Latest posts tagged with #CureHD on Bluesky
Thank you uniQure for sponsoring Education Day!
Join us April 17–18 in Cary, NC for an inspiring time of learning, connection, and hope for the Huntington’s disease community. 💙
Register today: www.hdreach.org/conference/2...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
Imagine a routine blood draw telling you what's going on in your brain before #HuntingtonsDisease symptoms start? Join our webinar "What Your Blood Tells Us: The Science Behind HD Biomarkers" Tues, 3/24, 12-1pm ET, with Q&A.
Register: tinyurl.com/Mar-2026-web...
#researchspotlightwebinars #curehd
WS & CLT: We hope to see you tonight. Brandi and the WS group are having a theme night- wear your favorite band tee! Erika will be hosting the CLT crew.
Sign up here: www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease
We're thrilled to announce that Nancy Wexler's memoir, "My Life, My Science: Pursuing a Cure for #Huntingtonsdisease" is now available! Purchase from the publisher: tinyurl.com/NW-book-CSHL or on Amazon . #nancywexlermemoir #bookrelease #wexlermemoir #coldspringharborlaboratory #curehd
WILMINGTON: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
WE ARE #LIVE with #kingdomhearts3
Come hang!
Twitch.tv/hdreachgameoverhd
YouTube.com/@hdreachgameoverhd
#twitch #youtube #hdreachgameoverhd #huntingtonsdisease #curehd #advocacy
Did you know we are now using Heylo for our North Carolina Meetups?
See our meetup events across the state, register, get reminders, stay connected in chat with your local HD community!
Join today:
heylo.group/hdreach
#HDreach #ReachForHope #curehd #curejhd #raredisease #huntingtonsdisease
Bringing kids to Education Day?
We’ve got you covered. Our Kids Program is available for ages 3+ (potty trained) and will include fun games, arts & crafts, and a special children’s performer in the afternoon.
www.hdreach.org/conference/2...
#HDReach #ReachForHope #ReachingForHope #curehd
Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. 💙 🧬
Doxy.me/HDgenetics
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd
Check out our summary of both in person events and virtual events for the month of March, as well as what we have coming up! We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
Today on #RareDiseaseDay, we stand with the #Huntingtonsdisease community and the millions of people worldwide living with a rare condition.
You are seen. You are supported. You are not alone. 💙
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
💙🙏🏼💙 Let’s Celebrate Our #HDHeroes!
Our HD Heroes are the heart of our community. Share your story to inspire and connect with others. Together, we #ReachForHope and keep pushing for a cure.
www.hdreach.org/community/hd...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
RDU TONIGHT!! Walk-ins are welcome but please register if you can. If there are no signups, the event will be cancelled. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
TOMORROW! Join us at the Vanderbilt HD Educational Community Support Group .
www.hdreach.org/community/ev...
#HDReach #ReachForHope #ReachingForHope #curehd
Meetup Reminders for TOMORROW & NEXT WEEK. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
WS & CLT: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
Sign up here: www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease
WILMINGTON: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
⏰ Today is the LAST day to shop online and get your gifts in time for Valentine’s Day! Join us for a Kendra Scott Give Back Fundraiser benefiting HD Reach because love looks even better when it gives back.
#HDReach #ReachForHope #ReachingForHope #CureHD #CureJHD #RareDisease #HuntingtonsDisease #HD
Check out our summary of both in person events and virtual events for the month of February. We can't wait to see you there! 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
Bluesky! We are excited to be here. Say hello the the staff of HD Reach! We would love to share a bit about ourselves with y'all and can't wait to continue to grow with you. #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
We are so grateful to look back on 2025!
Thank you to the Huntington's disease community, our sponsors, our volunteers, and all who support us in person and virtually.
#hdreach #endofyear #youtube #curehd #curejhd #reachforhope #family #huntingtonsdisease #advocacy
youtu.be/q3F9WMMmtbk?...
We are so grateful to look back on 2025!
Thank you to the Huntington's disease community, our sponsors, our volunteers, and all who support us in person and virtually.
#hdreach #endofyear #youtube #curehd #curejhd #reachforhope #family #huntingtonsdisease #advocacy
youtu.be/q3F9WMMmtbk?...
There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS SUNDAY, 1/18 to ensure you are included, before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.
✍️Sign today - bit.ly/Hope4HD
#curehd #huntingtondisease
2025 made meaningful progress in Huntington’s disease research. We celebrate these important milestones & look ahead with optimism to 2026. Wishing a happy & healthy New Year to our very special HD community.
Please consider donating today - www.hdfoundation.org/donate
#cureHD #HuntingtonsDisease
We need your support now more than ever. Please consider donating today - hdfoundation.org/donate #cureHD #HuntingtonsDisease
As this year draws to a close, we want to express our gratitude for your support. Because of you, we could move the needle on important research to advance our mission of finding treatments, & ultimately a cure, for #Huntingtonsdisease. Warmest wishes for the holidays. #cureHD
These people represent some of the many faces of the families impacted by #Huntingtonsdisease. The community's strength, courage, & resilience fuel our commitment to funding critical research. Now more than ever we need your support: hdfoundation.org/donate #cureHD
THANKS to all who signed & lent their voice to this petition. Reaching 35k signatures demonstrates the strength, determination, & heart of our #Huntingtonsdisease community. ⭐️⭐️⭐️Our new goal is 50,000k by 1/1/2026⭐️⭐️⭐️. To reach more families, please LIKE and SHARE this post. bit.ly/Hope4HD
#curehd
