Latest posts tagged with #PRPs on Bluesky
I will be discussing with my friends from #AutoPiX how to involve patients in large projects.
We will also have a mention to the #iPrePare project and the @eular.org recommendations on how to involve #PRPs in research.
Join us for a cool webinar!
Peter:
👍1st German training for #PRPs
👍Various research projects (e.g., the iPRePaRe).
👍2017: member of the @eular.org PRP network.
👍 Several task forces for EULAR recommendations.
👍 Member of the EULAR Research Committee
👍 PARE Sub-committee for Education and Research
Peter, What Else?
The meaningful involvement of #PRPs is at the heart of AutoPix, ensuring that patient perspectives guide and shape the project’s goals and outcomes. Their participation is a cornerstone of our commitment to developing solutions that truly matter in clinical practice and improve patients’ lives.
Listen to the #unmet #needs explained to non-rheumatologists by @danielaletaha.bsky.social and Peter Mandl, our PI and co-PI, and a debate with Peter Böhm, one of our patient research partners #PRPs and Robert Janiczek, our project coordinator.
@francoisbonnay.bsky.social will moderate the webinar.
Each session will bring together top #experts, inspiring #patient research partners, and thought #leaders to share insights and best practices.
Stay tuned for dates, speaker announcements, and registration details, this is a #learning journey you don’t want to miss!
#AutoPiX #AI #webinars #PRPs
▶️PRPNetTT is a new, peer-led UK network & think tank for people involved in patient partnership across rheumatology research & service improvement.
▶️It's a space for collaborative peer support & open discussion between #PatientResearchPartners, #PRPs
▶️ prpnettt.substack.com
@psahq.bsky.social
What is Adversarial Growth? Adversarial Growth in research reflects how #PRPs build meaningful roles through empowering and challenging experiences, shaped by competence, appreciation, and disempowerment. A key concept in patient engagement. Learn more https://www.autopix-project.eu/resources
🔍 What do PRPs really get out of being involved in research?
Quite a lot (but not always everything they need) Lets talk about the gaps!
🔗New blog post link in bio🖐🏻
#PPI #PatientInvolvement #PRPs #RheumatologyResearch #PatientVoices #PatientExperience #HealthResearch #CoProduction #HealthEquity
Who said working with #PRPs was boring? That’s totally wrong!!!
With
@estitxuloza.bsky.social, Peter, and Sebastien sharing knowledge and more during the @autopix.bsky.social meeting
🤝 Bridging the Gap in patient partnership!
🎉 We shared #iPREPARE findings at the Scottish Society for Rheumatology Spring Meeting, exploring how Patient Research Partners #PRPs & researchers work together across Europe. Funded by @eular.org
🔗 tinyurl.com/mr2br64t
#RheumatologyResearch
It’s 🤘🏻 @punkrockpawnshop time! Here till 5pm come out and say hey and grab a drink at the bar
#punkrock #aceofcups #vendor #columbustoday #columbusohio #prps #columbusartist #columbusart
🧍♀️🧍♂️ Patients = they are key collaborators in the #HorizonEurope #MDRRAProject! 💬 Our #PRPs co-design 🧪 trials, shape #iCareRA & drive 📢 awareness. Their voices ensure real-world impact on pain 🎯 & quality of life. Big thanks to 🤝 #EULAR for supporting #HorizonEU #Rheumatology #PatientEngagement!
🏃🏻♀️4th & final conference of November & 2024-let’s go!
👩🏻⚕️Look forward to representing #EMEUNET at the #EULAR #PARE conference over the next few days
📄Packed programme covering #EULARAdvocacy, the manifesto, highlighting the role of #PRPs & more!
☺️ Thank you as ever to EULAR-PARE for this opportunity
