Latest posts tagged with #LADAOrg on Bluesky
#LADAorg is honored to sponsor a table at the LRA Gala to recognize people with #lupus for their grace, dignity and courage while supporting #lupusresearch.
@lupuschat.bsky.social @annezab.bsky.social @caringforlupus.bsky.social @masonicresearch.bsky.social @lupusresearch.bsky.social
The #LADAorg Team is thrilled to attend and exhibit at #RNS2025 in beautiful San Antonio to network, learn, share resources and elevate the #PatientVoice in Rheumatology! Kudos to RNS President Teri Puhalsky and Executive Director Sadie Larson for hosting the Annual Conference. #Lupus
Kudos to @whitneywarriors for doing an amazing job presenting at the #ACR25 #PatientPerspective session. By sharing her own challenges and solutions is key to advancing better care. #LADAorg #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @masonicresearch.bsky.social
Absolutely adore @ireneblanco.bsky.social, such an amazing person and one of my favorite rheumatologists. Thank you for stopping by & bringing your mentee who also happens to be my old rheumy by the lupus community booth at #ACR25!
#LADAorg #LupudChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
So excited about Dr. Daniel Whibley’s presentation at #ACR25 on Cognitive Dysfunction and how it Manifests in those living w/Fibromyalgia. He shared several ways to conduct baseline cognitive tests.
cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Absolutely thrilled to catch this #ACR25 session on the Cognitive Function in Rheumatic Diseases. The first presentation was given by, patient advocate, Mary Alore sharing her experience with brain fog.
Cc: @ladaorg.bsky.social @lupuschat.bsky.social #LADAorg #LupusChat
Grayson Schultz encourages providers to lead w/empathy, how to address discrimination, & why LGBTQIA+ representation is needed in research
🔹 adopt a trauma-informed care mindset
🔹 avoid assumptions & stereotypes
🔹 engage in ongoing education
🔹 mistakes occur, apologize/move on
#ACR25 #LADAorg
Learning a lot in an #ACR25 session led by @ireneblanco.bsky.social & hearing Patient Advocate, Grayson Schultz speak on the many barriers LGBTQIA+ individuals face while trying to access healthcare & how to navigate rheumatology care as an LGBTQIA+ patient. #LADAorg #LupusChat @ladaorg.bsky.social
Surprise @lupuschat.bsky.social spotting in Dr. Martha Delgado’s #ACR25 session! An FYI, #LupusChat gave a presentation at the NIH NIAMS annual clinical research event in both 2019 and 2024 on the importance of utilizing digital tools to build communities and advance health literacy. #LADAorg
Dr. Martha Delgado gave a great #ACR25 presentation focused on improving patient participation in clinical trials in Latino communities. She shared barriers for both patients & providers as well current efforts to remove barriers.
cc: @ladaorg.bsky.social #LADAorg @lupuschat.bsky.social #LupusChat
Patient experience researcher & advocate extraordinaire, Monique Gore-Massy gave a great presentation at #ACR25 on the importance of sexual health being an essential part of patient care! #LADAorg #LupusChat
cc: @ladaorg.bsky.social @lupuschat.bsky.social
Dr. Jillian Rose is giving a remarkably informative presentation on Sexual Health & Rheumatic conditions.
🔹 90% of women w/SLE have reduced arousal
🔹56% of women w/Sjogren’s experience vaginal dryness
🔹89% of men w/Systemic Sclerosis experience erectile dysfunction
#ACR25 #LADAorg #LupusChat
Up early at #ACR25 sitting in on sessions about sexual & reproductive health and rheumatic conditions. Sessions are being led by Dr. Lisa Sammaritano, Dr. Jillian Rose, and Patient Advocate extraordinaire, Monique Gore-Massy. #LADAorg #LupusChat
#LADAorg is appreciative of our strong partnerships with our patient advocacy colleagues at the #Lupus Community Booth #2121 at #ACR2025. Kudos for collaborating to improve lives! @lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @infusioncenter.bsky.social
A multicolored archway designating a Hall of Posters. There are people walking under it
Spending some time in the Poster Hall at #ACR25! I’m excited to see the results of several studies as well as the Patient Prospectives posters.
#LADAorg #LupusChat
@ladaorg.bsky.social
@lupuschat.bsky.social
Two ladies standing in front of a lupus community booth
Representing @lupuschat.bsky.social at the lupus community booth at #ACR25 with @ladaorg.bsky.social! Stay tuned as I share updates on new and intriguing studies on lupus and rheumatic conditions!
Please visit our community booth in the Exhibit Hall at booth 2121! #LADAorg #LupusChat #ACR25
We are excited to attend #ACR25 to network, learn and share our resources. Visit us at the #Lupus Community Booth # 2121. #PatientVoice
@lupuschat.bsky.social @michiganlupus.bsky.social @infusionaccessfoundation.org @acr25.bsky.social @rheumepi.bsky.social @rheumcat.bsky.social
#LADAorg
BTW, 80 % or more of the #SLE #Lupus patients get lupus nephritis, according to #LADAOrg, I belong to the other 20 % or less who haven´t gotten it so far, my next bloodwork rfor kidney values and so on is next Friday at 8 am German time.
The #LADAOrg Team is excited to be here at #BIO2025 to bring the #PatientPerspective and partner with other stakeholders to advance global #Innovation that improves lives. Kudos to BIO for developing a great program and our dear friend Paul for being a good sport! 💜
The #LADAOrg Team is excited to be here at #BIO2025 in Boston to bring the #PatientPerspective and partner with other stakeholders to advance global innovation that improves lives. Kudos to BIO
for developing a great program and our dear friend Paul for always being a good sport! 💜
#LADAorg
Kidney or Liquid Biopsy for Assessing Lupus Nephritis Activity
Andrea Fava
John Hopkins University School of Medicine, Division of Rheumatology, Baltimore, United States of America
@ladaorg.bsky.social
@lupuschat.bsky.social
#Lupus2025
#Lupuschat
#Lupus
Kudos to @zahitouma.bsky.social and the #LUPUS2025 organizers for hosting a wonderful Gala event last evening while the #LADAOrg team enjoyed the food, music and networking. #Lupus
@lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @alhkim.bsky.social
#LADAOrg is honored to sponsor #LUPUS2025 & bring our mighty team to learn, engage, & share insights.
@lupuschat.bsky.social @caringforlupus.bsky.social @annezab.bsky.social @tiffanyandlupus.bsky.social
Kathleen Arntsen,
Dina Thachet, Kaamilah Gilyard, Whiney Carter, David Arntsen,
Autumn Austin
Awesome session led by Dr. Meggan Mackay on Cognitive Impairment in SLE
🌀 40% of cSLE patients met criteria for cognitive dysfunction
🌀Methods for measuring CI (cognitive impairment) is needed
🌀 Harmonising neuroimaging in Cl in SLE research would be beneficial
#LUPUS2025
#LADAOrg
#LupusChat
#LADAorg
Dr. Victoria Werth is a Professor of Dermatology and Medicine at the Perelman School of Medicine at the University of Pennsylvania
@ladaorg.bsky.social
@lupuschat.bsky.social
#Lupus2025
#Lupuschat
#Lupus
#LADAorg team for Ready for Day 3 of #LUPUS2025 💜🦋💜
Meet-the-Professor Session: Refractory Skin Manifestation
Dr. Cheryl Rosen is a dermatologist at Toronto Western Hospital.
@ladaorg.bsky.social
@lupuschat.bsky.social
#LUPUS2025
#Lupuschat
#Lupus
#LADAorg
Clinical Scientific Session: Update on Lupus Nephritis, Novel Approaches in LN
"It is important to treat the kidney Holistically"
@ladaorg.bsky.social
@lupuschat.bsky.social
#Lupus2025
#Lupuschat
#Lupus
Although #lupus is more severe and more prevalent in non-white populations, recruitment of minority patients for #clinicalresearch has proven to be particularly challenging, demonstrating the urgency of industry investment to address the issue. #LupusAwarenessMonth #LADAOrg
Although #lupus is more severe and more prevalent in non-white populations, recruitment of minority patients for #clinicalresearch has proven to be particularly challenging, demonstrating the urgency of industry investment to address the issue.
#LupusAwarenessMonth #LADAOrg @lupuschat.bsky.social
🔹Dr. Perez shares which medications are safe for treatment and male fertility in SLE 🔹 @eular_org has released 2025 guidelines for male patients w/SLE looking to conceive.🔹pain, guilt, fatigue, libido can impact male sexual health.
#LUPUS2025 #LADAOrg
@ladaorg.bsky.social
@lupuschat.bsky.social
Sitting in on a session that centers Fertility and More - Navigating Male Reproductive Health in Lupus
There seems to be no available data on fertility or family planning for men with lupus. So the presenter is sharing data for men w/ arthritis.
#LUPUS2025
@ladaorg.bsky.social #LADAOrg
#LupusChat
