Latest posts tagged with #yopd on Bluesky
The @parkinsondotorg.bsky.social provides a lot of resources. Our family has created a team for Moving Day walk in Baltimore. Please consider a donation. Please share with others you know. Even small amounts help. #parkinsons #beatparkinsons #move4pd #yopd #parkinsonsfoundation
Excited to share this new resource from the Michael J Fox Foundation for care partners. It’s filled with stories and practical advice for those caring for and with Parkinson’s disease viewer.joomag.com/care-partner...
#pd #parkinsons #yopd #chronicillness #carepartners
How weird, haven't had tremors in my pinky finger for so long, must be a little off time for my meds 🤷♂️
Living with #yopd is always an adventure 😂
Out catching fish i.m.
"80 is ook maar een getal"
Lynch birthday cake
#weetwaterspeelt #yopd #davidlynch #johndeere🚜 #harvest
Looking for a symptom tracker? ChatGPT made one for me. Link to video below. It is long. #parkinsons #dystonia #yopd #caregivers
youtu.be/EVm1XiENkOw
We talk about the rising cost of accessing medication. Pod at ordinarylife.co.nz/the-show/ #parkinsons #yopd
Dans un podcast du Temps, une jeune patiente raconte son parcours avec la maladie de Parkinson à début précoce. Le ton est juste. Écoutez-la ! #ErranceThérapeutique #MaladieDeParkinson #parentalité #ParkinsonJeune #Suisse #témoignage #TravailEtMaladie #YOPD
www.azurs.net/carnet/2025/...
Portrait selfie of two women, both smiling. Kitty is on left, and Emma is on the right. A text box with a website address: ordinarylife.co.nz
This year I am grateful for Kitty and our show Ordinary Life. #yopd
Listen to our latest episode of Ordinary Life at accessmedia.nz/player?EID=8...
or where ever you get podcasts. We are a featured programme at the moment, which is lovely! #yopd #aotearoa #womensupportingwomen
About people with Parkinson’s, by people with Parkinson’s: Listen to this episode of Ordinary Life about telling employers and others about ypur Parkinson's on @rss.com rss.com/podcasts/kit... #parkinsons #yopd
Hello. I’ve written something new. Where I try to articulate the thoughts I’ve been having about the things I’ve been trying to say.
Read it here: open.substack.com/pub/iainlidd...
#Parkinsons #YOPD
As the giving season begins this #GivingTuesday, we invite you to pay it forward by supporting the Give 4 #YOPD fundraiser. Your gift helps provide Travel Grants for people with Young Onset #Parkinsons Disease to attend WPC 2026.
https://www.worldpdcoalition.org/YOPDfundraiser
On this #GivingTuesday, we invite you to embrace the spirit of generosity by supporting the WPC.
Give 4 YOPD: https://www.worldpdcoalition.org/YOPDfundraiser
Support WPC: https://www.worldpdcoalition.org/SupportWork
#Parkinsons #YOPD #SeasonofGiving
Are you a caregiver of someone with Parkinson’s? Know of someone? Don’t go at it alone. My wife joins this group. It is run by an ambassador with Davis phinney. Message me for the email address as I don’t want to post the it on social media. Small group at the moment. #parkinsons #yopd
An update on my progression. A link to YouTube since this site and others limit what you can do video wise. #parkinsons #dystonia #yopd #cronicillness
youtu.be/2dD5bCYRIgA?...
Great discussion on 11/11/25. We mostly discussed Lewy body dementia along with a little of Parkinson's and dystonia. Join us each Tuesday at 7pm est.
www.youtube.com/live/3U1ruv-...?
si=8LDmІ2r9aAtD7jSt
#parkinsons #dementia #lewybodydementia #yopd #genxstreamer #dadstreamer #livestream
Hello, I’ve not visited here in a while.
Is there still an engaged Parkinson’s / #YOPD community on BlueSky?
Une enquête sur la maladie de Parkinson en situation professionnelle (du point de vue du patient). Si vous êtes concerné, prenez quelques minutes pour répondre à cette enquête : buff.ly/2zqlW7L #parkinson #YOPD #travail #handicap
If you or someone you love is noticing changes that don’t feel quite right, don’t wait. Learn more about early signs, early intervention strategies and support options on our website.
#Parkinsonsdiagnosis #YOPD #whatsyourstory
Michael's story:
www.smh.com.au/lifestyle/he...
One of my worst parts of Parkinson's, Dystonia in my hands. #dystonia #chronicillness #yopd
John Radcliffe Matron @ouhospitals.bsky.social reports #YOPD #parkinsons in-patient, who went into hospital on their feet nearly 200 days ago for meds to be balanced, is not under physio because they are now so deconditioned they won't benefit from any physio. Really?
Is this the #NHS we all love?
So sad that @ouhospitals.bsky.social John Radcliffe has such little expectation for #yopd #parkinsons patients that it leaves patients to deteriorate for nearly 200 days in a hospital bed.
Do Parkinson's lives not matter at the John Radcliffe?
Perhaps this might be good reading for medics across the #NHS who might deal with #parkinson's
Our experience of @ouhospitals.bsky.social John Radcliffe is that understanding of the condition, particularly #yopd is lacking.
Learning is always better than just being defensive and neglectful 😢
This is the first time I’ve experienced #dyskinesia where it feels like my stomach and abdominal muscles are twisting like the snakes on Medusa’s head. It is incredibly exhausting and painful. This might be my journey to get that flat belly six-pack! #yopd #Parkinsonsdisease
Looking forward to joining the first of these #YOPD teabreaks (YOPTea?!) tomorrow morning with @parkinsons.org.uk.
Details on the link below if you want to get involved or join the mailing list.
Maybe see some of you there.
localsupport.parkinsons.org.uk/activity/you...
Book cover of Jonny Achesons book when your neurons dance a story of a doctor with Parkinson’s disease
Excited to read this #yopd #parkinsons
