#PatientInvolvement

NESSIE evidence synthesis

@nessieevidence.bsky.social

3 days ago

image shows three circles with text ‘substance use or mental health challenges’, ‘justice-involved adults’ and ‘non-custodial treatment orders’ intersecting with the text ‘health and well-being?’. Background is yellow. Image heading reads ‘Non-custodial treatment orders offer an alternative to custodial sentences but what are the impact of these on the health and well-being of people involved with the justice system? Two related reviews on this topic area now published.’ NESSIE logo in bottom right hand corner.

#NESSIE has published two related systematic reviews on the impact of mandatory drug and alcohol treatment orders on health and wellbeing. Findings in our latest blog
#bestevidence #evidencebased #EvidenceBasedPractice #evidencedbasedresearch #evidencesynthesis #PPI #patientinvolvement

I Am Charlene

@iamcharleneyoung.bsky.social

5 days ago

🔗To see the full poster visit: www.iamcharlene.com

🧡

#PatientLedResearch #RareDisease #RareDiseaseResearch #PosterPresentation #ResearchCommunity #RareCancer #IAmCharlene #RareGems #BionicWarrior #PPI #PPIE #PatientInvolvement

NESSIE evidence synthesis

@nessieevidence.bsky.social

2 weeks ago

Read the latest #NESSIE ‘Spotlight on…’ blog featuring Prof Gerry Stansby – access links in bio!

#bestevidence #evidencebased #EvidenceBasedPractice #evidencedbasedresearch #evidencesynthesis #PPI #patientinvolvement

The European Federation of Neurological Associations (EFNA)

@efna.net

2 weeks ago

🖥️ You can watch today's MEP Interest Group on Brain Health & Neurological Conditions meeting live from 14.00hrs - 16.00hrs CET at europeanparliament.webex.com/europeanparliament/j.php

#BHNCevent #Neurology #BrainHealth #PatientInvolvement

The European Federation of Neurological Associations (EFNA)

@efna.net

2 weeks ago

EFNA President Astri Arnesen speaks with our Executive Director, Dr Orla Galvin, following today's Public Health Committee meeting at the EU Parliament on ‘Brain health: Policy challenges and opportunities to manage neurological diseases.’

#Neurology #BrainHealth #EUhealth #PatientInvolvement

The European Federation of Neurological Associations (EFNA)

@efna.net

2 weeks ago

🖥️ Tune in to watch the SANT Committee meeting 'Brain health: Policy challenges and opportunities to manage neurological diseases' live here:
multimedia.europarl.europa.eu/en/webstreaming/sant-com...

#EUhealth #neurology #PatientInvolvement

APC Microbiome Ireland

@apcmicrobiomeirel.bsky.social

3 weeks ago

New APC paper in JCC+
Michelle O'Riordan & Subrata Ghosh highlight how people with IBD aren’t subjects, they’re partners, shaping more relevant, human-centred research.
𝐄𝐦𝐩𝐨𝐰𝐞𝐫𝐢𝐧𝐠 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐕𝐨𝐢𝐜𝐞𝐬: 𝐑𝐞𝐯𝐨𝐥𝐮𝐭𝐢𝐨𝐧𝐢𝐬𝐢𝐧𝐠 #𝐈𝐁𝐃 𝐑𝐞𝐬𝐞𝐚𝐫𝐜𝐡 𝐓𝐡𝐫𝐨𝐮𝐠𝐡 #𝐏𝐏𝐈
bit.ly/ibd-jcc
#PatientInvolvement #microbiome #crohns

Linda von Neree

@lindavonneree.bsky.social

3 weeks ago

Defining Patient and Public Involvement and Engagement Tasks in Health Data Research: A Consensus Study Background Patient and public involvement and engagement (PPIE) is essential throughout the research cycle, but a one-size-fits-all approach does not suit all study types. Health data research prese...

📣 If you are interested in #PatientInvolvement #PublicEngagement 💪 in #data #research 🕵️👥🔬this new #publication might be for you 🤩

➡️ Tasks how patient and public members can be involved in research using health information: A conversation starter
onlinelibrary.wiley.com/doi/10.1111/...

Do share! 🙏

AutoPiX project

@autopix.bsky.social

1 month ago

🎥 We’re live today, at 12 pm (CET)
📺 Join us on YouTube! https://www.youtube.com/@AutoPiXproject
👉 Be part of the conversation!
#LiveWebinar #AI #AutoPiX #Rheumatology #PatientInvolvement #PRP #DigitalHealth #HealthcareInnovation #IHI

NESSIE evidence synthesis

@nessieevidence.bsky.social

1 month ago

image shows child looking through magnifying glass and healthcare worker with speech bubble containing words “Wondering how we are getting on with our review on the management of children’s chronic pain? Then check out our latest blog – available now!”. NESSIE logo in top right hand corner

What health and social care workers do, think and feel about treating children with non-cancer, chronic pain - progress blog link in bio!
#bestevidence #evidencebased #EvidenceBasedPractice #evidencedbasedresearch #NESSIE #evidencesynthesis #PPI #patientinvolvement #chronicpain #LifeWithPain

AutoPiX project

@autopix.bsky.social

1 month ago

AutoPiX AutoPiX is a major international project focused on improving healthcare for people with rheumatic and musculoskeletal diseases (RMDs). The AutoPiX project brings together pharmaceutical and medical technology partners with leading academic institutions to enhance the use of imaging biomarkers for p...

🎙️ Thomas Hügle & Sébastien Vincent
🗓️ 10 February
 🕛 12:00 PM (CET)
 📺 Live streaming on https://www.youtube.com/@AutoPiXproject
👉 Save the date and join us live!
#Webinar #ArtificialIntelligence #AI #AutoPiX #Rheumatology #PatientInvolvement #PRP #DigitalHealth #HealthcareInnovation #IHI

@kcefgov.bsky.social

1 month ago

📘 𝐍𝐨𝐰 𝐚𝐯𝐚𝐢𝐥𝐚𝐛𝐥𝐞 𝐢𝐧 𝐨𝐩𝐞𝐧 𝐚𝐜𝐜𝐞𝐬𝐬: 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐈𝐧𝐯𝐨𝐥𝐯𝐞𝐦𝐞𝐧𝐭 𝐢𝐧 HTA

🖤💛❤️For the 1st time, a chapter dedicated to Belgium — and it shows how KCE actively involves patients in its projects.

👉link.springer.com/book/10.1007/978-3-032-1...

#HTA #PatientInvolvement #KCE #OpenAccess #PatientEngagement

Academy of Medical Sciences

@acmedsci.bsky.social

2 months ago

A group of people sit around a round table in conversation

Applying for an Academy Starter Grant?

You can also apply for our PPI Fund and receive up to £2.5K to directly remunerate PPI contributors who help shape your application.

📅 Starter Grants open this month - stay tuned!
👉 Learn more on how to apply: bit.ly/4poPHoJ

#PatientInvolvement

Cancer Trials Ireland

@cancertrialsie.bsky.social

2 months ago

Earlier this year, our Patient Consultants Committee Chair, Patrick Kivlehan, presented flowers to PCC member Siobhán Gaynor as we marked her final meeting (back in October). A long-standing member and trailblazer who led our first patient-led study in 2023.

#PPI #PatientInvolvement

STRATA-FIT

@strata-fit.bsky.social

2 months ago

STRATA-FIT Update: A Year of Progress and Insights.
Jaap van Laar, STRATA-FIT´s coordinator, shares a reflective look at our journey.
Seasons greetings!

👉 bit.ly/3Y44zwJ

#RheumatoidArthritis #D2TRA #treatment #healthcare #PatientInvolvement #EUprojects #HorizonEU

STRATA-FIT

@strata-fit.bsky.social

2 months ago

Check the latest issue of our newsletter!

👉 bit.ly/4q1ZGA4

#STRATAFIT #rheumatoidarthritis #D2TRA #clinical #treatment #healthcare #patients #PatientInvolvement #research #HorizonEU #EUprojects

Cochrane_US

@cochraneus.bsky.social

3 months ago

🗣️ Have your say in shaping the future of @cochrane.org!

🌍Cochrane’s Patient & Public Network wants to hear from YOU about how to make evidence synthesis more inclusive.

🕓 Closes 19 Dec 2025
👉 forms.office.com/e/CochraneSurvey

#PatientInvolvement #EvidenceBasedMedicine #PublicEngagement

Sammie McFarland

@sammiemc.bsky.social

3 months ago

Fab Rehabilitation Science Research Network for COVID. fireside chat w @sunsopeningband.bsky.social on PEM /PESE = Post Exertional Neuroimmune Exhaustion.
Excellent input on research planning from @nikki-s.bsky.social & @sabrinapoirier.bsky.social in the research breakout room!
#patientinvolvement

AutoPiX project

@autopix.bsky.social

4 months ago

👉 Set your reminder now and join us live on YouTube!

#PiXight @autopix.bsky.social  #PatientInvolvement #Research #Innovation #Webinar #EULAR #PRP #PatientEngagement #Collaboration #IHI

SimplyCast

@simplycast.bsky.social

4 months ago

Patients often miss clinical trials due to lack of awareness. Our Clinical Trial Notifications are here to change that!

Get secure invitations and reminders, effortlessly.

#SimplyCast #SmallCanadianBusiness #SmartClinic #MedicalResearch #PatientOutreach #HealthcareInnovation #PatientInvolvement

MDR-RA Project

@mdr-ra-project.bsky.social

4 months ago

In MDR-RA, patients aren’t just participants — they’re partners shaping research, communication, and care. Through our Patient Engagement Plan, people living with RA co-create studies and materials that reflect real needs. Science works best when it listens. 💙
#MDRRA #PatientInvolvement #CoCreation

Sevtap Savas, PhD🫐 🇨🇦🍁

@savaslab.bsky.social

4 months ago

Here is my acceptance speech that I can deliver from social media

I have many folks to thank and attribute this award to ❤️❤️❤️

#NewfoundlandAndLabrador #PatientInvolvement #Cancer #AtlanticCanada 3/

Sevtap Savas, PhD🫐 🇨🇦🍁

@savaslab.bsky.social

4 months ago

Sadly I got sick at the airport and had to cancel my trip to receive this wonderful award ❤️💔❤️

But,

#NewfoundlandAndLabrador #PatientInvolvement #Cancer #AtlanticCanada 2/

Sevtap Savas, PhD🫐 🇨🇦🍁

@savaslab.bsky.social

4 months ago

CCRA 2025 Awardee Dr. Sevtap Savas YouTube video by Canadian Cancer Research Alliance (CCRA)

Today is the day folks! ❤️

What an amazing recognition for the community and patient partners, everyone involved in our work and public engagement, and our supporters!!!! ❤️

#NewfoundlandAndLabrador #PatientInvolvement #Cancer #AtlanticCanada

1/

www.youtube.com/watch?v=zfY-...

Healthcare Quality Improvement Partnership (HQIP)

@hqip.bsky.social

4 months ago

2/2 Did you know that, as well as implementing patient voice in our own work, we support other organisations to develop their patient and community engagement too? Here's how:
www.hqip.org.uk/services/ppi/

#HDRUKConference #HealthResearch #PatientInvolvement #PatientVoice #PPI

Healthcare Quality Improvement Partnership (HQIP)

@hqip.bsky.social

5 months ago

Today and tomorrow, we're at @HDR_UK Conference.

View our poster ‘The power of a good patient and public voice in the data access review process’ and talk to our Data Protection Officer Desislava Staykovska in the poster session in Hall 2, 5-6pm today.

#HDRUKConference #PPI #PatientInvolvement

Global Alliance of Mental Illness Advocacy Network

@gamian-europe.bsky.social

5 months ago

When patients lead, science listens. 💙

Proud to represent lived experience at #ECNP2025 and shape the future of #MentalHealthResearch.

🔗https://tinyurl.com/3k9t3bb5

#GAMIANEurope #PatientInvolvement

NESSIE evidence synthesis

@nessieevidence.bsky.social

5 months ago

Would you like to get involved with our latest #NESSIE project? Visit our webpage or email us for more details – links in bio.  #evidencesynthesis #bestevidence #evidencebased #EvidenceBasedPractice #evidencedbasedresearch #PPI #patientinvolvement #chronicpain #LifeWithPain

Cochrane_US

@cochraneus.bsky.social

5 months ago

Meet Heidi, a student, researcher, and passionate advocate joining Cochrane’s evidence community 🌍✨
Her story shows how anyone can help shape health research!

🌱 “There is no pressure … you can be as involved as you want.”
👥👉 www.cochrane.org/about-us/new...

#HealthResearch #PatientInvolvement

Healthcare Quality Improvement Partnership (HQIP)

@hqip.bsky.social

5 months ago

3/3 Read the article here: 👇
hqip.org.uk/news/increas...

@rcpch.bsky.social @nhs.uk @england.nhs.uk

#rcpch #Epilepsy #Epilepsy12 #EpilepsyCare #Paediatrics #ClinicalAudit #QualityImprovement #PPI #PatientInvolvement #NHS #NHSEngland