#DecodeME

082 - How many roads lead to ME/CFS? Here is a new paper looking at genetic disease signatures in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The preprint is open-access and can be found here: https://www.medrxiv.org/content/10.64898/2025.12.01.25341362v2 - Jarred Younger

2 months ago

Dr Jarred Younger discusses a study using the #DecodeME data to look at genetic disease signatures in ME/CFS. He concludes that altered genes alone don't cause ME, there are at least 4 subgroups & there will never be 1 single cure for ME.[16 mins] +Transcript
tinyurl.com/552ws59e

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"What's New in ME/CFS?" A New Series from Solve M.E. - Solve ME/CFS Initiative We're rolling out our "What’s New in ME/CFS?" interview series, where we go straight to the source: the scientists on the front lines of ME/CFS research. We’re asking the questions that matter, and br...

3 months ago

Solve ME asks Prof Chris Ponting from the #DecodeME project "What has changed in ME/CFS research over the last year?" and if he is hopeful about ME research. [8 mins] View on YouTube for Transcript.
tinyurl.com/4d296wv8

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Action for ME

@actionforme.bsky.social

3 months ago

🔎 From #DecodeME to LOCOME, it's been a landmark year for ME research.

Hear why this is a pivotal moment for #MECFS research - and how Action for ME is accelerating understanding for everyone affected.

🧬 Donate today and your gift will be DOUBLED: bit.ly/2025-big-give

#ChristmasChallenge

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The most detailed genetic analysis of myalgic encephalomyelitis ever conducted Groundbreaking ME study identifies 250+ genes, links with long COVID, and uncovers new drug repurposing opportunities to advance targeted treatments

3 months ago

Precision Life Press Release: Groundbreaking myalgic encephalomyelitis study identifies over 250 core genes, shared biology with long COVID, and dozens of drug repurposing opportunities

Read more: precisionlife.com/news-and-events/me-genet...

#MyalgicEncephalomyelitis #DecodeME

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Solve M.E.

@solveme.bsky.social

3 months ago

What's New in ME/CFS? Interview with Dr. Chris Ponting YouTube video by SolveME

"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next.

We’re kicking off with Prof. Chris Ponting of @decodemestudy.bsky.social.

🎥 Watch now → youtu.be/26EgGn49osw

#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour

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Solve M.E.

@solveme.bsky.social

3 months ago

Compass on wooden surface symbolizing guidance in ME/CFS research updates is pictured along with a photo of Dr. Chris Ponting and text describing interview details. The Solve M.E. logo is placed in the bottom left corner.

"What’s New in ME/CFS?" A new Q&A series from Solve M.E. featuring top scientists on breakthroughs, hope, & what’s next. We’re kicking off with Prof. Chris Ponting of the DecodeME study.
🎥 Watch now → youtu.be/26EgGn49osw

#MECFS #DecodeME #LongCOVID #SolveME
#MEAwarenessHour

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sarah boothby

@swastrosarah.bsky.social

4 months ago

Myhill did not vet for PEM though. This was a huge error of judgement, given CFS a la UK is psychiatric.
She also promoted an untested hypothesis in advocating for what is, frankly, a racist diet.
Similar issue for UK bio bank as controls for #DecodeME.
Most #pwME in the world are NOT Anglo Saxon.

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+AdamBlack

@redrocket.bsky.social

4 months ago

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome Research could offer hope for ME patients – but some experts urge caution and say more studies needed

Better article : epigenetic markers of #Myalgic E

#CFSMe #DecodeMe #Spoonies #DisabilitySky #NEisvoid

"experts not involved ... 'test would need to be fully validated in better designed and independent studies before it could be considered for use in clinical practice.' "

Exactly what I said!

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Genes pointing to the brain: DecodeME part II - ME/CFS Science DecodeME is the biggest study ever on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In our previousContinue readingGenes pointing to the brain: DecodeME part II

4 months ago

In the #DecodeME study the genes associated with ME/CFS are found to be involved in neuronal development & communication in the brain. The genes highlighted are not uniquely linked to ME/CFS. But the DNA signal around them is often different.
tinyurl.com/heans3zb

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trialbyerror.org.web.brid.gy

@trialbyerror.org.web.brid.gy

5 months ago

Interview with Professor Chris Ponting on Building ME/CFS Research Infructure with PRIME (Donations are tax-deductible for US taxpayers.) The UK Medical Research Council recently awarded £800,000 over four years to PRIME, a partnership between Action For ME and the University of Edinburgh. PRIME will seek to develop a research infrastructure to pursue investigations into ME/CFS. The funding starts this month. According to Action For ME, the goals […]

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trialbyerror.org.web.brid.gy

@trialbyerror.org.web.brid.gy

5 months ago

Interview with Professor Chris Ponting on Building ME/CFS Research Infructure with PRIME (Donations are tax-deductible for US taxpayers.) The UK Medical Research Council recently awarded £800,000 over four years to PRIME, a partnership between Action For ME and the University of Edinburgh. PRIME will seek to develop a research infrastructure to pursue investigations into ME/CFS. The funding starts this month. According to Action For ME, the goals […]

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trialbyerror.org.web.brid.gy

@trialbyerror.org.web.brid.gy

5 months ago

Interview with Professor Chris Ponting on Building ME/CFS Research Infructure with PRIME (Donations are tax-deductible for US taxpayers.) The UK Medical Research Council recently awarded £800,000 over four years to PRIME, a partnership between Action For ME and the University of Edinburgh. PRIME will seek to develop a research infrastructure to pursue investigations into ME/CFS. The funding starts this month. According to Action For ME, the goals […]

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Karen

@karenpearny.bsky.social

5 months ago

Well done Matthew - that’s great! I took part with 19/20000 people in the #decodeme study for ME and it’s hopefully helping find causes etc

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DecodeME: the biggest ME/CFS study ever - ME/CFS Science The first results of DecodeME are in, the largest research project ever undertaken on myalgicContinue readingDecodeME: the biggest ME/CFS study ever

5 months ago

A series of blogs aims to look in detail at the first analysis of the #DecodeME study results. It begins by looking at SNPs and heritability.
tinyurl.com/4bznkvy3

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John Peters

@johnthejack.bsky.social

5 months ago

#MEcfs #DecodeME
#LongCovid

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6 months ago

Spotify – Web Player

Peter uses AI to make a podcast explaining the #DecodeME study results in more simple terms. "Hearing “the presenters” discuss my lived experience without judgement was unexpectedly powerful." [12 mins]
tinyurl.com/4kwxvvx4

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6 months ago

IMAGE DESCRIPTION: This AI generated image shows a girl sat on her bed in a dark room, with the graphic of a glowing DNA strand behind her. Heading - Big science, explained simply: the DecodeME paper in 12 minutes, through the voices of AI

Big science, explained simply: the DecodeME paper in 12 minutes, through the voices of AI

This 12-minute podcast was created by a post-viral fatigue sufferer and AI expert, Peter Brookes-Smith dt-squad, to help explain the recent DecodeME paper.

https://tinyurl.com/3jwn39am

#MECFS #DecodeME

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The ME Association awards Decode ME the Howes Goudsmit Award 2025 - The ME Association The ME Association are pleased to announce that we have […]

6 months ago

The ME Association are pleased to announce that we have awarded Decode ME the Howes-Goudsmit Award 2025 for their extensive work and commitment to their genome-wide association study.

Find out more: https://meassociation.org.uk/ir3e

#MECFS #pwME #SevereME #MyalgicE #DecodeME #HowesGoudsmitAward

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DHSC announces plans to create new genomics population health service - The ME Association On the 28th August, 2025, the Department for Health and […]

6 months ago

DHSC announces plans to create new genomics population health service

Dr Charles Shepherd, MEA Hon Medical Adviser, comments on the blog: https://meassociation.org.uk/b7hq

#MECFS #pwME #MyalgicE #DHSC #NHS #DecodeME

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