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#BeLikeLight

Latest posts tagged with #BeLikeLight on Bluesky

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Posts tagged #BeLikeLight

DIYPS.org #WeAreNotWaiting to make the world a better place

iOS and Android development experience for newbies via @danamlewis.bsky.social

#wearenotwaiting #belikelight

diyps.org

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One thing today ☝️

As we rebuild our networks on Bluesky follow the points of light out there: patients leading change.

Let me know who to add.
#medsky #disability #belikelight
#hitsm #oncsky #chronicillness

go.bsky.app/GLsZaVm

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Sometimes it’s hard to understand the impact of a donation when we care about a cause.

I love this thoughtful approach from @danamlewis.bsky.social !

#belikelight #medsky #disability

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Inaugural poet Amanda Gorman delivers a poem at Joe Biden's inauguration
Inaugural poet Amanda Gorman delivers a poem at Joe Biden's inauguration YouTube video by CNBC Television

Since it’s that time of year, I am reminded of “The Hill We Climb” by poet Amanda Gorman. I loved her speech. At this point of our history, I hope people will take the time to learn and understand more about each other. Now is the time to be noisy. #belikelight
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Thank you for sharing!

While I was directly quoted in this I want to be clear that it isn’t about money (ie royalties )

This is about our collective rights and responsibilities to patient communities.

#belikelight

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Why is healthcare so bad at cybersecurity? Plus, some thoughts about Transcarent buying Accolade!

Good insights in here from @fredtrotter.bsky.social.

#hitpolicy #belikelight #medsky

secondopinion.media/p/why-is-hea...

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Light Collective - Tangled In The Web: Visit the post for more.

We are so thankful to be partners with you on the research we co-created this year.

Thank YOU for all that you do.

Happy Thanksgiving!!! 🍁🍽
#belikelight #medtech #bcsm #medsky

lightcollective.org/tangled-in-t...

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My take: surveillance capitalism targeted content to radicalize online communities.

Health data on social media were weaponized over the past 7 years to target 🎯 medical #misinfo on blast via Meta / X.

#belikelight #mlsky #medsky

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Light Collective - No Aggregation Without Representation We are a nonprofit on a mission to help peer support groups foster healthy human connections on the internet. We provide tools, resources, and training for patient peer support group leaders to practi...

Great list! Would love to be added.

We are focused on advancing rights and voices of patient communities in health technology.

#belikelight
Lightcollective.org

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Health privacy is a joke in the US and it’s killing us.

We decided to #fafo for the last decade. Now we’re finding out.

🩺🖥️

#belikelight #medsky #medtech #hitpolicy

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I have a hard time saying no. I’m celebrating #NOvember.

It’s where I practice saying no to things I don’t want to do anymore.

#belikelight #bcsm

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#medtech #belikelight

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Hi #Medsky 👏. Been here a while and thrilled to finally see folks coming to the light side 💡

I’m a #brca advocate turned ethical hacker and privacy advocate for patient communities.

#belikelight

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Thank you @wyden.senate.gov for meeting with us last week as part of World Patient Safety Day.

We were glad to have our voices heard by your team. #belikelight

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AHA Files Lawsuit Challenging HHS Guidance on Tracking Technologies The American Hospital Association (AHA), Texas Hospital Association, United Regional Health Care System, and Texas Health Resources have filed a lawsuit The American Hospital Association, the Texas Ho...

American Hospital Association is suing to allow your private health data to be shared with Meta, Tiktok, X, and data brokers.

#chronicillness #belikelight
www.hipaajournal.com/aha-files-la...

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Blog post for online patient community participants/leaders including a link to the #BeLikeLight needs assessment. This community-based research effort seeks to ensure issues around data/security that matter most to patients are identified & prioritized. lightcollective.org/2023/10/20/s...

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Shoutout backatcha #BeLikeLight❣️ @downing.bsky.social @lightcollective.bsky.social

Care about data privacy, patient rights, and data ethics? Then follow Andrea & the Light Collective #BeLikeLight #OpenData #OpenScience #HIPAA #PatientAsCEO #PatientPower

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