent post- exertional malaise.

Myth: Drs cannot help people with ME
Fact: Drs can help people manage ME symptoms. While there is no cure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent post- exertional malaise
https://worldmealliance.org/worldmeday/

#WorldMEDay #MECFS

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🩺 Die IntensivDiva 🏳️‍🌈

10 months ago

Post-Covid, ME/CFS und Post-Vac: Versorgung, Aufklärung und Forschung in Sachsen verbessern - Online petition Hilfe für Post-Covid-, ME/CFS- und Post-Vac-Betroffene in Sachsen! Die Versorgungslage der Betroffenen von Post-Covid, ME/CFS und Post-Vac in Sachsen ist nach wie vor prekär. Die Kenntnisse zu den Krankheitsbildern sind bei vielen Ärzten, Therapeuten und medizinischem Personal mangelhaft. Die wenigen Spezialambulanzen sind überlastet, häufig zugangsbeschränkt und bieten keine Behandlungsoptionen an. Die zuständigen Behörden berücksichtigen die Schwere der Erkrankung bei der Gewährung von Soziall

Bitte unterschreiben ✍️ und re-posten!
Vielen Dank. 🙏🏻

#followerpower #MECFS #keinLebenmitMECFS #WorldMEDay

www.openpetition.de/petition/onl...

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María Richardson

@diatoma.bsky.social

10 months ago

(People with #ME are still at the point of using our very limited energy to try to raise #MEAwareness on #WorldMEDay #MillionsMissing and really every day of the year.) (6/8)

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Katie Klocksin, by the wayside

@katieklocksin.bsky.social

10 months ago

I nominate @AndreaGrimes.com to help expose the #GreatestMEdicalScandal for this #WorldMEDay #DisabilitySOS. Thank you for speaking up about ableism on this app recently, please visit JohnVsJon.com to learn more & help us raise awareness for this neglected, stigmatized disease.

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Smile For ME

@smileformeuk.bsky.social

10 months ago

“A special #WorldMEDay delivery!

A big thank you to Smile For ME for brightening up my loved one’s day. After a particularly hard month it means the world 💙”

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10 months ago

World ME Alliance graphic. Photo of a doctor sat at a desk. Text in white from top to bottom: Myth vs Fact. The Myalgic Encephalomyelitis Edition. Myth: Doctors cannot help people with ME. Fact: Doctors can help people manage ME symptoms. While there is no sure for ME, there are compassionate ways to help patients manage their symptoms, in addition to pacing to prevent post-exertional malaise. What facts do you want the world to understand this World ME Day?'

❤️ Help us and the World ME Alliance share the facts about ME this #WorldMEDay, as we debunk 6 common myths about ME.

❌ Myth 6: Doctors cannot help people with ME.

✔ Fact: Doctors can help people manage ME symptoms.

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ME Association

@meassociation.org.uk

10 months ago

IMAGE DESCRIPTION: Photo of a woman lying on a sofa. Wording - Myth vs Fact. The Myalgic Encephalitis edition. Myth: ME is just about feeling tired. Fact: The defining symptom of ME is Post- Exertional Malaise (PEM) - an extreme worsening of symptoms after even minor physical or mental exertion. This can trigger a "crash" lasting for days or longer. What facts do you want the world to understand this World ME Day?

Myth: ME is just about feeling tired

Fact: The defining symptom of ME is Post- Exertional Malaise (PEM) - an extreme worsening of symptoms after even minor physical or mental exertion. This can trigger a "crash" lasting for days or longer.
https://worldmealliance.org/worldmeday/

#MECFS #WorldMEDay

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@johnvsjonvsme.bsky.social

10 months ago

World ME Alliance graphic. Photo of a lady sat with a face mask on. Text in white from top to bottom: 'Myth vs Fact. The Myalgic Encephalomyelitis Edition. Myth: Long COVID is entirely different from ME. Fact: Many Long COVID patients have symptoms that match ME. What facts do you want the world to understand this World ME Day?'

🤝 Join us and the World ME Alliance for #WorldMEDay as we debunk 6 common myths about ME, and share the medical information about ME that everyone should know.

❌ Myth 5: Long Covid is entirely different from ME.

✔ Fact: Many long Covid patients have symptoms that match ME.

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@JohnVsJonVsME

10 months ago

We nominated Simone Biles because she recognizes that there are times when “pushing through” is not the right move. We hope she joins the fight to combat #GreatestMEdicalScandal and to find effective treatments for #MillionsMissing this #WorldMEDay! (Meme c/o @emilyesfraser.bsky.social)

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Jasmijn Doorgeest

@jasmijndoorgeest.bsky.social

10 months ago

Ziek zonder erkenning: ‘Als ME voornamelijk mannen had getroffen, was de geschiedenis anders gelopen’ - Red Pers In 'Landziek' vertelt Mariëlle Selser over haar ziekte, haar zoektocht naar erkenning en de pijnlijke tekortkomingen van de overheid.

Naar aanleiding van #WorldMEDay sprak ik Mariëlle Selser (@marielles.bsky.social) over haar boek 'Landziek'.

We hadden het zoal over de beeldvorming van #ME, de medeplichtigheid van de overheid en de verbinding met andere PAIS – waaronder #LongCovid.

Zie hier het artikel voor @redpers.bsky.social.

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Chronic

@chronicaction.bsky.social

10 months ago

Thank you Tessa Munt for using yesterday’s #WorldMEDay to highlight the whole picture of what’s happening to sick and disabled people with ME, Chronic fatigue syndrome, longcovid and similar chronic conditions.

#cutscutscuts #disabilitycuts

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10 months ago

World ME Alliance graphic. Photo of a child sleeping. Text in white from top to bottom: 'Myth vs Fact. The Myalgic Encephalomyelitis Edition. Myth: Only certain groups of people can develop ME. Fact: ME affects people of all races, genders, ages, & socioeconomic backgrounds. What facts do you want the world to understand this World ME Day?'

For #WorldMEDay, we are joining the World ME Alliance to tackle 6 common myths about ME.

📢 Help us spread the facts about ME by sharing!

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cbme-mark.bsky.social

@cbme-mark.bsky.social

10 months ago

#WorldMEDay #ThereForME

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10 months ago

Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙

1 0 0 0

10 months ago

Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙

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Lucibee

@lucibee.bsky.social

10 months ago

ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies YouTube video by Re: News

Excellent short (15 mins) film from Re: News (New Zealand) for #MEAwarenessDay #WorldMEDay

ME/Chronic fatigue syndrome: The mysterious illness trapping people in their bodies

Parent carer of daughter with #SevereME sets up hospice to care for others.

www.youtube.com/watch?v=DsOA...

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10 months ago

Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙

1 0 1 0

10 months ago

Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙

0 0 0 0

10 months ago

Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS
💙

1 0 1 0

@stevefifield.bsky.social

10 months ago

Have you considered that #MECFS is #poisoning?
Misdiagnosed by #Doctors.
👎
#ME #CFS
#Health #Illness
#MEAwarenessDay
#WorldMEDay
#NHS

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Steve Fifield

10 months ago

Community Voices - “ME/CFS Is..” - Open Medicine Foundation For ME/CFS Awareness Day, individuals shared powerful messages about the reality of living with ME/CFS. Explore the gallery of voices and help raise awareness.

What were to the most moving and thought provoking videos, posts, images, essays or poems you saw about #WorldMEDay please? 🙏

Please post below or quote post.

#pwME #pwLC

I’ll start with this:

www.omf.ngo/community-vo...

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