Latest posts tagged with #BleedingDisorders on Bluesky
Presenting the Bleeding Disorders: Care & Practice top 10 articles for February. Patient experience & quality of life continue to feature prominently.
Why not explore our archives here: https://loom.ly/uIXcNF8
#BDCP #bleedingdisorders #research #livedexperience #haemophilia
#HemeSky #MedSky
First full day of the 2026 Western States Regional Hemophilia Network annual meeting. Our collaboration with the providers at our hemophilia treatment centers is a critical partnership in ensuring all patients have access to quality, equitable and affordable health care.
#bleedingdisorders
The new season of #Haemcast has started! In episode 1, members of Local families with bleeding disorders discuss how poetry helped them explore their experiences, hopes, expectations and worries.
🎧 https://loom.ly/d6YUipg
#LFWBD #bleedingdisorders #families #poetry #podcast
#HemeSky #MedSky
❓#Ageing with #BleedingDisorders brings unique challenges. What worries you? Share your questions anonymously 👉 buff.ly/15hLxQi 🎯 We'll address them throughout our year-long project #LivingWellAgeingWell, check its resources: buff.ly/mB2IPh0
💜 These are real stories from women with #BleedingDisorders. 📣 This #IWD2026, we say: you can't treat what isn't diagnosed. 👉 Listen earlier. Test sooner.
@eupatientsforum.bsky.social @eahad.bsky.social @eurordis.bsky.social
On #InternationalWomensDay 2026, we want to give visibility and a voice to women and girls affected by a #BleedingDisorder. Read our #IWD blog here: https://loom.ly/lujMOIw
#GiveToGain #March8 #BleedingDisorders #GenderEquality #ParityOfCare #HemeSky #MedSky
📣 On #IWD2026, we call for equitable recognition, diagnosis & care for women with #BleedingDisorders across Europe.🩸 Too many women wait years for a diagnosis. That must change. Read our full statement 👉 www.ehc.eu/awareness/in...
@tillymetz.bsky.social @stinebosse.bsky.social
Out today: the first new #Haemcast, in collaboration with Local families with bleeding disorders! Hear about the poetry workshops that helped #LFWBD members explore their experiences, hopes and fears:
🎧 https://loom.ly/d6YUipg
#bleedingdisorders #families #poetry #podcast
#HemeSky #MedSky
Excited to share updates from IAHAD!
National Haemostasis Update (NHU) 2026
Aug 1–2, 2026, Bengaluru
A key scientific platform for haemostasis & bleeding disorders.
HTCs & institutions can join IAHAD
Details: pm@iahad.org
| www.iahad.org
#NHU2026 #HaemophiliaCare #BleedingDisorders #HTC
Join the 19th MSK Webinar by IAHAD on 13 March 2026 | 6:30–8:00 PM IST
Physical Therapy for Haemophilic Ankle Arthropathy
Speaker: Sandeep Kumar
Case: Carolin Singh
Moderator: Rohini Dange
Register: miceideas.org/webinar/regi...
#Haemophilia #MSKHealth #Physiotherapy #BleedingDisorders
The new season of #Haemcast is about to launch! We'll be exploring the ups, downs, ins and outs of family life with a rare bleeding disorder in collaboration with Local families with bleeding disorders.
https://loom.ly/ADEZ6qQ
#podcast #LFWBD #bleedingdisorders #families
#HemeSky #MedSky
📣Today, we mark #RareDiseaseDay with the global community 🌍 For those living with #ExtremelyRare #BleedingDisorders, the path to diagnosis & care is rarely easy. #ERIN exists to connect, amplify, and stand beside you — because your voice matters. 💚 @rarediseaseday.bsky.social
On #RareDiseaseDay 2026, we're shining a light on #UltraRare #BleedingDisorders — factor deficiencies, #GlanzmannThrombasthenia, #BernardSoulierSyndrom, #Afibrinogenemia... Our #RDD blog highlights the experience of Helen, who lives with #FactorV deficiency: https://loom.ly/hcPNBXE
#HemeSky #MedSky
❓#Ageing with #BleedingDisorders brings unique challenges. What worries you? Share your questions anonymously 👉 buff.ly/15hLxQi
🎯 We'll address them throughout our year-long project #LivingWellAgeingWell. Check its resources: buff.ly/mB2IPh0
💥 Fear of falling can be just as limiting as falling itself. Our new one-pager has simple tips to help people with bleeding disorders stay strong & confident at home & beyond. 💪
#LivingWellAgeingWell #HealthyAgeing #BleedingDisorders #PatientEducation
💪 Falls are a serious concern for older adults with #BleedingDisorders, but there's a lot you can do to stay strong and mobile! ▶️ Our latest Virtual Café Talk on #Ageing covers exactly that 👇 youtu.be/Y3CJPwJKyAk?...
#LivingWellAgeingWell #HealthyAgeing #FallPrevention
📢 The EHC Public Policy Review (PPR) is out! Covering #EUHealthPolicy developments from Jan 2025 to Jan 2026, it breaks down what matters most for the #BleedingDisorders community — pharma reform, #EHDS, #HTA, #CriticalMedicinesAct, EU Biotech Act & social care. 📖 buff.ly/vIIDSak
The top 10 #BDCP articles for January 2026 explore aspects of treatment experience, women & haemophilia, parent experiences, and nursing. Read more in Bleeding Disorders: Care & Practice: https://loom.ly/uIXcNF8
#bleedingdisorders #research #haemophilia #Haemnet #HemeSky #MedSky
🗣️Day 2 at #EAHAD2026! In the Women and Girls with #BleedingDisorders session, Roseline d'Oiron sharing insights on pregnancy-related challenges for women with #GlanzmannThrombasthenia. Important perspectives on maternal care. 🩸
Ready for another day at #EAHAD2026!
#EAHADCongress #bleedingdisorders #research #Haemnet #HemeSky #MedSky
As the day turns to evening, the general action at #EAHAD2026 is now moving from the professional stages to informal discussions where future collaborations are being shaped.
#hemophilia #bleedingdisorders #Dublin @eahad.bsky.social
If you're attending #EAHAD2026, don't forget to come and say hello at this evening's welcome and poster reception!
Wednesday 4 February, 6.30-7.30pm
#EAHADCongress #vonWillebrandDisease #FactorVII #women #bleedingdisorders #research #Haemnet #HemeSky #MedSky
Thanks Paul! It's a pleasure to present data from my first PhD study at #EAHAD2026. Thanks for your guidance and encouragement to dive into #research in #BleedingDisorders #Physiotherapy 🙏🏼
@HCPA11 #ChildrensHealthIreland @PtTcd @_ISCP_
At #EAHAD2026, Alison Dougall, Member of the EHC European Rare & Inhibitor Network (#ERIN) Committee, talks about how #OralHealth is the "canary in the coal mine" of poor health in people with #BleedingDisorders.
🗣️We're excited to kick off the #Ageing session at #EAHAD2026! Looking forward to exploring how we can optimise care for our ageing #BleedingDisorders population & address the unique challenges they face. 🩸
Day 2 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies.
#FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet
#HemeSky #MedSky
Awaiting new findings in the field of #hemophilia 🩸
#EAHAD2026 #bleedingdisorders #Dublin #Ireland
@eahad.bsky.social
Great to catch the latter part of the joint nurse & psychosocial session on #distress in #bleedingdisorders at #EAHAD2026 Frequently the HTC will be a safe place & staff will recognise signs of distress before others due to knowing the individual or family so well. Check in!
