Latest posts tagged with #FightForLife on Bluesky
There’s still time! 🙌
Join us in completing a few quick and easy activities for Rare Disease Day. Every small action makes a big difference. Don’t wait… jump in today!
LEARN MORE: curegm1.org/rare-disease-day
#curegm1 #hope #rarediseaseday #fightforlife #charity
“Maintaining treatment has become a daily act of resistance.”
🇺🇦 Ukraine — implemented by 100% Life with our support, the #FightForLife project helps clinics keep delivering HIV care despite the war, reaching displaced people and other vulnerable groups.
More info 👉 urlr.me/KcefDv
« La continuité des traitements est devenue un acte de résistance. »
🇺🇦 Ukraine — Mis en œuvre par 100% Life avec notre soutien, #FightForLife soutient les cliniques qui maintiennent les soins VIH malgré la guerre, auprès des populations déplacées et vulnérables.
Lire le projet 👉 urlr.me/JgvSaj
sent to #concentrationcamps on U.S.soul? Where are those who #fightforlife for the #unborn but turn their backs on the #immigrants who come to #america for a better chance & a better life? Where are those who claim to #accept all but deny #rights to the #lgqtb community & anyone #nonwhite?
Did you know that the majority of rare diseases lack a dedicated patient advocacy group? This leaves many individuals navigating diagnosis, care, and research without a community.
MORE: curegm1.org/take-action
#curegm1 #raredisease #fightforlife #hope #change
“Our children deserve the same chance at life. They deserve hope for a future without pain.” -GM1 Parent
Your support matters tremendously: curegm1.org/donate
#curegm1 #hope #raredisease #fightforlife #charity #give
« La continuité des traitements est devenue un acte de résistance. »
🇺🇦 Ukraine — Mis en œuvre par 100% Life avec notre soutien, #FightForLife soutient les cliniques qui maintiennent les soins VIH malgré la guerre, auprès des populations déplacées et vulnérables.
Lire le projet 👉 urlr.me/JgvSaj
Thank you! 😊 INCREDIBLE News! We urgently need your support — please give now and we can reach $100K in donations for Giving Tuesday!
curegm1.org/donate
#curegm1 #raredisease #charity #fightforlife #give
youtube.com/shorts/3GuaY...
Families impacted by GM1 need our help. There are no approved treatments, and all those suffering from this fatal disease are running out of time. We have a $30K match through Giving Tuesday 12/2.
GIVE: curegm1.org/donate
#curegm1 #raredisease #donate #charity #fightforlife
💙 You can help 💙
Families affected by GM1 gangliosidosis are running out of time — but together we can fund a treatment.
Learn more and take action: curegm1.org/ert-project
Donate today and make twice the impact. curegm1.org/donate
#curegm1 #charity #raredisease #give #fightforlife
Let's finish the year strong and contribute to meaningful progress and change for all those suffering due to GM1 gangliosidosis.
Every bit counts and matters. Contact us if you have questions!
CONTACT: curegm1.org/contact
#curegm1 #raredisease #fightforlife #giving #charity
The reality of a complex neurological disease is that combination therapy may be required to address the disease and that different symptoms present at different times during the course of the condition.
LEARN MORE: curegm1.org/ert-project
#curegm1 #raredisease #hope #fightforlife #charity
"the internet" are mostly bots - human or software - who are not interested in truth, they're only interested and designed to spread confusion.
Not sure what their endgame is other than it leads to death and destruction. We cannot tolerate such a world view.
#WorshipLife #ProtectLife #FightForLife
Our work to save and change lives requires long term commitment and ongoing support. There is still no approved treatment for GM1 despite progress in clinical trials.
GIVE: givebutter.com/iXRo17
MORE: curegm1.org/do-it-for-gm1
#curegm1 #raredisease #hope #fightforlife #give #charity #patients
We are sending our warmest birthday wishes to Kiaan and Batul. Thank you to all those in your community for choosing to support Cure GM1's critically important work.
#curegm1 #raredisease #fightforlife #charity #birthdays
"We turn to you today to support the Cure GM1 Foundation. GM1 is so rare that it receives little funding, making every contribution critical to advancing research and supporting families." -Batul's family
#curegm1 #hope #raredisease #fightforlife #give
www.aol.com/cancer-death... #CancerAwareness #BeatCancer #CancerSupport #HealthTech #FightForLife #Medsky #CancerCommunity #CancerFighters #EndTheCancerEpidemic #FightForLife #Disability
We are currently funding our enzyme replacement project on an ongoing basis.
Will you join us in Sept. to make a difference ?
LEARN MORE: curegm1.org/do-it-for-gm1
#curegm1 #hope #community #fightforlife #donate #nonprofit
We have a huge variety of speakers! Looking forward to hearing about surf therapy, compassionate use, VNS control for seizure management and more.
Two days left to register: curegm1.org/conference
#curegm1 #raredisease #hope #community #caregiving #fightforlife
@governor.ca.gov @aoc.bsky.social @sanders.senate.gov @govpritzker.illinois.gov I want to see firebrand ball busting dems like you in more offices all over US. I don't want to waste time getting consensus for reforms. I want to shove it down their throats like they have done. #bluewave #FightforLife
Every little bit counts and matters. Together we can contribute to meaningful change. Also, Charity Miles can be used whenever you choose.
MAKE A PLAN FOR OUR SEPT FUNDRAISER: curegm1.org/do-it-for-gm1
JOIN: curegm1.org/fundraise-with-the-charity-miles-app
#curegm1 #hope #fightforlife #give
We are thrilled to share updates regarding our team at the Cure GM1 Foundation. Thank you to Gouri and Megan, two wonderful volunteers who are making a difference for our cause. See curegm1.org for their bios.
#curegm1 #raredisease #nonprofit #community #hope #fightforlife #give #charity
We are incredibly thankful to all the speakers for our annual hybrid conference! There's still time to join. Don't miss out on this incredibly unique and important meeting!
REGISTER and MORE INFO: curegm1.org/conference
#curegm1 #raredisease #hope #community #genetics #patients #fightforlife
youtube.com/shorts/PakxB...
Surviving Four Deaths: Ben Askren's Double Lung Transplant
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Linktr.ee/562AlexD
#BenAskren #LungTransplant #RecoveryJourney #MMACommunity #WrestlingSupport #HealthBattle #Resilience #Inspiration #OvercomingOdds #CommunityStrength #FightForLife #HealthUpdate #MMA
Today and all days, may we recommit ourselves to hope and a brighter future. Happy 4th!
#curegm1 #hope #raredisease #community #families #fightforlife
We're excited to announce our annual community fundraiser for the year Do It for GM1 (formerly Move for GM1). Mail info@curegm1.org with questions and your plans. Please note the change to the date.
JOIN US: curegm1.org/do-it-for-gm1/
#curegm1 #hope #raredisease #fightforlife #charity
The time is now. The vote in the Senate could be in the first week of July.
We must share the importance of Medicaid to those with rare diseases and disabilities.
CONTACT CONGRESS: everylifefoundation.org/rare-advocat...
#curegm1 #raredisease #takeaction #advocacy #fightforlife
Possible treatments for GM1 gangliosidosis already exist. Yet much of the the research is shelved for this fatal neurological disease.
TAKE ACTION: curegm1.org/take-action
#curegm1 #raredisease #hope #fightforlife #genetics #medicine
To receive the full board job description and application, please email info@curegm1.org if you are interested in learning more about the application process and how to advance our mission together.
#curegm1 #nonprofit #raredisease #fightforlife #research #funding #charity #volunteers #boards
Real Londoners know to challenge injustice you need to fight system not each other. #DieIn @pollywiseman.bsky.social #FightForLife #TateModern now. Campaign against #DWP #DisabilityCuts. Spend more time writing to get benefits for #MECFS than I do my book #LetsGuide #UniquelyLondon #ALondonersLife3
