Latest posts tagged with #AxSpA on Bluesky
My #AxSpA Story for @spondylitis
When I was diagnosed w. #AnkylosingSpondylitis in 2009, the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
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spondylitis.org/patient-stor...
#MySeveralWorlds #CarrieMarshall
Carrie shares her story about life with D2T #axSpA. She talks about treatment-resistant her arthritis. Her site #MySeveralWorlds is a patient centered hub that assists folks who are chronically ill & disabled.
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arthritis.theenthusiasticlife.com/2024/12/19/a...
Via @arthritischeryl.bsky.social
In this episode of Oh, I Didn't Know That, Amber talks with Carrie, author of #MySeveralWorlds, about navigating Taiwan's healthcare system as a foreigner with #AutoimmuneDisease.
Head to part 1 to hear Carrie's story with #AxSpA.
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www.rti.org.tw/en/programne...
@radiotaiwan.nzcow.com
VIEWPOINT – Saturday, 21 March
Rethinking structural progression in axSpA and the need for a balanced approach, presented by Xenofon Baraliakos.
🔗 www.asas-group.org/the-2026-asa...
#ASASCoreCourse #axSpA
Did you know?
Axial spondyloarthritis #axSpA is more frequently diagnosed in men, who show higher radiological progression, while women experience higher disease activity scores and extra-articular manifestations.
#GiveToGain #Women
🙋🏼♀️Committed to addressing gender disparities in research
VIEWPOINT – Saturday, 21 March
Family planning in SpA: treatment implications for healthy mothers and babies, presented by Anna Moltó.
🔗 www.asas-group.org/the-2026-asa...
#ASASCoreCourse #axSpA
“Many people assume that #AxialSpondyloarthritis is just bad #arthritis. It’s not. It also affects your eyes, skin, organs, your vascular system, and your heart.”: buff.ly/JABz2LB
by @carriekellenberger.bsky.social
#ChronicIllness #AxSPA #systemic
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
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buff.ly/3CISx4v
#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
@gohealio.bsky.social
“In episode 150 of The #Arthritis Life #Podcast, Carrie shares her inspiring journey of living with “difficult-to-treat” #AxialSpondyloarthritis while building a new life in Taiwan after growing up in Canada.”: buff.ly/C84MG7k
via realcc & @carriekellenberger.bsky.social
#AxSPA #disability
My #AxSpA Story for @spondylitis
When I was diagnosed w. #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...
Carrie shares her story of life with D2T #axSpA in #Taiwan. She talks about struggles w treatment-resistant symptoms & how these challenges motivated her to create #MySeveralWorlds, a site dedicated to #PatientAdvocacy @arthritischeryl.bsky.social
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arthritis.theenthusiasticlife.com/2024/12/19/a...
![❓How are #AnkylosingSpondylitis aka #AxialSpondyloarthritis and fibromyalgia rated on the McGill Pain Index?
❗They are consistently rated among 10 of the most painful diseases in the world.
"The chronic pain associated with these diseases comes very close to the pain experienced with childbirth. The main thing to remember is that childbirth doesn’t last forever, but you can look forward to a lifetime of unending pain with AS, fibromyalgia and ME."
~ 70 Things About My Invisible Illness You Might Not Know, 2015, Carrie Kellenberger, My Several Worlds (LINK IN COMMENTS)
[Image description]
An image of vertical line with numbers starting at 0 through 50.
😐 10 and 20 on the McGill Index are: sprain, fracture, and toothache and arthritis having the same pain score.
😧 22-28 include pain such as after shingles pain (22), non terminal cancer (26), chronic back pain (28) and chronic migraine (29)
😭 30 to 38 on the McGill Index are: fibromyalgia (30), Ankylosing Spondylitis (32), childbirth with training (32), childbirth no training (36), and amputation of toe or finger (39).
🤯 CRPS at 46 is the most painful disease in the world.
#MySeveralWorlds #SolvePainTogether #LetsTalkAboutPain
#ArthritisAwareness
#CRPS #APS #ChronicPainAwareness #pwME
#PainAwareness](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:62wcb64mxz2mvwghbt6drwu5/bafkreiaspombhnd4knjeauavdw2n7jgfa7ynv7dphnxhzizv4esfdkdrnu)
❓How are #AnkylosingSpondylitis aka #AxialSpondyloarthritis and fibromyalgia rated on the McGill Pain Index? ❗They are consistently rated among 10 of the most painful diseases in the world. "The chronic pain associated with these diseases comes very close to the pain experienced with childbirth. The main thing to remember is that childbirth doesn’t last forever, but you can look forward to a lifetime of unending pain with AS, fibromyalgia and ME." ~ 70 Things About My Invisible Illness You Might Not Know, 2015, Carrie Kellenberger, My Several Worlds (LINK IN COMMENTS) [Image description] An image of vertical line with numbers starting at 0 through 50. 😐 10 and 20 on the McGill Index are: sprain, fracture, and toothache and arthritis having the same pain score. 😧 22-28 include pain such as after shingles pain (22), non terminal cancer (26), chronic back pain (28) and chronic migraine (29) 😭 30 to 38 on the McGill Index are: fibromyalgia (30), Ankylosing Spondylitis (32), childbirth with training (32), childbirth no training (36), and amputation of toe or finger (39). 🤯 CRPS at 46 is the most painful disease in the world. #MySeveralWorlds #SolvePainTogether #LetsTalkAboutPain #ArthritisAwareness #CRPS #APS #ChronicPainAwareness #pwME #PainAwareness
❓How are #AnkylosingSpondylitis aka #AxSpA and fibromyalgia rated on the McGill Pain Index?
❗They are consistently rated among 10 of the most painful diseases in the world.
"The chronic pain associated with these diseases comes very close to the pain experienced with childbirth."
#PainAwareness
2nd BRITSpA Education Course in Axial #Spondyloarthritis
14-May-2026, in Manchester.
Topics include:
~ #axSpA diagnosis and revisions to classification criteria
~ Difficult to manage #axSpA
~ Non-pharmacological management
~ Managing comorbidities
events.in2global.com/event/britsp...
A little primer on arthritis today: From left to right, we see diagrams of three knee joints. The knee on the left is a normal joint. 🦵 Normal Joint It features muscle, tendon, bone, synovial membrane, synovial fluid, joint capsule and cartilage. 🦵 The knee in the middle is a knee with Osteoarthritis. We see thinned cartilage and bone ends rub together. 🦵 The knee on the right is a knee with Rheumatoid Arthritis. This could also be an example of a knee with #AxSpA or #PsoriaticArthritis. In this knee, we can see bone erosion and swollen inflamed synovial membrane. 👉 Disclosure: my knees look like the knee on the right most of the time since 2008. #Spondylitis #MySeveralWorlds Credit Unknown
A little primer on arthritis today:
🦵 Normal Joint
🦵 Osteoarthritis: We see thinned cartilage & bone ends rub together.
🦵 #RA: This could also be a knee with #AxSpA or #PsA. We can see bone erosion and swollen inflamed synovial membrane.
#Spondylitis #MySeveralWorlds
Credit Unknown
Axial spondyloarthritis is evolving—and so is care. New ACR updates show improvements to early diagnosis and more targeted treatments. Read more: zurl.co/aPsht
#AxSpA #Spondyloarthritis #InflammatoryArthritis #AiArthritis #ChronicIllness #InvisibleIllness #AutoimmuneDisease #DiagnosticDelay
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v
#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
Who has been to Referral City? Have you spent a lot of time there? I have! 👉 My most recent visit to Referral City resulted in a heart diagnosis after waiting a decade for professionals to decide it was real and not just 'anxiety'. "Just entered Referral City again where I had a severe problem come up with #Chroniclllness that required a referral which led to another referral. Now it's never ending referrals with multiple appts on the same day. I've been down this road before in 2015. It leads nowhere." #AxSpA #HeartProblems
Who has been to Referral City? Have you spent a lot there?
👉 My most recent visit to Referral City resulted in a heart diagnosis after waiting a decade for professionals to decide it was real and not just 'anxiety'.
Credit: Carrie, MySeveralWorlds.com
#ChronicIllness
#AxSpA #HeartProblems
My #AxSpA Story for the SAA
When I was diagnosed with #AxSpA aka #AnkylosingSpondylitis in 2009, we didn’t know the #DelayToDiagnosis meant I had damage that couldn't be fixed. Learn how robotic exoskeletons help patients like me. #disability
🔗
spondylitis.org/patient-stor...
#ArthritisAwareness
In this week's episode of Oh, I Didn't Know That, Amber talks with Carrie Kellenberger about her journey of navigating Taiwan's healthcare system as a foreigner in Taiwan living with a chronic autoimmune disease. #axSpA #AutoimmuneArthritis
🔗
www.rti.org.tw/en/programne...
Carrie shares her story of life with D2T #axSpA in #Taiwan. She talks about her struggles with treatment-resistant symptoms & how these challenges motivated her to create #MySeveralWorlds dedicated to #PatientAdvocacy. @arthritischeryl.bsky.social
🔗
arthritis.theenthusiasticlife.com/2024/12/19/a...
🐎I just learned of this interesting treatment possibility for #axSpA: HIPPOTHERAPY! A simulator mimics movement of a horse. This makes sense bc of the lumbar spine & hip mobility that riding requires. My relative with axSpA said "Should I start horsing around?!" www.tandfonline.com/doi/full/10....
“We never know what someone else is going through just by looking at them. And we certainly have no idea what #patients are going through. ‘Sick’ doesn’t have a look—many of us are stronger than you’ll ever understand.” https://cme.sh/5pK3HT @carriekellenberger #AxSpa #ChronicIllness #ChronicPain
Research Article
Diversity in Axial Spondyloarthritis Drug Trials: Enrollment by Sex, Race, Ethnicity, and Geographic Region
📖 www.jrheum.org/cgi/content/...
@mchoufani.bsky.social @wissamghusn.bsky.social @spondymd.bsky.social
#axSpA #ClinicalTrials #Diversity
Editorial
How Representative Are Data From Clinical Trials in Axial Spondyloarthritis for Women?
📖 doi.org/10.3899/jrhe...
#axSpA #ClinicalTrials #Diversity
#HSE #HealthServiceExecutive #Ireland #hidradenitissuppurativa #HS #axialspondyloarthritis #axSpA #Bimekizumab #BIMZELEX #NadegeFeeser #Immunology #UCB #chronicdiseases #BrianKirby #Dermatology #HSpatients #phase3studies #clinicaltrial #BEHEARD1 #BEHEARD2 #moderatetosevereHS
zurl.co/NrDNa
Carrie shares her story of life with D2T #axSpA as an expat in #Taiwan. She opens up about life with treatment-resistant symptoms & talks about how her advocacy meshes with #MySeveralWorlds which was launched in 2007. @arthritischeryl.bsky.social
🔗
arthritis.theenthusiasticlife.com/2024/12/19/a...
New ID Numbers for Foreigners: A Bureaucratic Misfire? "This inconvenience is...consequential for Carrie Kellenberger. The former chairwoman of the Canadian Chamber of Commerce in Taiwan requires frequent hospital treatment for #AxSpA." #Taiwan #Disability
topics.amcham.com.tw/2025/11/new-...
Name changes for #AxialSpondyloarthritis and #Sjogren's a big deal! #axSpA has come to encompass the spectrum of disease formerly divided into non-radiographic vs. radiographic axial SpA.
🔗
buff.ly/3CISx4v
#AnkylosingSpondylitis #nrAxSpA
@asintfed.bsky.social
told @gohealio.bsky.social
