#eQuoLProject

ISGlobal

@isglobal.org

20 hours ago

Register now: Webinar "Communication about Late Effects" - YARN #QualityofLife Webinars PanCare Join us for the first webinar in the YARN #QualityofLife series!Together we will explore one of the most important topics in survivorship care: how to communicate effectively about late effects.

Safeguarding and rights matter for children and young #cancer survivors.

On 30 March, join us for a WEBINAR to explore how healthcare, research and support systems can better protect CAYACs at risk of maltreatment.

🟠 www.pancare.eu/2026/03/13/equol_webinar...

#eQuoLproject

ISGlobal

@isglobal.org

1 month ago

To mark International Childhood Cancer Day, discover "Healing in Two Voices" — a dialogue series from #eQuoLproject bringing together survivor voices and professional reflections.

🔗equolproject.eu/news/healing-in-two-voic...

#ChildhoodCancerDay

ISGlobal

@isglobal.org

3 months ago

New hope for survivors! Jelica Predojevic shares how #eQuoLproject is transforming care for childhood #cancer patients in Bosnia & Herzegovina: 🟠 https://f.mtr.cool/iroczrtzzp

#eQuoLproject #ChildHealth #HealthForAll

ISGlobal

@isglobal.org

3 months ago

e-QuoL Opens Any Door: A European Mission Project Bringing New Hope to Survivors in Bosnia and Herzegovina - eQuoL Launch of first e-QuoL online survey, aimed at collecting insights on the informational and psychosocial needs of child and youth cancer survivors and their loved ones across Europe.

The launch of e-QuoL marked a major milestone for Bosnia and Herzegovina.

Read Jelica Predojevic’s testimony and learn how this European project is changing the lives of childhood cancer survivors.

#eQuoLproject #GlobalHealth #HealthForAll

ISGlobal

@isglobal.org

3 months ago

e-QuoL Opens Any Door: A European Mission Project Bringing New Hope to Survivors in Bosnia and Herzegovina - eQuoL Launch of first e-QuoL online survey, aimed at collecting insights on the informational and psychosocial needs of child and youth cancer survivors and their loved ones across Europe.

#eQuoLproject Opens Any Door! Read Jelica Predojevic’s testimony on how this European Mission Project is creating new hope for childhood #cancer survivors in Bosnia and Herzegovina.

Discover the impact and inspiration for other countries!

#GlobalHealth #HealthForAll

ISGlobal

@isglobal.org

4 months ago

Nearly 2 years of collaboration, research and innovation!

The #eQuoLproject brings together European partners to build digital solutions that support young cancer survivors in taking care of their health and quality of life.

Subscribe to the newsletter: 🟠 https://f.mtr.cool/qpweecjvlf

ISGlobal

@isglobal.org

4 months ago

Almost two years of e-QuoL!

We’re co-creating e-health tools with young #cancer survivors to help them manage their health and thrive. 

Join our journey! Subscribe to our newsletter: 🟠 https://f.mtr.cool/zwhslzmyeb 

#HorizonEurope #Cancer #DigitalHealth #eQuoLproject

ISGlobal

@isglobal.org

6 months ago

September is Childhood Cancer Awareness Month!

#eQuoLproject provides young cancer survivors & their families with e-health tools co-designed with them to manage health & improve quality of life.

🌐https://f.mtr.cool/sudiktiwjb

#ChildhoodCancer #CancerSurvivors #DigitalHealth

ISGlobal

@isglobal.org

7 months ago

The e-QuoL project: enhancing long-term follow-up care for childhood cancer survivors through digital innovation, results of an exploratory questionnaire - Journal of Cancer Survivorship Purpose Childhood, adolescent, and young adult cancer survivors represent a growing population with unique long-term follow-up (LTFU) needs, including managing late effects of treatment and ensuring psychosocial well-being. The e-QuoL project aims to develop digital tools tailored to enhance survivorship care. Method An online survey comprising 424 questions was distributed across 16 European countries. The distribution plan ensured engagement from diverse stakeholders, including patients, parents, and healthcare professionals. Descriptive and thematic analyses of survey data identified key content, functionalities, and features for the design of such tools. Results For participants (n = 53), the inclusion of a follow-up plan for the risk of sequelae in the first 5 years of follow-up was the highest priority (mean score, 9.62). Supportive care items were deemed important. In terms of functionalities, the most highly rated was the ability to send reminders to patients to not forget exams (mean score, 9.25). The inclusion of an algorithm to propose follow-up plans based on selected sections was also particularly valued (mean score, 9.10). Finally, the user experience of digital tools, including the need for these tools to be engaging, easy to use, and customizable, was highlighted by 66.7% of participants. Conclusion This study emphasizes the need for customizable, accessible, and user-centered digital tools to bridge disparities in LTFU care. Collaborative efforts to address technological, financial, and ethical barriers are essential to achieving equitable, effective survivorship support. Implications for Cancer Survivors By developing and implementing comprehensive digital tools, a more personalized, holistic, and effective model of survivorship care can be achieved.

The latest study from the #eQuoLProject listens to the voices of #cancer patients, families, and clinicians across 16 European countries —and points to the urgent need for customizable, accessible, and user-centered digital tools.

🟠 https://f.mtr.cool/cpqjmbccyv

#ChildhoodCancer #EU4Health

ISGlobal

@isglobal.org

7 months ago

The e-QuoL project: enhancing long-term follow-up care for childhood cancer survivors through digital innovation, results of an exploratory questionnaire - Journal of Cancer Survivorship Purpose Childhood, adolescent, and young adult cancer survivors represent a growing population with unique long-term follow-up (LTFU) needs, including managing late effects of treatment and ensuring psychosocial well-being. The e-QuoL project aims to develop digital tools tailored to enhance survivorship care. Method An online survey comprising 424 questions was distributed across 16 European countries. The distribution plan ensured engagement from diverse stakeholders, including patients, parents, and healthcare professionals. Descriptive and thematic analyses of survey data identified key content, functionalities, and features for the design of such tools. Results For participants (n = 53), the inclusion of a follow-up plan for the risk of sequelae in the first 5 years of follow-up was the highest priority (mean score, 9.62). Supportive care items were deemed important. In terms of functionalities, the most highly rated was the ability to send reminders to patients to not forget exams (mean score, 9.25). The inclusion of an algorithm to propose follow-up plans based on selected sections was also particularly valued (mean score, 9.10). Finally, the user experience of digital tools, including the need for these tools to be engaging, easy to use, and customizable, was highlighted by 66.7% of participants. Conclusion This study emphasizes the need for customizable, accessible, and user-centered digital tools to bridge disparities in LTFU care. Collaborative efforts to address technological, financial, and ethical barriers are essential to achieving equitable, effective survivorship support. Implications for Cancer Survivors By developing and implementing comprehensive digital tools, a more personalized, holistic, and effective model of survivorship care can be achieved.

New #eQuoLProject publication!

How can digital tools improve life after cancer for young survivors?

- Personalized follow-up
- Exam reminders
- Patient-centered design

Read more: 🟠 https://f.mtr.cool/xarqmigedl

#ChildhoodCancer #CancerSurvivors #EU4Health #EUCancerPlan

ISGlobal

@isglobal.org

9 months ago

Co-creating MyCare e-QuoL: A Digital Companion for Young Cancer Survivors - eQuoL Developed with survivors, families, and professionals to support mental and social well-being after cancer MyCare e-QuoL is a new mobile app in development to support the psychological and social well-being of children, adolescents, and young adults who have survived cancer (CAYACS). The app will offer accessible, reliable, and tailored resources on mental health, emotional resilience, and

Presentamos MyCare e-QuoL — una nueva #app móvil creada con y para jóvenes supervivientes de #cáncer, para apoyarles tras el tratamiento. ¡Disponible en 2026, en 16 idiomas!

#eQuoLproject

ISGlobal

@isglobal.org

9 months ago

Co-creating MyCare e-QuoL: A Digital Companion for Young Cancer Survivors - eQuoL Developed with survivors, families, and professionals to support mental and social well-being after cancer MyCare e-QuoL is a new mobile app in development to support the psychological and social well-being of children, adolescents, and young adults who have survived cancer (CAYACS). The app will offer accessible, reliable, and tailored resources on mental health, emotional resilience, and

Meet MyCare e-QuoL — a new mobile #app co-designed with young #cancer survivors to boost psychosocial support after cancer.

Launching in 2026, in 16 languages!

#eQuoLproject

ISGlobal

@isglobal.org

10 months ago

Addressing Akrasia in Childhood, Adolescent and Young Adult Cancer Survivors: Implications for Long-Term Follow-Up and Preventive Health Interventions - PubMed Addressing akrasia through ethical and behavioral frameworks could improve LTFU adherence, ultimately enhancing survivorship care and long-term health outcomes.

¿Por qué muchas personas que han superado un #cáncer infantil o juvenil no acuden a sus revisiones médicas a largo plazo, a pesar de saber que son importantes?

Un nuevo estudio de #eQuoLproject analiza este fenómeno y propone soluciones.

ISGlobal

@isglobal.org

10 months ago

Addressing Akrasia in Childhood, Adolescent and Young Adult Cancer Survivors: Implications for Long-Term Follow-Up and Preventive Health Interventions - PubMed Addressing akrasia through ethical and behavioral frameworks could improve LTFU adherence, ultimately enhancing survivorship care and long-term health outcomes.

Why do many childhood and young adult #cancer survivors skip long-term medical follow-up, even when they know it's important?

A recent study explores this issue and suggests solutions, such as digital tools or more compassionate approaches.

#eQuoLproject

ISGlobal

@isglobal.org

10 months ago

On the occasion of #MothersDay, we shared 5 stories of motherhood and survival. Some became mothers after surviving childhood cancer. Others fought alongside their children. All of them tell us about love, hope and life.

Meet them in the #eQuoLproject website: 🟠 https://f.mtr.cool/uqfqtrmofr

ISGlobal

@isglobal.org

10 months ago

Anita tiene un sueño: una clínica dedicada a los supervivientes de cáncer. Los efectos secundarios a largo plazo no pueden ni deben ignorarse.

Es una de las 5 historias de maternidad y supervivencia que hallarás en la web del #eQuoLproject con motivo del #DíaDeLaMadre. 

🟠 https://equolproject.eu/

ISGlobal

@isglobal.org

1 year ago

e-QuoL Facilitates Reporting and Raises Awareness to Protect Children with Cancer from Abuse - eQuoL e-QuoL has developed protocols and digital tools to identify and prevent potential cases of abuse among the children with cancer participating in the project, who are at higher risk due to their vulnerability.

Children with #cancer may face a higher risk of maltreatment due to their vulnerability. The #eQuoLproject works with experts to help healthcare professionals identify and report suspected cases.

ISGlobal

@isglobal.org

1 year ago

🎗️On International Childhood Cancer Day, three survivors share their stories and the challenges they have faced.

 #eQuoLproject
www.isglobal.org/en/healthisglobal/-/cust...