Latest posts tagged with #ReachForHope on Bluesky
Thank you uniQure for sponsoring Education Day!
Join us April 17–18 in Cary, NC for an inspiring time of learning, connection, and hope for the Huntington’s disease community. 💙
Register today: www.hdreach.org/conference/2...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
WS & CLT: We hope to see you tonight. Brandi and the WS group are having a theme night- wear your favorite band tee! Erika will be hosting the CLT crew.
Sign up here: www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease
WILMINGTON: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
Need help getting to Education Day? Travel or gas stipends are available for Education Day on April 17th and 18th in Cary, NC. If assistance would help you attend, please complete the Travel / Gas Stipend application.
www.hdreach.org/conference/s...
#HDReach #ReachForHope #ReachingForHope
Did you know we are now using Heylo for our North Carolina Meetups?
See our meetup events across the state, register, get reminders, stay connected in chat with your local HD community!
Join today:
heylo.group/hdreach
#HDreach #ReachForHope #curehd #curejhd #raredisease #huntingtonsdisease
Meetup Reminders for NEXT WEEK. Come build community and make connections with us. Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. #HDreach #ReachForHope #ReachingForHope
Bringing kids to Education Day?
We’ve got you covered. Our Kids Program is available for ages 3+ (potty trained) and will include fun games, arts & crafts, and a special children’s performer in the afternoon.
www.hdreach.org/conference/2...
#HDReach #ReachForHope #ReachingForHope #curehd
Are you thinking about genetic testing for HD but aren't sure where to start? Join our open chat room alongside HD Genetics. No need to sign up, just click the link to join during our meeting time, 12:30pm - 1pm ET. 💙 🧬
Doxy.me/HDgenetics
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd
We are so excited to read a book written by someone in the HD community. Sarah Foster will be joining us to talk about her book, "This Is Me Smiling." See you tonight!
📚📚📚 Any questions please reach out to Erika at eboulavsky@hdreach.org www.hdreach.org/community/ev...
#HDReach #ReachForHope
Check out our summary of both in person events and virtual events for the month of March, as well as what we have coming up! We can't wait to see you there. 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
Today on #RareDiseaseDay, we stand with the #Huntingtonsdisease community and the millions of people worldwide living with a rare condition.
You are seen. You are supported. You are not alone. 💙
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
No one has to walk their HD journey alone. The HD community is warm and welcoming. Monthly meet ups offer friendship, connection, support and understanding. You are SEEN. Give us a HUG to keep HD Reach financially stable.
www.hdreach.org/donate/month...
#HDReach #ReachForHope #ReachingForHope
💙🙏🏼💙 Let’s Celebrate Our #HDHeroes!
Our HD Heroes are the heart of our community. Share your story to inspire and connect with others. Together, we #ReachForHope and keep pushing for a cure.
www.hdreach.org/community/hd...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease
RDU TONIGHT!! Walk-ins are welcome but please register if you can. If there are no signups, the event will be cancelled. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
TOMORROW! Join us at the Vanderbilt HD Educational Community Support Group .
www.hdreach.org/community/ev...
#HDReach #ReachForHope #ReachingForHope #curehd
WINSTON-SALEM: Anyone craving pizza for lunch 🍕 Come join this wonderful, community led meetup. 💙💜 Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. For questions, contact Brandi at bdellenback@hdreach.org.#HDreach #ReachForHope
Meetup Reminders for TOMORROW & NEXT WEEK. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
We are so excited to read a book written by someone in the HD community. Sarah Foster will be joining us to talk about her book, "This Is Me Smiling."
📚📚📚 Any questions please reach out to Erika at eboulavsky@hdreach.org www.hdreach.org/community/ev...
#HDReach #ReachForHope #ReachingForHope
Excited to introduce Steve, our valued Family Advisory Board member! The FAB collaborates with us to shape our programs and amplify community voices. #FamilyAdvisory #CommunityEngagement #CommunityInvolvement #VoiceMatters #FAB #ReachForHope #Huntingtonsdisease
www.hdreach.org/about-us/who...
WS & CLT: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
Sign up here: www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease
WILMINGTON: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
⏰ Today is the LAST day to shop online and get your gifts in time for Valentine’s Day! Join us for a Kendra Scott Give Back Fundraiser benefiting HD Reach because love looks even better when it gives back.
#HDReach #ReachForHope #ReachingForHope #CureHD #CureJHD #RareDisease #HuntingtonsDisease #HD
Meetup Reminders for NEXT WEEK. Come build community and make connections with us. Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled. #HDreach #ReachForHope #ReachingForHope
Check out our summary of both in person events and virtual events for the month of February. We can't wait to see you there! 💙 For more information, checkout www.hdreach.org/community/ev... #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
2026! It's a New Year which means new dates to save for our yearly events! Check out the summary here and be sure to save them in your calendar.
Interested in volunteering or joining the committee? Send an email info@hdreach.org.
Check out hdreach.org for more details. #HDreach #ReachForHope
Bluesky! We are excited to be here. Say hello the the staff of HD Reach! We would love to share a bit about ourselves with y'all and can't wait to continue to grow with you. #HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
We are so grateful to look back on 2025!
Thank you to the Huntington's disease community, our sponsors, our volunteers, and all who support us in person and virtually.
#hdreach #endofyear #youtube #curehd #curejhd #reachforhope #family #huntingtonsdisease #advocacy
youtu.be/q3F9WMMmtbk?...
We are so grateful to look back on 2025!
Thank you to the Huntington's disease community, our sponsors, our volunteers, and all who support us in person and virtually.
#hdreach #endofyear #youtube #curehd #curejhd #reachforhope #family #huntingtonsdisease #advocacy
youtu.be/q3F9WMMmtbk?...
Hi 👋 We’re HD Reach, a nonprofit supporting families impacted by Huntington’s disease, established in 2009. We’re excited to be here to connect, learn, and support one another. Follow along to stay up to date on events, resources, and what’s happening in our community.
#HDReach #ReachForHope
The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!
Sign the Petition Today! Don’t forget to confirm your email to make it count.
bit.ly/Hope4HD
#HDReach #ReachForHope #curehd #curejhd #raredisease #huntingtonsdisease
