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Great to be at the #LDEConference chatting with people about #Gr8Support and the #coproduced #GuidetobeingaGr8SupportWorker being launched this Summer!

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Room full of conference delegates seated at tables looking towards the presenters

Room full of conference delegates seated at tables looking towards the presenters

Wonderful session including some really interesting examples of #coproduced research

#FullHouse

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How can healthcare professionals better support family caregivers in the final days of life: Could the “Family’s Voice Diary” help? A qualitative study based in an area of high socio-economic deprivat... Background: Family caregivers play a vital role in supporting patients at the end of life, a role that can impact their own well-being. Healthcare professionals...

Family/friend caregivers are an important source of support- but who cares for the #carers?

We #CoProduced a family diary to support carers in making their voices heard when someone is dying
We report the process over the past few years here

#PalliativeCare

journals.sagepub.com/doi/10.1177/...

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Did I Take My Medication Today? Understanding Medication Self‐Management for Adults With Intellectual Disabilities Through Participatory Research Background There is little research that has examined what support strategies are effective to help adults with intellectual disabilities take their prescribed medication correctly. The aim of the s...

Check out our latest #coproduced article about #medicine self-management for people with #IntellectualDisabilities
@edinburghnapier.bsky.social

onlinelibrary.wiley.com/doi/10.1111/...

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This was a brilliant event last night. A particular shout out to @lrylandepton.bsky.social for her fantastic contribution showcasing the work she is doing to pioneer #collaborative #coproduced histories as part of the process of undertaking research for @vchlondon.bsky.social #Bigredbooks

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Not the sea!
These are the raw hoardings going up at the site of the new Cambridge Cancer Research Hospital. A wonderful sign that this amazing project is starting to become a reality! So exciting. We are confident that this building, #coproduced by staff and patients, will #ChangeTheStoryOfCancer,

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#LivedExperience #Involvement #Outcomes #OutcomeMeasures #PROMs #PatientReportedOutcomeMeasures #SystematicReview #PeerResearchers #ServiceUserResearchers #Codeveloped #Coproduced

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Co-Pro Futures Inquiry
 EVIDENCE EXAMPLES
 Evidence	might	include:	Case	studies. 	Evaluation	reports	Testimonies
Academic	journal	articles	and	books	Strategic	documents/policies	Online	outputs	Creative	outputs:	film,	photos,	media	or	blogs	Toolkits	Guidance	
Examples	of	university	initiatives	Practical	steps	of	how	to	work	around	challenges	Examples	of	funding	innovations.
 CALL FOR EVIDENCE AND IDEAS 
A SUMMARY
 Call for Evidence and Ideas
 The Co-Pro Futures Inquiry will propose measures to address barriers to participatory and co-produced research within universities and the higher education sector.  Between	2024-2026	this	will	involve	workshops,	desk-based	secondary	analysis,	interviews, and	a	high-profile	panel	who will	identify	actions	that	can	be	put	into	practice.
 The	Call	for	Evidence	and	Ideas	is	one	key	way	that	we	want	to	gather	collective intelligence	to	support	the	sector-wide	deliberation	and	development	of	an	action	
plan. We are opening the call for submissions until February 28th 
 WE WANT EVIDENCE TO DEMONSTRATE 
 1. The size and  scale of the problem
 2. Actions and solutions that are already being tried and tested 
IDEAS
 Ideas	for	what	kinds	of	formal	and	informal	actions	might	really	change	the	conditions	for	co-produced	research
 We hope to hear evidence from:	Researchers	|	Co-researchers	|	Partner	organisations	|	
Professional	service	staff	|	University	leaders	and	managers	|	Infrastructure	organisations	|	
Funders	|		Higher	education policy-makers

Co-Pro Futures Inquiry EVIDENCE EXAMPLES Evidence might include: Case studies. Evaluation reports Testimonies Academic journal articles and books Strategic documents/policies Online outputs Creative outputs: film, photos, media or blogs Toolkits Guidance Examples of university initiatives Practical steps of how to work around challenges Examples of funding innovations. CALL FOR EVIDENCE AND IDEAS A SUMMARY Call for Evidence and Ideas The Co-Pro Futures Inquiry will propose measures to address barriers to participatory and co-produced research within universities and the higher education sector. Between 2024-2026 this will involve workshops, desk-based secondary analysis, interviews, and a high-profile panel who will identify actions that can be put into practice. The Call for Evidence and Ideas is one key way that we want to gather collective intelligence to support the sector-wide deliberation and development of an action plan. We are opening the call for submissions until February 28th WE WANT EVIDENCE TO DEMONSTRATE 1. The size and scale of the problem 2. Actions and solutions that are already being tried and tested IDEAS Ideas for what kinds of formal and informal actions might really change the conditions for co-produced research We hope to hear evidence from: Researchers | Co-researchers | Partner organisations | Professional service staff | University leaders and managers | Infrastructure organisations | Funders | Higher education policy-makers

HOW TO SUBMIT?
 Share your evidence  on the Linked-In group  Co-Pro	Futures	LinkedIn	group  Collective Intelligence-  Gathering form  
forms.gle/cwA5h7tATx9ADHYk7  Email the  
Co-Pro Futures team  coprofutures@gmail.com
 WHAT WILL WE DO WITH THE EVIDENCE?
 We	will	review	and	analyse	the	submissions  Evidence	will	then	inform	briefings	for	an	Inquiry	panel
 The	Inquiry	Panel	will	meet	and	deliberate	on	the	evidence	Launch	of	the	action	plan	in	July 	2026	The	Co-Pro	Futures	Inquiry	is	supported	by	allocations	from	the	Participatory	Research	Funds	at	the	Universities	of	Liverpool, Manchester	and	Sheffield.	If	you	have	any	questions	about	the	Co-Pro	Futures	Inquiry,	email	us	on	coprofutures@gmail.com

HOW TO SUBMIT? Share your evidence on the Linked-In group Co-Pro Futures LinkedIn group Collective Intelligence- Gathering form forms.gle/cwA5h7tATx9ADHYk7 Email the Co-Pro Futures team coprofutures@gmail.com WHAT WILL WE DO WITH THE EVIDENCE? We will review and analyse the submissions Evidence will then inform briefings for an Inquiry panel The Inquiry Panel will meet and deliberate on the evidence Launch of the action plan in July 2026 The Co-Pro Futures Inquiry is supported by allocations from the Participatory Research Funds at the Universities of Liverpool, Manchester and Sheffield. If you have any questions about the Co-Pro Futures Inquiry, email us on coprofutures@gmail.com

The Co-Pro Futures Inquiry will propose measures to address barriers to #participatory and #coproduced research within universities and the higher education sector in the UK .
The Call for Evidence and Ideas is one key way that we want to gather collective […]

[Original post on mastodon.social]

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Lancashire Learning Disability Institutions | A people’s history of institutional life

#History hat on here, link to a brilliant online #Disability #coproduced #archive (needs print version for deposit libraries) But my interest area is the stuff happening outside these state policy/institutions 1960s on #GapsInTheArchives www.lancslearningdisabilityinstitutions.org.uk

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Not out of kindness, the process of dialogue was clear throughout. There were also some absolute gems which were #coproduced but excluded because they rely on the co- to convey a process.

My first learning experience from Lynn L. was when I used "empowerment" & Lynn introduced me to your work

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A fantastic #resilience workbook #coproduced with pupils! Thrilled to join the #resilienceforum to learn from some of these very impressive young people on 24 November. Bookings available via

x.com/bb_resilience/… boingboing.org.uk/training-event…

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We #Coproduced & are now trialling an online #intervention for families of ppl with:
🔸 #PCA
🔸 #PPA
🔸 #bvFTD

24 ppl randomised within the 1st month thanks to @AmberJohn715 & @embrotherhood

International trial coming in 2023 ... 🌏

@INSneuro @alladi_suvarna @SidRamanan

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Josh Stott form @ADAPTlabUCL will be talking at the #FTD @RareDementia meeting about our "Better Living with bvFTD".

This is a 6 module training course #Coproduced with families of people with #bvFTD.

@rdscanada @isftd @RDS_ImpactStudy @ftdnews @AFTDHope

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When we say things are #CoProduced but the agenda/direction is set & power to make decisions is unequally distributed it’s not coproduction. It’s consultation. Semantics? Important distinction if @healthdpt MH strategy is going to fulfil on its commitment!

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Don't worry if you couldn't make it live, watch #pepconf2020 in your own time on our conference web page http://www.pep-net.org/2020-pep-policy-conference Hear how the benefits of #coproduced #research far outweigh the costs and learn how to make it as successful as possible.

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@AnnButlMHRec @greenrooms101 @JoeCW1980 @NeanyBa fascinating! Being human together #peer connection, no one size fits all approach, learning from military was #coproduced!

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Just been #reflecting on how this experience👇is integral to my #WRAP (wellness recovery action plan). It models real potential for #coproduced #codelivered training to #educate #support #empower ppl with a #terminal illness & their #supporters. Break taboo to talk about #dying

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Excited that tomorrow we start the first part of @AnnButlMHRec MSc transformation project through the @SouthernHSCT Recovery College. This provides a platform for measuring the impact of #coproduced #codelivered education on #safetyplanning as part of #towardszerosuicide @HSCQI

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Lisa Pollard O’Hare & @ClifMitchel launch the exciting #coproduced SCOPE (Service User Carer Opportunity to Participate & Engage) level 3 #QI Award #OCN @SouthernHSCT #involvefest2019 ready to begin 2020🙌. Contact PPI Team for more info @HSCQI @RCN_NI @AnnButlerMHRec @RCNMHForum

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Privileged to be working today with a nurse who cared for me when I was an inpatient. Interesting discussion about Resilience and Self-Esteem for the course being #coproduced at the SHSCT Recovery and Wellness College #hope #opportunity #gratitude @AnnButlerMHRec

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