webcam skiing Alps
❄ SNOW CONDITION Mals, Trentino Alto Adige : lower 15 - 28cm, upper slopes 30cm. Lifts open 3 of 3. Temperature -1/5°C . Freezing level 1929m. https://skiweather.eu/go/mals/712 #skiweather #mals
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#MALS
Latest posts tagged with #MALS on Bluesky
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Posts tagged #MALS
Doctors used to think that you either had MALS or SMAS. It was considered impossible to have both. But I think we have a few patients in our community who prove that wrong.
#Medianarcuateligamentsyndrome #mals #chronicillness #malsawareness #malssupport #advocating #advocacy #malsfoundation
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12 hr fasting for an early & long morning drive to Metro hospital at 5:30am. Checking for scar tissue or any aneurysms from my #MALS surgery a few months ago. Keep going into runs of tachycardia anytime I wear a bra or have pressure in the diaphragm area where my aorta was getting crushed.
#spoonie
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What were some of the expenses you dealt with during your MALS Journey?
#Medianarcuateligamentsyndrome #mals #chronicillness #malsawareness #malssupport #advocating #advocacy #malsfoundation #nonprofit #malswarrior #malsadvocacy #spoonie #malsspoonie #vascular #vascularcompression
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Did you have to bring MALS up to your doctors?
#Medianarcuateligamentsyndrome #mals #chronicillness #malsawareness #malssupport #advocating #advocacy #malsfoundation #nonprofit #malswarrior #malsadvocacy #spoonie #malsspoonie #vascular #vascularcompression
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Some people can't remember the last time they experienced pain while others can't remember the last time they had a pain free day.
#Medianarcuateligamentsyndrome #mals #chronicillness #malsawareness #malssupport #advocating #advocacy #malsfoundation #malswarrior #spoonie #malsspoonie
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What term did your physician use when they diagnosed you with MALS?
#Medianarcuateligamentsyndrome #mals #chronicillness #malsawareness #malssupport #advocating #advocacy #malsfoundation #nonprofit #malswarrior #malsadvocacy #spoonie #malsspoonie #vascular #vascularcompression
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MALS symptoms can look like a multitude of different conditions which can send doctors on a wild goose chase.
Plain Text:
If your symptoms don’t fit one specialty, that’s a clue about biology, not psychology.
#Medianarcuateligamentsyndrome #mals #chronicillness #malsawareness #malssupport
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webcam skiing Alps
❄ SNOW CONDITION Mals, Trentino Alto Adige : lower 33 - 40cm, upper slopes 50cm. Snow quality 5. Lifts open 3 of 3. Temperature -6/1°C . Freezing level 1401m. https://skiweather.eu/go/mals/712 #skiweather #mals
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Yeap, the procedure to fix the complication from Ziconotide procedure has definitely caused an issue with my lower back. Gotta love when fixing one issue causes another. 🫠👍
Happy MALS (Median Arcuate Ligament Syndrome) awareness month BTW. 🩵
#ChronicIllness #MALS
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Emo Woof x3 #art #digitalart #furry #furryart #sfw #emo #edgy #piercings #alt #alternative #altfashion #wolf #canine #choker #spikes #jeans #skinny #skinnyjeans #shag #emohair #mals #fang #collar #blue #rough
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I completely forgot to post this. 2025 came with multiple surgeries, with one being huge and saving my #life My #mals #surgery came with a lot of risks, but I survived! 😍🖤 It was such a storm ⛈️ that for #halloween I decided to be the #rainbow after the #storm ☔️🌈
#Vegas #photo #adventure #journey
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I have a love/hate relationship with food. Eating makes me feel nauseated. But so does not eating. UGH. #MALS #hEDS #RareDisease
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(Big sigh!)
Although not cancer…have one of my kiddos that really needs someone to advocate for whatever she has (she thinks it is #MALS) as my most kindest of peoples, most fiercest adventurer, most resilient person that i know is also in need of resolving whatever “this” is.
This xkcd hits hard!
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A patient in India who was diagnosed with comorbid #MALS, #PNH, and #AplasticAnemia has undergone successful surgery that involved robotic release of the median arcuate ligament.
Read more: https://bit.ly/47IlFF1
#RareDisease #MedSky #RareSky
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Still here. Day 3 in the hospital. 🤓 Today had been full of some complications and irrational & erratic blood work. My body is arguing with itself and I’m not sure which side is winning. 🙄🤪
#MALS #Lupus #dysautonomia #cancersurvivor #life #journey
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If only i could turn the sun off and stand barefoot on the ground as the moonlight shines upon my soul. - Kandi
#depression #recovery #meditation #life #battles #mals #dysautonomia #Lupus #Surgery
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This last month I survived a major, life saving surgery (9 days ago). Watched the track I announce at be transformed & have Nitro cars. Took my bestie to Wheeling, WV.👻 Went on a mom & daughter trip to Detroit, MI.🖤 Visited ancient Serpent Mound. 🐍 Hosted a big event!
#IHRA #dragracing #travel #MALS
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Soooo...to make matters worse with the abdominal pain, I got a #MALS AND #IBS-C flare! I assume I got the later because I'm in so much pain and also because of the croissant (gluten) I had the other day. I don't know how I'm going to sleep!
#Spoonie
#NightOwlSky
#LateNightSky
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This thread is basically a train of my health conditions!
It's exciting and depressing that the connections between all of them are being studied and shared more and more.
I have #MECFS #Dysautonomia #EDS #MALS & suspected #MCAS #OCD #ADHD motility issues, c-spine, gastro & more
Did I miss any? 🙃
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A sticker that says hello darkness my old friend. I stood up too fast again.
A sticker of an EpiPen that says I’m probably allergic
Three medical alert buttons. They said EpiPen in bag, medicine in bag, and inhaler in bag.
A five star review for the sticker design I always win at musical chairs. The review says “my friend loved this sticker! It came quickly and was perfect for decorating a laptop.”
Today is the LAST DAY to get 20% off EVERYTHING at Nowhalle.Etsy.com
I’m a #disabled #creator selling buttons and stickers for conditions like #EDS #MCAS #Gastroparesis #POTS #Migraine #MALS #SMAS #CRPS #CerebralPalsy #Epilepsy #FND #EatingDisorders #MentalHealth and MORE!!
#CreatorLift #NEISVoid
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what's not and THIS is not that! He shook his head in full agreeance.
I also discussed following up with my cardiologist/vascular surgeon to discuss the #MALS surgery. It can be extremely aggressive on the body and can have serious consequences but it's also something affecting my quality of life &
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Mountain spring!
#Hiking Holidays in #Mals, #Vinschgau #Italy
Relax with my #peaceful #music
🎶YouTube is.gd/DUYnEP
🎶Spotify is.gd/Rjuact
🎶Bandcamp is.gd/P2wvmk
#photography #photo #nature #flowers #landscapephotography #relaxing #spring #outdoor #outdoors #hike #walk #hiking #dreampop #chill
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LMFAO 😂
Yeah, we saw the strength and might of the US armed forces yesterday, squeaky wheels and all
Trump is Making America a Laughing Stock
#MALS
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🐄Cows need to cool down too!🐄
#Hiking Holidays in #Mals, #Vinschgau Valley, #Italy
Relax with my #peaceful #music
🎶YouTube is.gd/DUYnEP
🎶Spotify is.gd/Rjuact
🎶Bandcamp is.gd/P2wvmk
#photography #photo #nature #landscapephotography #relaxing #spring #outdoor #cow #cows #hike #walk #dreampop #chill
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#Hiking Holidays in #Mals #Vinschgau Valley, #Italy
The daily irrigation.
Relax with my #peaceful #music
🎶YouTube is.gd/DUYnEP
🎶Spotify is.gd/Rjuact
🎶Bandcamp is.gd/P2wvmk
#photography #photo #nature #landscapephotography #relaxing #spring #outdoor #outdoors #hike #walk #dreampop #chill
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Waters Corporation Enhances Empower Software with MALS Detectors for Better Biologics QC #USA #Milford #Waters_Corporation #Empower_Software #MALS
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Rain canceled racing and the baseball game tonight. Apparently I’m supposed to rest. But supposedly there ain’t no rest for the wicked. 🤷♀️😆
#cagetheelephant #lyrics #recovering #procedure #spoonie #MALS #rest
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