Latest posts tagged with #Narcolepsy on Bluesky
In honor of #WorldSleepDay, check out our story on the Food and Drug Administration’s (#FDA) recent approval of Wakix® (pitolisant) for treatment of cataplexy in pediatric patients with #narcolepsy 🔽
www.sleepwakeadvisor.com/news/fda-approves-wakix-...
![[Alt: A drawing by New of a sleeping lamb (just the head) with a light blue background. The lamb's eyes are closed and they have big fluffy sparkly lashes. The lamb has a pink bow on their head and a blue collar with a silver jingle bell. There are stickers of "Zzz..." indicating sleep, a moon and stars, and a cute medical pill with hearts coming out of it. The caption reads, "Narcolepsy Awareness Day/Disabilities aren't laziness, but ableism is." Tagged @newhologram]](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:y4ve7olk57ol7bod553x37t3/bafkreieqy6sgepvkksc3kx5ej3aiaguodru7fx6f2ofsb6kathazgesuk4)
[Alt: A drawing by New of a sleeping lamb (just the head) with a light blue background. The lamb's eyes are closed and they have big fluffy sparkly lashes. The lamb has a pink bow on their head and a blue collar with a silver jingle bell. There are stickers of "Zzz..." indicating sleep, a moon and stars, and a cute medical pill with hearts coming out of it. The caption reads, "Narcolepsy Awareness Day/Disabilities aren't laziness, but ableism is." Tagged @newhologram]
Today is Narcolepsy Awareness Day! I was diagnosed in 2013, so I want to talk about it.
May the spoons be with you 🥄💖🪽✨↓ 1/?
#narcolepsy #type2narcolepsy #spoonie #disability #chronicillness #neurologicaldisorder
📣 New Podcast! "Nostalgia: 10 Ways to Ruin Your Sleep" on @Spreaker #dei #goodsleep #health #insomnia #longevity #narcolepsy #psychology #ruinyoursleep #science #sleep #sleephabits #terriblesleep #wellness #whywedowhatwedo #wwdwwdpodcast
Our nation's TOP #NARCOTERRORIST ( #TERRORIST with #NARCOLEPSY ) leads the nation in observing #NationalNAPPINGDay ! EVERY day is #PresidentialNAPPINGDay for #COMMANDERinSLEEP #DOZEYDON !
📣🎓 Apply by April 1 for the 2026 Jack & Julie Narcolepsy Scholarship! 30 scholarships of $1,000 each to college-bound students living with #narcolepsy or #idiopathichypersomnia, with five dedicated to students with IH through our partnership with Hypersomnia Foundation.
🔗: https://ow.ly/n3zY50YnNJ3
⏳ After years of appointments, testing, and persistence from her parents, Leah Boyle was finally diagnosed with #narcolepsy at 11 years old. Now a trained Rising Voices speaker with Project Sleep, Leah shares her story to help shorten the path to diagnosis for others.
🎧 : https://ow.ly/a75p50Ylkuu
P sure not the 1st w/this take but-Having #Narcolepsy: Getting 1 of those shit #mha/ #bnha #quirks thats more of a condition than a superpower. "U can rly sleep anywhere/time??" "Yea! also rly cant control it or sleep @nite or produce enuff Orexin for healthy function!" #actuallynarcoleptic #N1 gn!
🌟 Rising Voices speaker Brooke Donnelly shared her #narcolepsy story with a psychology of sleep class at the University of Pittsburgh!
🎤 Ready to share your own story? Apply by March 1: https://ow.ly/tljw50YkOEg
Narcolepsy flare up today. 😪
No stream today. I should be able to be on tomorrow (Monday).
Thanks disability.
#narcolepsy #disabled #disability #spoonie
krolinks.carrd.co
In case you're wondering what it's like to be me:
Have you ever been awake for 72 hours? You know that feeling of utter exhaustion, full body pain, head throbbing, shaking frequently
It takes everything in your power to keep your eyes open
Now imagine that 24/7
#narcolepsy
🔥 Iris Vasconcelos is an invisible illness advocate, freelance writer, and blogger from Portugal who was diagnosed with #narcolepsy at age 28 after living with symptoms for 13 years.
🎧 Listen to Iris's full story on the Project Sleep podcast, wherever you get your podcasts.
🚨 FDA Update in #Narcolepsy
The #FDA has accepted Takeda’s NDA for oveporexton (TAK-861), an oral orexin receptor 2 agonist for narcolepsy type 1 — and granted Priority Review.
🗓️ PDUFA date: Q3 2026
Read more: www.neurologylive.com/view/fda-acc...
#PriorityReview #SleepMedicine #Neurology #NT1
i have tried to find narcoleptic creators to motivate my progression despite my struggle and i swear their accounts end up being a ghost town after awhile. 😭
#narcolepsy
i am trying to stay away from caffeine to keep my iron levels from going any lower but i am so exhausted.
#narcolepsy
The #FDA has started a priority review of #Takeda's oveporexton for sleep disorder #narcolepsy, setting up a decision in the third quarter of the year.
pharmaphorum.com/news/fda-kic...
#FDA accepts NDA & grants Priority Review for Takeda’s oveporexton (TAK-861) for #narcolepsy type 1. Phase 3 trials show near-normal wakefulness. PDUFA target: Q3 2026. www.hcplive.com/view...
🩺 Connor Baker set out to build a career in healthcare as a surgeon, believing answers and treatment for #narcolepsy would make things easier. Instead, misunderstanding, doubt, and low awareness nearly shut the door on his future.
🎧 Hear Connor’s full story: https://ow.ly/QrHE50Yck7b
🐍What happens when sleepiness tightens its grip? In our latest podcast episode, Amanda Myers shares what it was like to push through constant fatigue while training for Olympic weightlifting before receiving a #narcolepsy diagnosis.
🌟 Want to share your story? Apply today: https://ow.ly/2CBj50Y8zXH
I got the Brain Center results.
#ADHD inattentive type, chronic #PTSD, #bipolar, #eatingdisorder ( #ARFID specifically), #POTs, #traumaticBrainInjuries, #narcolepsy...
All of it there on paper.
I started new narcolepsy meds and I have been able to actually crochet without feeling like falling asleep. I’ve made so much progress on this blanket the past 2 days because of it.
#narcolepsy #crochet #ItsOkayToNeedMeds
Drops in skin temperature and shifts in thermal sensitivity in the hypothalamus precede episodes of cataplexy and distinguish it from REM sleep, according to a new #ScienceTranslationalMedicine study of mice and a small group of patients with #narcolepsy. https://scim.ag/4qPZVz2
Although I have #narcolepsy, this would totally encourage (and likely result in) better sleep hygiene for me!
So interesting.
👑 In our latest podcast episode, pageant titleholder Kristen Crawford shares navigating early mornings and packed #pageantry schedules while experiencing overwhelming sleepiness and brain fog. After 25+ years of misdiagnosis, she opens up about her #narcolepsy journey.
🎧: https://ow.ly/y9N950Y474X
⭐ Special thanks to the Hypersomnia Foundation for funding FIVE scholarships for students with #idiopathichypersomnia (IH) in partnership with our Jack & Julie Narcolepsy Scholarship program.
🎓 High school seniors living with #narcolepsy or #IH are encouraged to apply: https://ow.ly/pN2l50Y0gnn
Me, a real person with narcolepsy: Oh, #narcolepsy is in the news again. Let's see what happened, and if it will lead to more people getting diagnosed/treated or if it will be the usual outcome: people dunking on narcolepsy because all they know about it is the BS they saw Mr Bean doing in Rat Race.
🌟 Rising Voices speaker Machel Tuttle shared her #narcolepsy story during a presentation at her church in Paducah, Kentucky. She encourages others to “never just settle” when it comes to finding a doctor who is knowledgeable about sleep medicine and wants to help you live the best life possible.
I’ve noticed something very interesting since finally getting on the right meds all around .. my temper and how quick I get overstimulated and react is way better. Anyone else have this issue and noticed that difference?? #potsie #narcolepsy #hEDS
🎉 The 13th Annual Jack & Julie Narcolepsy Scholarship is open! In 2026, Project Sleep will award 30 scholarships of $1,000 each to high school seniors with #narcolepsy or #idiopathichypersomnia planning to attend a four-year university in the U.S.
➡️ Learn more and apply: https://ow.ly/CfA150XWIzb
🫣 Being told “it’s just a dream” when it’s actually a symptom of a sleep disorder is an experience far too many people share. In our latest podcast, Kayla Douglas shares how growing up with undiagnosed #narcolepsy shaped her sense of safety, reality and self.
🎧 Listen now: https://ow.ly/6uJX50XVPvF
Sooooooo sleepy this morning. Ugh. #narcolepsy
