#MeCfs

David Davies-Payne

@d2p.bsky.social

3 minutes ago

Flyer from La Trobe University with a prominent red background. Looking for Long COVID patients Have you had a COVID-19 infection and are suffering from unexplained fatigue, respiratory issues, brain fog or muscle pain 3+ months post infection? Are your symptoms worse after exertion? You may be suffering Long COVID. We would love to hear from you! If you live in Victoria and would be willing to donate a blood sample, please contact Dr Sarah Annesley at s.annesley@latrobe.edu.au or Prof Stephanie Gras at s.gras@latrobe.edu.au

🙋🏻‍♀️💪🏼💉🩸
Request for subjects for a research study

- Women aged 18+
- In #Melbourne #Victoria
- With #LongCovid & #MECFS

Looking for a signature in blood platelet microRNAs

One blood sample & questionnaire

Study being run by
- Dr Sarah Annesley
- Dr Daniel Missailidis @danielmissailidis.bsky.social

Fred Rossi

@darthfoo.bsky.social

12 minutes ago

It’s late. Pain dragged me out of sleep again. The storms rolling in turned a headache into a full migraine. This is just a very early Monday morning with #LongCovid #MECFS. #LongCovidAwarenessDay

@lyssinum.bsky.social

1 hour ago

Was ist so schwer daran Masken zu tragen und Luftfilter zum Standard zu machen?
#LongCovid #MEcfs

Mae_DayJ

@maedayj.bsky.social

1 hour ago

$275 needed to meet my goal in time and avoid eviction next week!

$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej

#neisvoid #mecfs #DisCo #spoonie

Science for ME online forum

@scienceforme.bsky.social

1 hour ago

Impaired VLCFA-peroxisome-mediated intestinal epithelial repair causes gastrointestinal sequelae of long COVID — Man Wang et al

#MECFS

ChronicLoaf

@chronicloaf.bsky.social

4 hours ago

"X" is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WomensHistoryMonth #horror #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies

Science for ME online forum

@scienceforme.bsky.social

5 hours ago

Persistent SARS-CoV-2 Spike is Associated with Localized Immune Dysregulation in Long COVID Gut Biopsies — Salim Abraham Soria et al

"We confirmed the persistence of SARS-CoV-2 Spike transcript and protein in the gut tissue of all LC cases and controls tested."

#MECFS

ChronicLoaf

@chronicloaf.bsky.social

5 hours ago

#Pearl just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WomensHistoryMonth #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies

Science for ME online forum

@scienceforme.bsky.social

5 hours ago

Persistent Gut-Immune Axis dysregulation in long-term Post-COVID Syndrome: Insights from a prospective, observational, cross-sectional case-control study — Augustin et al

"we observed persistent viral proteins in the terminal ileum"

#MECFS

Long Covid The Answers

@longcovidanswers.bsky.social

6 hours ago

Dr Jane McKay explains how long COVID ....is as common as diabetes. #longcovid #longcovidtheanswers YouTube video by Long Covid The Answers

Dr Jane McKay explains how long COVID ....is as common as diabetes.
#longcovid #longcovidtheanswers #mecfs

www.youtube.com/shorts/xsG1k...

Tom Kindlon

@tomkindlon.bsky.social

6 hours ago

Identifying post-exertional malaise subtypes: Differentiating physical and mental PEM manifestations — Katherine Tuzzolino et al. "our results indicated that an increase in age is associated with reduced (i.e. less burdened) symptom scores. One explanation for this finding could be that as our sample aged, they had a better understanding of their functional capacity and could better manage the illness and its symptoms." "Notably, we found that the ME/CFS groups were not as burdened by emotional issues compared to the Control group"

Identifying post-exertional malaise subtypes: Differentiating physical and mental PEM manifestations

journals.sagepub.com/doi/10.1177/...

Screenshot from Science for ME weekly update

#MEcfs #PEM #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Katie Holten

@katieholten.bsky.social

6 hours ago

I got COVID on April 22, 2022. Earth Day! Like millions of others, a mild infection developed into #LongCOVID with #Dysautonomia #MECFS. My life is different now, learning to live with disability & invisibility. The world is so beautiful, I mask because I want to see more of it.

#LongCOVIDawareness

Tom Kindlon

@tomkindlon.bsky.social

6 hours ago

The association between hair cortisol levels, Epstein-Barr virus infections and chronic fatigue in adolescents — Berit Elise Bergem Kongsnes et al. "elevated hair cortisol levels prior to EBV infection were not associated with an increased risk of developing chronic fatigue" "Chronic fatigue at six months following acute EBV infection is associated with reduced levels of hair cortisol" "our findings suggest that symptomatic fatigue precedes these physiological changes rather than resulting directly from them."

The association between hair cortisol levels, Epstein-Barr virus infections and chronic fatigue in adolescents

www.tandfonline.com/doi/abs/10.1...

A biopsychosocial theory turns out not to be true

Screenshot from Science for ME weekly update

#MEcfs #CFS #PwME #ChronicFatigueSyndrome

Tom Kindlon

@tomkindlon.bsky.social

7 hours ago

George and his ME/CFS 3-panel cartoon 1st panel: George on his phone in a taxi: "today I'm starting graded exercise therapy at the ME/CFS clinic… Scientific studies prove it helps recovery". Woman talking to him on the phone: "okay… I hope it helps." 2nd panel: you see George walking away from a taxi into the ME/CFS Accredited GET clinic with graded exercise therapy on the window 3rd panel: weeks later George is being pushed in a wheelchair by the woman in the 1st panel walking away from the graded exercise therapy unit. He is angry with a thought bubble of swear words blocked out.

7/

More from a series of comic strips about life as a person with ME/CFS.

"George and His ME/CFS"

🎨Rick Menard

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Long Covid The Answers

@longcovidanswers.bsky.social

8 hours ago

Dr Jane McKay explains how long COVID ....is as common as diabetes. 
#longcovid #longcovidtheanswers #mecfs

Ortwin Pinke

@oldperl.mastodon.online.ap.brid.gy

8 hours ago

Gerade geschaut, informativ nicht nur für Betroffene.

Schade, dass es auf der Seite keine Möglichkeit zum Teilen im #Fediverse gibt.

Wäre doch mal ein Zeichen @maithink

---
MAITHINK X - Die Show
www.zdf.de/play/shows/mai-think-x-d...

#maithink […]

Listige transmutierte Lifestyle-Lurchtochter

@listigerlurch.bsky.social

8 hours ago

Es ist erstaunlich und erfreulich, dass gerade viel zum Thema #MECFS und #LongCovid berichtet wird, aber das Thema Prävention kommt nach wie vor kaum zur Sprache.

Danke für Ihren Einsatz! Es muss noch so viel passieren…

加藤正木@演劇theコウ🍖🎹🐻‍❄️

@bigpolarbear.bsky.social

8 hours ago

今日は案内板の裏をお届けします😃

筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。

#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge

Irish ME/CFS Association

@irishmecfsassoc.bsky.social

9 hours ago

Irish ME/CFS Association - for Information. Support & Research logo Might you be available for interview? Please let us know We will be sending out a press release to local and national media in late April/early May in advance of Dr Bansal's 5 talks (in Cork/Dublin/Galway/Limerick/Sligo) in May. We would particularly like to have local people from (a) Cork city and county (b) Galway (c) The Mid-West (d) the North West, but people everywhere are welcome to reply. You are not committing to anything at this stage but sometimes we need to act fast so it's useful to know who might be available.

If you prefer not to use the link below, you can contact us/Tom Kindlon if you prefer

docs.google.com/forms/d/e/1F...

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis

Tanja Schmittem 📎

@tanjasita.bsky.social

9 hours ago

📣👇🏼 #MECFS #MaithinkX

Science for ME

@s4me.med-mastodon.com.ap.brid.gy

9 hours ago

Our latest News in Brief summary has headlines and links to further reading for ME/CFS, Long Covid, and related news for the week of Mar. 9 - 15:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
Published research […]

@mdmsel.bsky.social

9 hours ago

Auch andere Corona Viren, nicht nur #SARS-Cov2 o #SARS, auch hCOV/Corona gerade bei 14% der Sentinel Proben in Deutschland können #LC und #MECFS verursachen.

Genau wie ein Recht auf sauberes Wasser, sollte es ein Recht auf saubere Luft geben. Wenigstens dort, wo man hin muss. Schule, Krankenhaus..

Emerge Australia

@emergeaustralia.bsky.social

9 hours ago

Blue promotional graphic titled “Parliamentary Friends of ME/CFS Meeting” with a “Watch Today” banner saying "Recording now available". Headshots of all ten speakers. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Thank you to everyone who joined us at Parliament House and online for Fluctuating Energy, Fixed Systems.

Speakers shared powerful experiences and insights on how rigid systems fail people with #mecfs & #longcovid.

Watch the recording: zurl.co/qThaI

#mecfsadvocacy

Science for ME online forum

@scienceforme.bsky.social

9 hours ago

Our latest News in Brief summary has headlines and links to further reading for ME/CFS, Long Covid, and related news for the week of Mar. 9 - 15:

Topics:
News, advocacy, articles
Coming events
Research news and commentary
Published research

www.s4me.info/threads/news...

#MEcfs #LongCovid

Heather Naomi 🧶 🌱

@mysticalmarigold.bsky.social

9 hours ago

At the center of the image is some new purpleish growth on the branch of a blueberry bush. In the background is a brown wired fence and some blurry green of new primrose growth, just waiting to spring tall

Life on the blueberry bush I planted last year. I was super sick at the end of last season and wasn’t able to keep up with watering, so I’ve been worried about some of my dudes returning 🌱

This year I plan on setting up a watering system that won’t rely on my health to function.

#spring #mecfs

Daniela Dirlenbach immer noch Urlaubsreif

@urlaubsreif.bsky.social

9 hours ago

Ich war heute in zwei Leben unterwegs.

Mit meinem gesunden Kind bei ihrem Tanz-Auftritt vor 5000 Menschen. Laute Musik und Lichtshow.

Etwas, das sich ihre ältere Schwester und ihr Papa nur leise und mit Abstand dann zuhause auf dem Handy ansehen können.

2 Welten… 💔

#MECFS #PostCovidKids

Science for ME online forum

@scienceforme.bsky.social

9 hours ago

🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

9 - 15 Mar 2026

@mdmsel.bsky.social

9 hours ago

Bei unserem Kind waren es etwas über zwei Jahre bis zur #MECFS Diagnose. Doch auch mit dieser sollte er „seinen inneren Schweinehund überwinden und sporteln“, was ihn in die Bettlägerigkeit brachte.

Seine Worte damals: Mama, sie verstehen es gar nicht! Ich will ja, aber mein Körper macht nicht mit.

@mdmsel.bsky.social

9 hours ago

Long Covid & ME/CFS – Blackbox der Pandemie Die Pandemie ist für die meisten vorbei, aber für über Hunderttausende in Deutschland ist sie es nicht. Sie leiden unter den Spätfolgen ihrer Corona-Infektion.

Am heutigen #LongCovidAwarenesday macht #MaithinkX eine Folge über die schwerste #LongCovid Form: #MECFS.
Im Durchschnitt dauert es 6 Jahre bis zur ME/CFS Diagnose!
www.zdf.de/play/shows/m...

Michael Stingl

@neurostingl.bsky.social

10 hours ago

ME/CFS nach Corona war ein Worst Case mit Ansage - Wissens-Kolumne von NANO und Terra X Hunderttausende leiden nach einer Corona-Infektion an Langzeitfolgen. Die Patienten und ihre Beschwerden werden jedoch weitgehend ignoriert.

#MECFS durch C19 war in der Tat Worst Case mit Ansage.

Und dass Prävention von Aerosol-übertragenen Infektionserkrankungen angesichts dieser häufig Infekt-getriggerten Erkrankung so gar kein Thema ist, verschärft den Worst Case anhaltend.

#LongCovidAwarenessDay

www.zdfheute.de/wissen/mecfs...