#Participatory

Angela Cassidy

@angecass.bsky.social

3 weeks ago

Are you doing #interdisciplinary, #participatory or #policy engaged research on #environment #biodiversity #sustainability? How about learning from past experience rather than starting from scratch! Stoked to see this on our @renewbiodiversity.bsky.social research with @britishlibrary.bsky.social

Environmental Information: Use and Influence (Dalhousie Univ.)

@eiui.bsky.social

3 weeks ago

Title, authors’ names, abstract, and keywords from a paper about stakeholder participation in fisheries management in nine countries

#Fisheries are under stress globally & #participatory #governance may help re sustainability. Mangubhai et al. studied such processes in 9 countries & found #context matters. Including diverse #stakeholder views can increase innovation & more #conservation-oriented approaches doi.org/10.1080/0892...

JMIR Publications

@jmirpub.bsky.social

1 month ago

Reminder>> #Participatory #Digital Twins for Chronic Care: From Predictive Models to Shared Sensemaking (preprint) #openscience #PeerReviewMe #PlanP

JMIR Publications

@jmirpub.bsky.social

1 month ago

#Participatory #Digital Twins for Chronic Care: From Predictive Models to Shared Sensemaking (preprint) #openscience #PeerReviewMe #PlanP

Games for Music wiki / G4M

@gamesformusic.tabletop.vip.ap.brid.gy

1 month ago

It's the final call for follow-up questions in our crowd-sourced interview with Aidan Gold.

You can read answers to the first 8 questions here:
http://musicgames.wikidot.com/source:aidan-gold

#musicEducation #percussion #experimentalMusic #performance #contemporaryMusic #newMusic […]

JMIR Publications

@jmirpub.bsky.social

1 month ago

Using #participatory Methods to Create Informational Videos for Inclusive Brain Stimulation Research Recruitment: Action Research #study and Pilot Randomized Controlled Trial Background: Black and Hispanic/Latino communities experience disproportionate chronic pain and are underrepresented in pain research. Transcutaneous auricular vagus nerve stimulation (taVNS) and transcranial magnetic stimulation (TMS) are promising tools for pain management. Therefore, it is critical to ensure that research using these tools engages all communities to make research findings more generalizable and reach all who may benefit. Lack of diversity in the research workforce itself is a key barrier to improving Black and Hispanic/Latino representation in pain research, and video-enhanced recruitment and consenting may be a useful tool to better engage Black and Hispanic/Latino communities. Objective: Thus, the primary goal of this project was to use #participatory methods to develop informational videos for inclusive brain stimulation research recruitment. Methods: Using community #participatory research principles in an iterative process, key stakeholders were engaged in 2 consecutive studies to create and then test informational videos on taVNS and TMS. The key stakeholders included neuromodulation researchers as well as Black English-speaking, Hispanic/Latino Spanish-speaking, and Haitian-Creole speaking people with chronic pain. The first #study involved iterative feedback from stakeholders through focus groups and interviews to develop test videos, which were then refined based on community member input. The second #study was a pilot randomized controlled trial (RCT) used to assess the impact of these videos on #participant expectations for pain relief with taVNS. Results: Twenty-five community members with chronic pain provided input in the development of the videos, which received overwhelmingly positive feedback. Twenty-eight people with chronic neuropathy were enrolled in the RCT, with 24 completing the #study. There was no significant difference in expectancy scores ( between those who viewed the videos and those who received traditional brochures (median values of 8.2 for both groups, and 95% confidence intervals for the means of 7.2-8.7 and 6.4-8.7, P=.8). Conclusions: These findings suggest that while the videos may improve engagement, they do not unduly influence expectations, potentially making them valuable tools for improving research #participation in non-invasive brain stimulation research. These videos will be freely available to help researchers to engage people from diverse communities. Clinical Trial: ClinicalTrials.gov NCT05896202; https://clinicaltrials.gov/#study/NCT05896202

J Participatory Med: Using #participatory Methods to Create Informational Videos for Inclusive Brain Stimulation Research Recruitment: Action Research #study and Pilot Randomized Controlled Trial

Georgios Vleioras

@gvleioras.bsky.social

2 months ago

When is a research #participatory and when is it #collaborative? #ECQI2026Athens

𝗩𝗶𝗻𝗰𝗲𝗻𝘁 𝗦𝘁. 𝗖𝗹𝗮𝗿𝗲 ⦅𝕱𝖗. 𝐂.∴𝐈./❝𝚄._𝙲.❞ ﴾⸘🜲‽𐡸⓽⓷𝒔﴿⦆⋯𝘐𝘭 𝘔𝘢𝘵𝘵𝘰 𝘥𝘪 𝙃𝙀𝙍𝙐

@vincentstclare.bsky.social

3 months ago

... #anarcho-communism, "anarchism without #adjectives", #pragmatic / #pragmatist " #synthesis anarchism", #participatory #democracy, #workplace and #economic democracy, #industrial democracy, #eco-socialism, #green anarchism, and certain elements of even nihilist anarchism (even #Russian ...

〔4/7〕

JASSS - Journal of Artificial Societies and Social Simulation

@jasssjournal.bsky.social

3 months ago

Companion Modeling for Rethinking Tree Protection in Senegal’s Groundnut Basin YouTube video by Jasss Journal

Watch #CompanionModeling in action!
Etienne Delay (@cirad.bsky.social & ESP Dakar) shares how local farmers and stakeholders co-design #TreeProtection and #agroecological strategies in #Senegal’s Groundnut Basin.
Insightful #participatory #simulation 🌱👉

youtube.com/shorts/dGg6Q...

@sdglocalaction.bsky.social

3 months ago

🌍 New publication!
UNDP ’s latest guide, “Recommendations for Municipal Work with Local Communities”, offers practical tools for #participatory, #inclusive & people-centred processes.
📥 Read (EN/SP/FR): sdglocalaction.org/municipal-wo...
#SDGLocalAction #CommunityEngagement

JASSS - Journal of Artificial Societies and Social Simulation

@jasssjournal.bsky.social

3 months ago

When #tree loss threatens #soils and #food security in #Senegal, the #SAFIRe #participatory #ABM helps communities explore new pathways for #regeneration and reshape #CommunityBased #ResourceManagement.

Read the full #OpenAccess article in #jasss: jasss.org/28/4/6.html

The British Journal Of Obstetrics and Gynaecology

@bjog.bsky.social

3 months ago

Whose images count as research? Photographs determine who is visible and who is erased, who counts and who is silenced. Few studies use #visual #participatory methods in #refugee #SRH.

Dr Mike Rimmer

@mikerimmer.bsky.social

3 months ago

Whose images count as research? Photographs determine who is visible and who is erased, who counts and who is silenced. Few studies use #visual #participatory methods in #refugee #SRH.

JMIR Publications

@jmirpub.bsky.social

3 months ago

Rethinking Complex Care Using #participatory Medical Cognition and User-Driven Learning Amidst Multimorbidity: #participatory Action Research #study Background: Managing #patients with multiple chronic comorbidities is complex and challenging within traditional healthcare systems due to the need for multidisciplinary expertise, longitudinal tracking, and coordination. The development of collaborative online platforms leveraging user-driven healthcare (UDHC) and medical cognition principles offers new avenues for addressing these complexities by facilitating remote, #participatory, and evidence-informed case management. Objective: To demonstrate the application of a collaborative online Case Based Blended Learning Ecosystem (CBBLE) integrated with #patient Journey Records (PaJR) for the comprehensive remote management and review of a complex #patient case with multiple chronic conditions. The #study aimed to evaluate how #participatory medical cognition through this platform supports decision-making, #patient empowerment, and clinical outcomes in a resource-constrained rural setting. Methods: A single case #study of a 44-year-old female #patient from rural India with multiple chronic conditions—including type 2 diabetes mellitus, Meesmann’s corneal epithelial dystrophy post-phototherapeutic keratectomy, recurrent infections, lateral epicondylalgia, and hypertension—was managed remotely from December 2024 to May 2025. De-identified health data, #patient-reported outcomes, biometric monitoring, images, and historical records were shared asynchronously via an online e-log book platform. A global community of multidisciplinary experts engaged in collaborative review, critical evidence appraisal (including AI-assisted literature retrieval), and ongoing clinical discussions. The #patient advocate facilitated detailed symptom and lifestyle logging. AI tools supplemented information synthesis without replacing expert judgment. Outcomes were documented using structured PaJR case reports. Results: The #participatory platform enabled multi-specialty expert input and integrated #patient context to optimize management. The #patient reduced anti-diabetic medication significantly (from a previous higher dosage regimen to 750 mg/day Metformin alone) and discontinued all blood pressure and heart rate medications by March 2025. Lifestyle modifications, muscle strengthening exercises, and diet adjustments were effectively supported. Expert consensus reclassified her irregular heart rate symptoms as anxiety-related palpitations, safely withdrawing beta-blockers. Collaborative discussions guided conservative management of eye infections and pain syndromes. AI tools facilitated rapid evidence retrieval and debate over therapeutic uncertainties. Despite ongoing challenges with some symptoms (e.g., eye issues, arm function), the #patient reported improved quality of life, confidence, and satisfaction from reduced medication burden and comprehensive monitoring. The platform fostered shared learning for clinicians and empowered the #patient to become an active knowledge contributor. Conclusions: This case exemplifies the value of collaborative, multidisciplinary, and technology-enabled #participatory medical cognition platforms for managing complex multimorbidity. By integrating #patient-reported data, AI-supported evidence synthesis, and asynchronous expert consultation, such ecosystems can enable holistic, evidence-based care, reduce overtreatment, support #patient empowerment, and enhance clinical education—particularly in resource-limited and geographically dispersed contexts. Challenges remain in data completeness and remote physical assessment. Wider adoption of these platforms could significantly improve management of complex #patients and foster a new model of user-driven, #participatory healthcare and learning.

J Participatory Med: Rethinking Complex Care Using #participatory Medical Cognition and User-Driven Learning Amidst Multimorbidity: #participatory Action Research #study

JMIR Publications

@jmirpub.bsky.social

3 months ago

Reminder>> Challenges and Facilitation Approaches for the #Participatory Design of AI-based clinical decision support systems – A scoping review (preprint) #openscience #PeerReviewMe #PlanP

JMIR Publications

@jmirpub.bsky.social

3 months ago

Challenges and Facilitation Approaches for the #Participatory Design of AI-based clinical decision support systems – A scoping review (preprint) #openscience #PeerReviewMe #PlanP

Dr Laura

@laurasocres.bsky.social

3 months ago

Collaborative and Participatory Methodological Special Interest Group This page contains seven training modules crated by the NCRM Collaborative and Participatory Methodological Special Interest Group.

www.ncrm.ac.uk/about/engage...

Some fantastic bite-size videos, making up a training module on #Collaborative & #Participatory #ResearchMethods. All made by a fantastic MSIG team with @ncrm.ac.uk

Watch some or all of the videos! 🙂

Johannes Charlier

@jcharlier.bsky.social

3 months ago

#AnimalTaskForce cross-cutting research priorities. #ATF, #OneHealth #OneWelfare #Digitalisation #Socialsciences #Participatory #Innovation

Jan R. Boehnke

@jrboehnke.bsky.social

3 months ago

Plug for projects w research group colleagues 😊

1) Regenerating Healthcare Pathways for Equitable Health & Wellbeing
#Futuring #Foresight #Participatory

2) Co-Designing Regenerative Therapeutic Spaces
#Participatory #MixedMethods

#HealthCare #DesignResearch #Regnr8i #Sustainability #Restorative

Human Development and Capability Association

@hdca.bsky.social

3 months ago

📣 On 24 Nov, join us for the launch of Youth Voice and Participatory Arts in Global Development, a powerful new book by The May Group

The book explores how #participatory #arts can amplify #youth voices and support more #inclusive #development.

JMIR Publications

@jmirpub.bsky.social

3 months ago

Towards #Participatory Precision #Health: Systematic Review and Co-designed Guidelines For Adolescent Just-in-time Adaptive Interventions Date Submitted: Sep 19, 2025. Open Peer Review Period: Nov 14, 2025 - Jan 14, 2026.

Reminder>> Towards #Participatory Precision #Health: Systematic Review and Co-designed Guidelines For Adolescent Just-in-time Adaptive Interventions (preprint) #openscience #PeerReviewMe #PlanP

JMIR Publications

@jmirpub.bsky.social

4 months ago

Towards #Participatory Precision #Health: Systematic Review and Co-designed Guidelines For Adolescent Just-in-time Adaptive Interventions Date Submitted: Sep 19, 2025. Open Peer Review Period: Nov 14, 2025 - Jan 14, 2026.

Towards #Participatory Precision #Health: Systematic Review and Co-designed Guidelines For Adolescent Just-in-time Adaptive Interventions (preprint) #openscience #PeerReviewMe #PlanP

JMIR Publications

@jmirpub.bsky.social

4 months ago

Cultural Feasibility of Conversational Robots for Dementia Care in India: #participatory Design #study Background: Dementia poses a significant challenge in India. The rising incidence rates, limited resources, and restricted clinician access have contributed to a staggering 90% gap in diagnosis and care. Conversational technology provides a natural user interface with the potential to promote the independence, well-being, and safety of people living with dementia at home. However, the feasibility of implementing such technology to support people living with dementia across diverse cultural and economic settings remains underexplored. Objective: This #study aimed to assess the cultural feasibility of conversational robots for dementia care in India, a culturally underserved context in robotics and artificial intelligence (AI) for aging and dementia care. Methods: We involved 29 stakeholders, including people living with dementia, caregivers, and dementia care professionals. We evaluated (1) the engagement of people living with dementia with 3 conversational robots with varying interactive modalities (a voice agent, a virtual affective robot, and an embodied robot), (2) robot acceptance, and (3) stakeholder perspectives on the benefits and challenges of deploying conversational AI in India. Results: People living with dementia were willing to engage in verbal dialogue with conversational robots. Stakeholders perceived the technology as beneficial for supporting daily tasks at home, reducing loneliness, and enhancing cognitive function. We identified design adaptations to address feasibility challenges in India, including the need to (1) adapt interaction style to use a kind tone, appreciative language, and customizable facial expressions; (2) improve speech recognition for local accents interpretation and noisy settings; and (3) introduce prototypes in local clinics to promote familiarity. Conclusions: This work offers novel insights into cultural acceptance, human-robot engagement, and perceived utility for dementia care, along with key design implications for integrating conversational AI into care settings in India.

J Participatory Med: Cultural Feasibility of Conversational Robots for Dementia Care in India: #participatory Design #study

JMIR Publications

@jmirpub.bsky.social

4 months ago

How to Satisfy #HealthCare Professionals’ Information Needs on the Quality of #Health Apps – Developing a #Health #App Quality Report for CEN-ISO/TS 82304-2: #Participatory Design #Study Date Submitted: Oct 31, 2025. Open Peer Review Period: Nov 3, 2025 - Dec 29, 2025.

Reminder>> How to Satisfy #HealthCare Professionals’ Information Needs on the Quality of #Health Apps – Developing a #Health #App Quality Report for CEN-ISO/TS 82304-2: #Participatory Design #Study (preprint) #openscience #PeerReviewMe #PlanP

JMIR Publications

@jmirpub.bsky.social

4 months ago

How to Satisfy #HealthCare Professionals’ Information Needs on the Quality of #Health Apps – Developing a #Health #App Quality Report for CEN-ISO/TS 82304-2: #Participatory Design #Study Date Submitted: Oct 31, 2025. Open Peer Review Period: Nov 3, 2025 - Dec 29, 2025.

How to Satisfy #HealthCare Professionals’ Information Needs on the Quality of #Health Apps – Developing a #Health #App Quality Report for CEN-ISO/TS 82304-2: #Participatory Design #Study (preprint) #openscience #PeerReviewMe #PlanP

JMIR Publications

@jmirpub.bsky.social

4 months ago

Development of an mHealth Solution for Tailored Communication Between #patients With Inflammatory Bowel Disease and Health Care Professionals: #participatory Design #study Background: #patients with inflammatory bowel disease have periods with flare-ups including abdominal pain, diarrhoea, bloody stools and systemic symptoms that may influence negatively on the #patients’ quality of life. Hence, prompt and intensified treatment is often required, and #patients need to pay attention to self-management, including easy access to healthcare professionals. Seeking support is essential in #patients’ self-management and beneficial for their quality of life. However, #patients may experience difficulties in gaining access to healthcare professionals by phone or email when needed. mHealth interventions have shown to support #patients with flexible, timely and ongoing communication with healthcare professionals. However, the most prevalent functions of present apps for #patients with inflammatory bowel disease are tracking disease symptoms and accessing information. Additionally, there has been limited #patient and clinician involvement in the design and development of eHealth apps for #patients with inflammatory bowel disease. Although it is emphasized that #patients with inflammatory bowel disease should be involved to identify tools and functionalities that the #patients find relevant and effective. Objective: Using #participatory design, this #study aimed to develop an mHealth solution for #patients with inflammatory bowel disease to support tailored communication between #patients and healthcare professionals. Methods: Through #participatory design, we completed three focus groups, four mock-up workshops, and two prototype tests involving #patients, healthcare professionals, and an IT designer to collaboratively develop a prototype. The iterative process allowed for feedback from all stakeholders to inform the design and development. This approach facilitated ongoing refinement of the prototype until a mutually satisfactory solution was achieved. Data analysis followed the structured phases inherent to #participatory design: planning, acting, observing, and reflecting. Results: Fourteen #patients with inflammatory bowel disease aged 18–65 years and nine healthcare professionals from two out#patient clinics in Denmark contributed to the mHealth design. The analysis generated six themes of #patients’ suggestions for app content: Easy-access messaging, agreement overviews, self-initiated PROs with free text, treatment and blood test notifications, an IBD knowledgebase, and self-monitoring via diary and symptom registration. An intervention that reflected users’ needs and requests to support #patients’ access to and communication with healthcare professionals in out#patient clinics was developed. The intervention included messaging, symptom registration, notifications, questionnaires with free-text space, a knowledge base and an appointment overview. Conclusions: #participatory Design served as a usable approach to design and develop a tailored mHealth solution for #patients with Inflammatory Bowel Disease and their healthcare professionals in an out#patient clinic. Based on the iterative design process with mutual learning and democratic voices the #participants had a significant impact on the solution, which reflected users’ needs and effectively adapted the solution to clinical setting.

J Participatory Med: Development of an mHealth Solution for Tailored Communication Between #patients With Inflammatory Bowel Disease and Health Care Professionals: #participatory Design #study

Mark Jayes PhD, FRCSLT

@markjayes.bsky.social

4 months ago

Join conversation | Dr Mark Jayes Join our next free Health Professions at Manchester Metropolitan University #Speech, #Language and #Communication #Research Group #webinar on 12th Nov 2025 16.30-17.30 GMT. #SLT #SLP Presenter: Julie...

New @manmetuni.bsky.social #Speech, #Language and #Communication #Research #webinar 12.11.25 16.30-17.30 UK time. Julie Davies presents: " A #participatory research project to explore the lives of young people with cleft lip with or without #cleft #palate.
www.linkedin.com/posts/markja...

Shoba Ramanadhan

@shobarama.bsky.social

4 months ago

A highlight of my new intro #qualitative research course @hsph.harvard.edu was bringing in two fabulous collaborators - Davine Holness and Bella de Sa. They lost me a bit when they talked about loving coding, but at least we all agreed on the beauty of #participatory, justice-focused research.

JMIR Publications

@jmirpub.bsky.social

4 months ago

Reminder>> Community Voices Matter: Experimental Evidence for the Effectiveness of #Participatory #COVID19 Messaging (preprint) #openscience #PeerReviewMe #PlanP