#EuropeanHealthDataSpace

BBMRI-ERIC

@bbmrieric.bsky.social

4 months ago

📖 Read 6 key recommendations from BBMRI-ERIC's Stakeholder Forum – Patients and Citizens Pillar on how to implement the opt-out process for the secondary use of #HealthData under #EHDS regulation.

🔗 Full position paper here: buff.ly/IgJkFQW

#EuropeanHealthDataSpace #DataGovernance #DataPrivacy

The Evidence Base

@theevidencebase.bsky.social

5 months ago

Elsan partners with Promptly Health to advance real-world data research and support the European Health Data Space | Becaris Publishing Elsan partners with Promptly Health to advance real-world data research and support the European Health Data Space

Elsan partners with Promptly Health to advance #RealWorldData research and support the #EuropeanHealthDataSpace | Becaris Publishing becarispublishing.com/digital-cont...

Innovative Health Initiative

@ihieurope.bsky.social

6 months ago

IHI and IMI: Laying the foundations of the European Health Data Space IMI and IHI projects provide a neutral platform where public and private datasets can be shared within a secure environment. This means that IHI and IMI projects are the perfect testing ground for ful...

🔒 IMI/IHI projects provide a neutral platform where #HealthData from public/private sources can be shared within a secure environment, making them a perfect testing ground for implementing the #EuropeanHealthDataSpace
👉 europa.eu/!BbTPDt
#EHDS #IHITransformingHealth #IHISummerOfScience #HorizonEU

SAFEST EU project

@safestsurgery.bsky.social

8 months ago

SAFEST NOVA NSPH team participated in “Dados que contam” organised by @ENSP_UNL to empower Portuguese patient associations using the SAFEST project as an example

#EuropeanHealthDataSpace #PatientEmpowerment #HealthData #PatientInvolvement #SAFESTProject #PatientSafety #PerioperativeCare

The Evidence Base

@theevidencebase.bsky.social

8 months ago

Building trust in the European Health Data Space: legal, clinical, and patient perspectives on privacy, AI, and ethics | Becaris Publishing

Building trust in the #EuropeanHealthDataSpace: legal, clinical, and #PatientPerspectives on #privacy, #AI, and #ethics | Becaris Publishing becarispublishing.com/digital-cont...

The Evidence Base

@theevidencebase.bsky.social

11 months ago

Ensuring patient readiness for the European Health Data Space: interview with Milana Trucl, European Patients' Forum | Becaris Publishing

Ensuring patient readiness for the #EuropeanHealthDataSpace: interview with Milana Trucl, @lanatrucl.bsky.social| Becaris Publishing becarispublishing.com/digital-cont...

#DataSavesLives #DSL #patients #healthdata #EHDS #patientengagement #empowerment #digitalhealthliteracy #digitaldivide

The Evidence Base

@theevidencebase.bsky.social

1 year ago

European Health Data Space (EHDS): Experts discuss enhancing healthcare, research, and data governance across the EU | Becaris Publishing

The #EuropeanHealthDataSpace regulation aims to transform EU healthcare and research by enabling secure, standardized access to #electronichealthdata.

Fulvia Raffaelli & Owe Langfeldt from @ec.europa.eu outlined its framework, key safeguards, and timeline.

becarispublishing.com/digital-cont...

European Public Health Alliance

@epha-eu.bsky.social

1 year ago

Moving forward with the European health data space: the need to restore trust in European health systems The European institutions reached an agreement on the regulation of European Health Data Space (EHDS) on March 15th, 2024, after three months of intense negotiations that prolonged beyond the original...

The #EuropeanHealthDataSpace Regulation has been published!

We reiterate our call to strengthen trust in European health systems by improving digital health literacy, ensuring transparency across all member states, ceasing fear-based communication and more: www.thelancet.com/journals/lan...

The Evidence Base

@theevidencebase.bsky.social

1 year ago

TEHDAS2 opens public consultation on European Health Data Space implementation guidelines

TEHDAS2 joint action has launched a public consultation seeking feedback on draft guidelines and technical specifications critical for implementing the newly adopted #EuropeanHealthDataSpace regulation.

becarispublishing.com/digital-cont...

The Evidence Base

@theevidencebase.bsky.social

1 year ago

Historic milestone as EU council adopts regulation for European Health Data Space

The Council of the European Union's adoption of the #EuropeanHealthDataSpace regulation marks a milestone, giving citizens control over their #electronichealthdata and fostering secure cross-border data sharing to advance healthcare across member states.

becarispublishing.com/digital-cont...

Markus Frischhut

@mrfrischhut.bsky.social

1 year ago

Are EU member states ready for the European Health Data Space? Lessons learnt on the secondary use of health data from the TEHDAS Joint Action Abstract. The proposal for a regulation on the European Health Data Space (EHDS) contains provisions that would significantly change health data management

Out now: Kessissoglou, I. A., et al. (2024). Are EU member states ready for the #EuropeanHealthDataSpace? Lessons learnt on the secondary use of health data from the TEHDAS Joint Action. EJPH, 34(6), 1102–1108. doi.org/10.1093/eurp...

forschungsdaten.info

@forschungsdaten.info

1 year ago

Zustimmung des EU Parlament zur Einrichtung des Europäischen Gesundheitsdatenraums.

forschungsdaten.info/nachrichten/...

#Forschungsdaten #Forschungsdatenmanagement #OpenScience #EHDS #EuropeanHealthDataSpace #FDM #RDM

Laurent Bauvens

@bauvens.bsky.social

1 year ago

Première page de présentation succincte de l'Espace Européen des Données de Santé par la Commission Européenne exposant les objectifs puis le potentiel de croissance de l'économie fondée sur les données de santé.

Seconde page de présentation succincte de l'Espace Européen des Données de Santé par la Commission Européenne exposant les avantages pour les citoyens, les professionnels de santé, les chercheurs, les autorités de règlementation et les décideurs, et pour les entreprises.

🇪🇺+⚕️
Présentation succincte de l' #EspaceEuropéenDesDonnéesDeSanté ou #EuropeanHealthDataSpace #EHDS #DonnéesDeSanté

ec.europa.eu/commission/p...