Latest posts tagged with #SLE on Bluesky
bsky.app/profile/mari...
I have zero idea where the pains come from, I only do the gyms with my arms, not with my legs, eventually I tap with my feet a bit during the gyms while moving my harms, but I do not strain my upper legs at all.
Might be an #SLE #Lupus symptom.
😭😭😭
I woke up at 3.41 am German time with horrible pains on the backside of my left thigh (that feel as if I had a muscle strain), so I got up at 4.15 am yet, showered and so on. Might be a new #SLE symptom, day # 4.
my.clevelandclinic.org/health/disea...
@clevelandclinic.bsky.social
#WeekendRead! #ImmunometabolismPower! #EveryCellIsAnImmuneCell! Ji, Zhang, Lu, Liu &co show @nature.com that infection, irradiation, or lupus #SLE induce a mevalonate intermediates that drives IL6 & CCL20 by #keratinocytes via NFAT to potentate antibody production!
bsky.app/profile/mari...
After a 10-15 minutes long massage with my infrared massage stick from Aldi yesterday it´d gotten a little better, I´ll do that again when I´ll go offline later.
It might be an #SLE symptom.
@clevelandclinic.bsky.social
bsky.app/profile/mari...
Only if I´m lying in my bed at night I get some pain relief, the oxycodone pills (1 every 12 hours) & the novaminsulfone drops (40 drops before I go asleep) eventually work then, but only then.
#SLE sucks.
@clevelandclinic.bsky.social
bsky.app/profile/mari...
I just read that #SLE can also cause #BrainFog, I´m a longtime #SLE survivor since 1992 too.
@clevelandclinic.bsky.social
A new review paper from City University of Hong Kong on #autoimmunediseases and #machinelearning has been published in TAI (ISSN: 2982-3439). You can access the full text for free by following the link.
www.sciltp.com/journals/tai...
#T-cell #systemiclupuserythematosus #SLE #immunerepertoire
‼️ Although #lupus nephritis remains one of the most serious complications for #SLE patients, early diagnosis and adequate treatment make remission possible in many cases.
✅ To achieve this, it is crucial that patients do not skip their routine check-ups.
#WorldKidneyDay
🚨 It is estimated that about 40% of #SLE patients will suffer from #lupus nephritis: one of the most dangerous & frequent complications of SLE- Carmona L. et al.
✅ Routine check-ups and early detection of symptoms are key to an early diagnosis.
#WorldKidneyDay
🔬 X-linked protein SMC1A drives inflammatory gene activity in lupus monocytes—especially in women—shedding light on sex differences in SLE and pointing to new chromatin-based therapies. #SLE #Epigenetics #Immunology
www.imbb.forth.gr/en/news/show...
New insights in lupus care are emerging, from better monitoring to more patient-centered treatment decisions. Learn what patients and providers should know about lupus nephritis and why early action matters.
➡️ Read more: zurl.co/NJCn9 💜
#AiArthritis #Lupus #LupusNephritis #SLE #LupusAwareness
Calories and Aging: Cutting Back Can Slow Age’s Creep.
My only hope to ever gain some weight, due to #SLE I´m chronic underweight, but if you get older your metabolism normally slows down. I´m 55 now.
health.clevelandclinic.org/calories-and...
@clevelandclinic.bsky.social
Could a Thyroid Condition Cause Hair Loss?
I´d almost had a bald head for months due to #SLE in the 2000s & only left my home with baseball cap, some day the hair grew back on its own.
www.youtube.com/watch?v=2ElT...
@clevelandclinic.bsky.social
Is It Possible To Increase Your Metabolism?
Mine IS on HIGH-SPEED due to #SLE, so I´ve been chronic underweight ever since the #Lupus had broken out in 1992 yet. I wish it was slower...
health.clevelandclinic.org/can-you-boos...
@clevelandclinic.bsky.social
Wake Up Fresh: How To Stop Morning Breath.
I floss after all 3 meals, but from #SLE & #Scleroderma I always have some white plaque on my tongue, so I brush my teeth before and after breakfast. (NO fungus)
health.clevelandclinic.org/morning-breath
@clevelandclinic.bsky.social
The Spring 2026 Lupus UK research grant round is now open!
Applications must be received by Lupus UK before 1pm on Thursday 2nd April 2026.
For more information and to download the related documents, visit: https://lupusuk.org.uk/grants/
#Lupus #LupusResearch #SLE #ResearchGrant #Research
The Truth About Melatonin Addiction.
I wouldn´t take it, hormons can trigger #SLE #Lupus flares. Diane35 estrogens made the Lupus break out in 1992, I´d had an estrogen defiency.
health.clevelandclinic.org/melatonin-de...
@clevelandclinic.bsky.social
🥇 Honoured to receive the Best Abstract Award at the European Lupus Meeting in Lisbon 🇵🇹 for our abstract “Functional iron deficiency drives metabolic reprogramming in classical monocytes in #SLE.”
Grateful to an amazing team & the patients who make this research possible
Here’s How Often You Should Really Weigh Yourself, Say Expert Doctors.
As chronic underweight #SLE patient I have to weigh myself weekly, to recognize an eventual #Lupus flare early enough.
www.thehealthy.com/weight-loss/...
😍 Know someone newly diagnosed with #SLE #lupus? Or someone who is unsure how to take the best care of their lupus? Share the link to my article on this topic, which gives practical advice on what to do and I explain in simple terms "What is Lupus"
www.lupusencyclopedia.com/how-to-succe...
bsky.app/profile/mari...
Ich hätte mit dem Gutschein ja eigentlich lieber ein Buch über #SLE oder über #Autoimmunkrankheiten allgemein bestellt, aber unter 25 € oder so gibt´s da keine. Dann halt den lustigen Schlüsselanhänger für den Rucksack...
" #Obinutuzumab ( #Gazyva ) appears set to add systemic #lupus erythematosus ( #SLE ) to its list of approved indications, as results from a phase III trial showed it was significantly more effective than placebo, with no new safety concerns.": buff.ly/WWFikk5
via @medpagetoday.com
#BCell #MedSky
#MedNews - Patients with #SLE treated with #belimumab monotherapy have similar disease control, flare, and treatment response rates as those given the drug in combination with immunosuppressant therapy.
Full story 👉 buff.ly/RgKk2Ri
#RheumSky #Lupus
The 10 Worst Ways To Lose Weight.
The very worst one is to get #SLE, ever since the #Lupus broke out in 1992 I´ve been chronic underweight, like about 25 % of all #SLE patients are...
health.clevelandclinic.org/the-10-worst...
@clevelandclinic.bsky.social
FDA has granted Fast Track designation to J&Js nipocalimab for use in #SLE based on the results of a Phase 2b JASMINE study in which nipocalimab demonstrated reduction in lupus disease activity and potential for steroid sparing www.jnj.com/media-center...
6 Benefits of Breast Massage (and How To Get Started Today).
I´ve never been pregnant, I experienced menopause, aged 23, in 1994 yet due to #SLE.
I have other edema (legs/feet/belly).
health.clevelandclinic.org/breast-massage
@clevelandclinic.bsky.social
bsky.app/profile/mari...
The washcloth for my butt´s already ready, I think I´ll have to run for the toilet later if I´m not completely constipated from the oxycodone (opiate) pills. Due to #SLE I wasn´t allowed to take ibuprofen anymore years ago. Opiates constipate.
CDC Death certificate data showed btw 2018–23, 14,936 #SLE deaths (43% w/ SLE as the underlying cause). Mortality rate per million: females 5.97 > males 1.16, blacks 10.7. Causes of death:heart disease (0.93), cancer (0.56), COVID-19 (0.51). acrjournals.onlinelibrary.wiley.com/doi/10.1002/...
