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Posts tagged #FairGoForME

Blue promotional graphic titled “Parliamentary Friends of ME/CFS Meeting” with a “Join Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Headshots of all ten speakers. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Blue promotional graphic titled “Parliamentary Friends of ME/CFS Meeting” with a “Join Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Headshots of all ten speakers. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

There is still time to join the Parliamentary Friends of ME/CFS meeting online today.

🗓️ TODAY 11am – 1pm AEDT
🌐 Register now to watch online: zurl.co/ySxF7

JOIN US HERE at 11am where we will live post the meeting.

#FairGoForME #MECFSAllianceAustralia

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Promotional graphic for a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Photo shows a person typing on a laptop while seated on a couch. A green banner reads “Parliamentary Friends of ME/CFS – Email your MP.” Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

Promotional graphic for a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Photo shows a person typing on a laptop while seated on a couch. A green banner reads “Parliamentary Friends of ME/CFS – Email your MP.” Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/NfBan
Let’s fill the room. 💙
#FairGoForME #MECFSAllianceAustralia

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Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Three speaker headshots are shown with names: Prof Michael Kidd AO, Hon Rebecca White MP and Anne Wilosn. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Three speaker headshots are shown with names: Prof Michael Kidd AO, Hon Rebecca White MP and Anne Wilosn. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

5 days to go until #MECFSAllianceAustralia and co-chair Dr Mike Freelander MP host the the first, 2026 meeting of the Parliamentary Friends of ME/CFS group.

🗓️ Tuesday, 10 March 2026
⏰ 11:00am – 1pm AEDT
📍Online via Zoom
🔗 zurl.co/ByTGc

#fairgoforme

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Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/DG4nc

Let’s fill the room. 💙

#FairGoForME #MECFSAllianceAustralia

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Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Three speaker headshots are shown with names: James Dunn, Sandra Goodyer and Dr Emma Tippett. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Three speaker headshots are shown with names: James Dunn, Sandra Goodyer and Dr Emma Tippett. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

There is still time to register to join #MECFSAllianceAustralia and co-chair Dr Mike Freelander MP at the 2026 meeting of the Parliamentary Friends of ME/CFS group.

🗓️ Tuesday, 10 March 2026
⏰ 11:00am – 1pm AEDT
📍Online via Zoom
🔗 zurl.co/xRiMi

#FairGoForME

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Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Four speaker headshots are shown with names: Dr Mike Freelander MP, Dr Monique Ryan MP, Prof Peter Schofield AO, and Henry Barker. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Blue promotional graphic titled “Parliamentary Friends of ME/CFS Speaker Announcement” with a “Register Today” banner showing Tuesday 10 March 2026 and times 11:00 AM AEDT and 1:00 PM AEDT. Four speaker headshots are shown with names: Dr Mike Freelander MP, Dr Monique Ryan MP, Prof Peter Schofield AO, and Henry Barker. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Join #MECFSAllianceAustralia and co-chair Dr Mike Freelander MP at the first, 2026 meeting of the Parliamentary Friends of ME/CFS group.

🗓️ Tuesday, 10 March 2026
⏰ 11:00am – 1pm AEDT
📍Online via Zoom
🔗 zurl.co/fyADw

#FairGoForME

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Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

Graphic promoting a “Parliamentary Friends of ME/CFS Meeting” with hashtag #FairGoForME. Three speech bubbles clipped to a clothesline read “We”, “need”, “you” in blue, red and green. A banner says “Parliamentary Friends of ME/CFS Meeting – Email your MP”. Logos along the bottom include Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia.

📢 #MECFS needs political attention - and MPs need to hear from us. Email your MP (2 mins!) and urge them to attend the Parliamentary Friends of ME/CFS meeting on 10 March.
Take action 👉 zurl.co/UFRXm
Let’s fill the room. 💙
#FairGoForME #MECFSAllianceAustralia

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Invisible Illness @SBS Insight on Tuesday 20 May 8.30AEST featuring patients, experts and carers.

#MyalgicEncephalomyelitis #MECFS #LongCovid #Fibromyalgia #POTS #FairGoForME

facebook.com/share/v/1DVL...

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2025 Election Feedback: #FairGoForME

Share your views on the first joint ME/CFS election campaign here: vist.ly/3n4eszb. Hurry, survey ends midnight, May 18.

#MECFS #longCOVID #FairGoForME #AusPol #AusVotes2025

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Congrats Mark Butler on Health Minister reappointment & new Disability & NDIS role. Appreciate $1.13m ME/CFS allocation. Looking forward to collaboration & congrats to Jenny McAllister & Tanya Plibersek on appointments. Ready to work for ME/CFS community. #FairGoforME.

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2025 Election Feedback: #FairGoForME

Share your views on the first joint ME/CFS election campaign here: vist.ly/3n46vv4. Hurry, survey ends midnight, May 18.

#MECFS #longCOVID #FairGoForME #AusPol #AusVotes2025

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Today is #InternationalMECFSAwarenessDay

As our new government prepares to start its work, we remind the Prime Minister that, on election night, he promised that there would be No One Left Behind.

Help us ask him to give a #FairGoForME by leaving a comment on his FB page!

m.facebook.com/AlboMP?

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IT’S NOT TOO LATE!
Urge Lib/Nat & ALP to commit! Tag #AusVotes2025 candidates: will they support a #FairGoForME ? Find your electorates & candidates via the link: emerge.org.au/2025-election-strategy

#MECFS #longCOVID #AusPol

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Thanks to all who joined our virtual meetup with Gilmore's election candidates! Video of the event is now live: vist.ly/3m2v8t6. Appreciate the candidates' support for ME/CFS, long COVID, fibromyalgia community. Keep pushing for a #FairGoForME! 🤝

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Many people with ME/CFS and long COVID struggle to access the NDIS and DSP. This must change! Visit your candidates' page today and tell them you will vote for the candidate who will give people with #MECFS and #longCOVD a #FairGoForME #AusVotes2025 #AusPol

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25% of ME/CFS patients and many long COVID patients are housebound or bedbound. They need better care! Visit your election candidates' page today and tell them you will vote for the candidate who will give people with #MECFS and #longCOVD a #FairGoForME #AusVotes2025 #AusPol

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Thank you to the Greens for promising a #FairGoForME 🙌

No commitments yet from Labour? 🤔

#MECFS afflicts growing numbers of Australians since Covid but remains shockingly underfunded and unrecognised.

@chrispicton.bsky.social @markbutlermp.bsky.social

#Auspol #MECFS #LongCovid

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The Greens support all our #MECFS #longCOVID election commitments! Research investment, clinical education, healthcare and disability support access. Thank them and urge all parties to do the same. Tag your local candidates! #FairGoForME

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Many doctors still don’t understand #MECFS and #longCOVID, leading to misdiagnosis and mistreatment. Tag your local #AusPol #AusVotes2025 candidates in this post today and demand real change! Remind them we want a #FairGoForME!

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@peterkhalilmp.bsky.social
@samantharatnam.bsky.social
#MECFS is seriously underfunded. Patients have been neglected and dismissed for decades.
There is bloc of >5000 voters in Wills w #LongCovid or #MyalgicEncephalomyelitis & families looking for commitments
We want a #FairGoForME
@greens.org.au

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ME/CFS research receives far less funding than other chronic illnesses.

Tag your election candidates and ask them about their commitments to help people with #MECFS and #longCOVID.

Remind them you're asking for a #FairGoForME and this will decide your vote! #AusVotes2025

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Federal Election 2025: Let’s Be Heard

We’ve launched our #FairGoForME election campaign, and we need your help! We’ll post twice a week from now until the election—each post will spotlight a key theme or priority for #MECFS and #longCOVID. Like, tag, & share our posts & spread the word! #AusPol

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If you live in a marginal seat, your voice is crucial! Help us get a #FairGoForME!

Like and follow your local candidates. Leave a comment asking what they will do for #MECFS and #longCOVID.

Remind them their commitments will decide your vote!

vist.ly/3mzbdca

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Bluesky

Ppl w #MEcfs & #LongCovid in Chisholm face disbelief and dismissal from health providers who lack training in the management of our conditions. There is a paucity of treatments & biomed research. Is this because 80% of us are women❓ We need a #FairGoForME @markbutlermp.bsky.social

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Now is the time to get election commitments for ME/CFS & long COVID! Image shows a person’s hand depositing a ballot, which reads #FairGoForME, into a ballot box

Now is the time to get election commitments for ME/CFS & long COVID! Image shows a person’s hand depositing a ballot, which reads #FairGoForME, into a ballot box

Election candidates must commit to change for the #MECFS & #longCOVID community. Ask for their election commitments today!

Leave a comment on this post sharing why you need more from the next government & tag your local candidates.

Tell them you want a #FairGoForME!

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Election candidates must commit to change for the #MECFS & #longCOVID community. Ask for their election commitments today!

Leave a comment on this post sharing why you need more from the next government & tag your local candidates.

Tell them you want a #FairGoForME!

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The Australian election is on May 3
A 5 stage social media campaign has been launched to extract commitments from candidates
Pls help by amplifying social media posts 🙏🏽
#MyalgicEncephalomyelitis #LongCovid #FairGoForME
#pwME #AusVotes25 #MEcfs
@traceyspicer.bsky.social @sophiescott2.bsky.social

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