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This recently published paper shows that patients with #MPNs experience notable impairments in daily functioning, especially fatigue. The authors highlight that clinicians often underestimate symptom burden, reinforcing the need for routine patient‑reported outcomes 👉https://bit.ly/4q2Zwcb

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Medicinal Plant Names Services | Kew A global nomenclatural indexing and reference service for medicinal plants aimed at those involved in global health, regulation and research.

MPNS just added images for the first time! 🌿

A major update for anyone working with medicinal plants, making names easier to verify, compare, and communicate across research & regulation.

👉 https://loom.ly/r8GWxXg

#MedicinalPlants #MPNS #Ethnopharmacology #PlantScience #ResearchTools

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Season’s Greetings from the Global MPN Family Looking back with pride and moving forward together into 2026As 2025 comes to an end, we want to pause, look back, and simply say thank you.Thank you to every patient, caregiver, physician, researcher, nurse, advocate and partner who has been part of this journey. What we have built together this year goes far beyond activities or numbers. It is a strong, growing and connected Global MPN Family.Content guide • A year of education, knowledge and access • A truly global community • One MPN Family,

Season’s Greetings from the Global MPN Family ✨

As 2025 comes to an end, we want to say thank you 🙏 

👉 Watch our 2025 recap: www.gmpnsf.org/post/season-s-greetings-...

#MPNs

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72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25

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Nicolas Papadopoulos. Prix Alvarenga, de Piauhy
Nicolas Papadopoulos. Prix Alvarenga, de Piauhy YouTube video by Académie de Médecine (ARMB)

Une 2e capsule vidéo du prix, créé par un legs du Pr Alvarenga, de #piaui, décerné cette année au Dr Nicolas Papadopoulos, de l’ #UCLouvain pour son travail sur le récepteur à la Thrombopoïétine au coeur des Néoplasmes Myéloprolifératifs youtu.be/_g0d-oGKBFA #cansky #MPNs

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We raised over $100,000 this #BloodCancerAwareness Month to research #MPNs — rare, misunderstood, and under-funded cancers that start in the bone marrow. 

If you donated, see if your employer will double it: mpnresearchfoundation.org/employer-match-double-yo...

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Cardiovascular Risk Factors Predictive of Poorer Outcomes in MPN Researchers determined cardiovascular risk factors may be predictive of poorer outcomes in patients with MPNs.

In patients with #MPNs, cardiovascular risk factors appeared predictive of poorer OS and thrombosis in a study published in @bloodjournals.hematology.org.

https://bit.ly/4mLBKiu

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Ruben Mesa: Honored to Have Given a Keynote on MPNs at the 2025 National Hematology Summit - OncoDaily Ruben Mesa: Honored to Have Given a Keynote on MPNs at the 2025 National Hematology Summit / Binay Shah, cancer, MPNs, National Summit on Hematologic

Honored to Have Given a Keynote on MPNs at the 2025 National Hematology Summit - Ruben Mesa

@rubenmesamd.bsky.social

oncodaily.com/voices/ruben...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #MPNs #HemeSummit25

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#MPNs affect 300,000+ in the U.S. — yet still fly under the radar. This #BloodCancerAwarenessMonth, help bridge the gap. 

💬 Reply with your MPN type 

🔁 RT to raise awareness 

📖 Share your journey 

Every voice helps change the story. #MPNs #BCAM2025

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🩸 Don’t miss Blood Cancers OncTalk 2025!
Hear from Dr. Ashwin Kishtagari (Vanderbilt University), expert in #MPNs, #MDS, and #AML.

📅 Register today: give.cancergrace.org/event/2025-b...

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🏆 Big moment for MPNs: PV research took the plenary stage at #ASCO2025. Dr. Andrew Kuykendall presented VERIFY trial results on rusfertide: 

✓ 62% maintained Hct <45% 
✓ Better symptom control 
✓ Fewer skin malignancies 

#MPNs #PVawareness #Rusfertide #VERIFYtrial

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Dr. Gabriela Hobbs, MD repurposes clinical trials that better serve patients. Learn how she’s turning every tissue sample into progress.

Read more: mpnresearchfoundation.org/news/every-sample-every-...

#MPNs @MPNResearch

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The Leukemia & Lymphoma Society (LLS) & MPN Research Foundation unite to provide clinical trial nurse navigation support. 

Get support today: https://mpnresearchfoundation.org/mpn-clinical-trials/

#MPNs #ClinicalTrials #Hematology #Oncology #PatientSupport #MPNRF #LLS

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MPNs are dynamic — new symptoms, changing blood counts, spleen enlargement. 

Even subtle shifts may raise the risk of disease progression, which looks different from patient to patient. Symptom tracking matters. 

#MPNs #RealWorldEvidence #Myelofibrosis #PV #ET @MPNResearch

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20 years after her ET diagnosis, MJ Tooey’s journey is one of research, resilience & trust. From treatment setbacks to advocacy wins, her care team partnership made all the difference.  

Read her story here: https://mpnresearchfoundation.org/patient_stories/mj/

#MPNs #PatientVoice #MPNCommunity

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Pruritus = 2nd most common symptom in #PV + #ET, 4th in #MF (2024 MPNRF Unmet Needs Survey). Once seen as PV-only, we now know itching affects all #MPNs — and it’s underrecognized. It can impact sleep, mood & clot risk.

It’s time we take it seriously.
#MPNsymptoms #BloodCancer

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Why do some MPNs progress? 

Scientist like Dr. Anandi Krishnan measure MPN mutant cell dysfunction to get answers: “Quality control is gone” — like “a factory where the pace has increased so much that the protein folding machinery is going awry.” 

#MPNProgression #MPNs

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I finally put together a blog post about the arcade cabinet project. #arcadecabinet #arcadecabinetart #tobygray #tobysbrain #clipstudio #monkey #pmd #plungermonkey #plungermonokeydynamo #ipmdt #itsplungermonkeydynamotime #eyezak #fishy #mpns #squid #cuppy
www.tobys-brain.com/2025/05/19/p...

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In myeloproliferative neoplasms with no history of thrombosis, primary prevention mainly involves the use of aspirin, and cytoreduction is added in high-risk patients. buff.ly/4KdEi5m #hemesky #MPNs

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Why do rare #bloodcancers like #MPNs progress over time? 
Join us for a conversation about the future of MPN #progression #research

Monday, April 15 @ 1:30PM CT 
Live on Linkedin: https://f.mtr.cool/xhqwxtpajj

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In MF, mast cells & basophils may fuel inflammation & fibrosis. Li et al. 2024 suggest this might be due to the overproduction of a protein called galectin-1. Could blocking it help? #MoreResearchNeeded 

#MPNs #Myelofibrosis

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Want to find out about the IMPROVE-MF trial, which is investigating a combination of imetelstat and ruxolitinib in #Myelofibrosis?

Click here to watch our interview with John Mascarenhas from #ASH24:

👉 https://buff.ly/3BEFkta 👈

#MPNs #CTSM #TrialUpdate #HemeOnc @ash-hematology.bsky.social

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Improving Energy Storage and Nickel Manganese Cobalt Oxide Cathode Lifetime via a Tannic Acid/Iron (III) Metal Phenolic Network Coating Surface coating strategies have emerged to optimize cathodic LIB performance or to suppress failure mechanisms. However, previously adopted coatings require several hours for synthesis including a hi...

Want faster charging #Lithium Ion #Batteries?

Donghyuck Park and Amanda Ellis present a one pot coating of #NMC #cathodes with #MPNs to increase their #capacity, #lifetime, and #rate performance, in #AdvancedFunctionalMaterials. 🚗 ⚡

doi.org/10.1002/adfm...

#battchat #ozchem #chemsky 🧪 🔋

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Hans Hasselbalch, MD   Inflammation in the MPNs
Hans Hasselbalch, MD Inflammation in the MPNs YouTube video by Cancer Research & Treatment Fund

Myeloproliferative Neoplasms (MPNs) and inflammation. youtu.be/OrGUowsYYf8?...

#CanSky #HemeSky #MedSky #BloodCancer
#MyeloproliferativeNeoplasm #MPNs #PolycythemiaVera #PV #Myelofibrosis #MF #EssentialThrombosis #ET

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