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Posts tagged #chronicpain

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Low-Energy Spring Bucket List for Spoonies With spring comes the awakening of a new year and new chances to enjoy life, and we are embracing the new season with a low-energy spring bucket list for spoonies.  Unfortunately, for most of us…

" #Walking is often considered to be a great, #accessible form of #exercise for people with #ChronicPain & illness, but they often forget that it’s not that easy for at least a ¼ of the year. Now that #spring has sprung, you can start venturing out again.": buff.ly/DDczKCl

by chronicallycozylife

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12 Visible Evidence of a Body Gone Rogue (Is Invisible Illness Truly Invisible?) Here is some visible evidence of invisible illness — photos, signs and symptoms from my personal life with chronic illness.

A light bump, pinch or punch can add a new bruise to the endless collection. I’m often surprised to find a new one hidden somewhere on my body"
🔗
www.achronicvoice.com/2021/07/14/b...
@AChVoice

#AntiphospholipidSyndrome #PulmonaryEmbolism #ChronicPain #APS #MedTwitter

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Buffer Time: The Missing Ingredient of Pacing with Chronic Illness | The Health Sessions Struggle to deal with unexpected events? Here's how you can apply buffer time to optimize your pacing routine with chronic illness.

“Life’s surprises are already inconvenient when you’re a healthy person with a #busy #schedule. But it becomes problematic when you depend on #planning and #pacing to get things done with #ChronicIllness.”: buff.ly/yL4cL9Z

By thehealthsessions
#disability #ChronicPain #routine

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The Awkward Partner: Living With a Pancreas That Has Other Ideas. Chronic pain, the pancreas, and getting the work done.

My bathroom and I have a relationship that has lasted longer than most marriages.
If we were any closer, I'd buy it a ring. Wouldn't you, given my circumstances?
New piece. Personal. Unusual.
👉 bit.ly/4seKx03
#ChronicPain #ChronicIllness #InvisibleIllness #Spoonie #ChronicPainWarrior

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How to Create Micro-Moments of Joy to Help You Keep Going - Tiny Buddha How to create micro moments of joy to support your nervous system, build resilience, and feel more alive in hard times.

“My provider looked at me and said gently, “But what brings you #joy right now?” I just stared at them. No one had asked me that in months. I couldn’t think of a single answer.”: buff.ly/HgseJU4

from @tinybuddha
#ChronicIllness #ChronicPain #Crohns #disability #spoonie

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✨️🪦 If I drink more #coffee I'll become productive? That's how it works, right? 🪦✨️
#GotTheMorbs #ChronicPain #MorbidDruid

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Doctor Raises Awareness for Hypermobility Spectrum Disorder - Stanford Medicine Children’s Health Blog Mekhla Varma, MD, discusses Hypermobility Spectrum Disorder (HSD), a little-known condition affecting connective tissue throughout the body.

Representation is important and so is awareness.

#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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”So many people have told me I am “too young” to have #ChronicPain and I agree. I do feel “too young”…but it doesn’t make the pain I experience any less real. The mental battle I have [with] #fibromyalgia is fierce.” themighty.com/topic/fibromyalgia/being...

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Because doing so was within prescription guidelines for the med, I upped my Robaxin dose this morning to 750mg, because 500mg weren't doing anything for my shoulders and back. While I can still feel the knot in my left shoulder, I can actually move both w/o anywhere near as much pain. #ChronicPain

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Screenshot of North Dakota 3-14-26 weather radar, showing a large band of snow over Dickinson, Hettinger, Bismarck, Washburn, Mott, Linton, Jamestown, Ellendale, and a couple other small towns.

Screenshot of North Dakota 3-14-26 weather radar, showing a large band of snow over Dickinson, Hettinger, Bismarck, Washburn, Mott, Linton, Jamestown, Ellendale, and a couple other small towns.

Ah, yes, -this- is why I woke up in *so* much pain. My head is killing me and the rest of my body is screaming. I'm too young to be a human barometer. 😭😭😭 #chronicpain #spoonie #neisvoid #disability

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ENERGY PROTECTION & AURA CLEANSING***USE DAILY!***FOR EMPATHS & LIGHTWORKERS
ENERGY PROTECTION & AURA CLEANSING***USE DAILY!***FOR EMPATHS & LIGHTWORKERS YouTube video by Reiki Rachael

About to listen to this, as I do every morning, while sipping coffee w/ whipped cream and soaking in my epsom salt bath to help with the #chronicpain.

What’s your daily protection ritual? ✨🖤🕊️

youtube.com/watch?v=pmrm...
#reiki #selfcare #empath #hsp #chronicillness

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The Magic of Hope In the Storm of Chronic Illness – Through chronic illness and pain, hope becomes a lifeline — found in travel, memories, and the magic of looking forward to something new.

“Joy is still possible. Even with limits, even with pain — there’s still room for magic." www.brainlesionandme.com/magic-of-hop...

#ChronicIllness #ChronicPain #ChronicallyIll #InvisibleIllness

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Chronic Illness and Friendship Chronic illness can create barriers to making and keeping friends. Learn why this is so and ways to challenge these barriers.

Chronic illness can make a lot of things more challenging, including friendship.

#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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When Women Are Hurting, Who Heals? CW: Drug use

If a woman is in pain, and nobody believes her -

If a tree falls in a forest, and no one is around to hear -

#chronicillness
#chronicpain
#disability

When Women Are Hurting, Who Heals?
open.substack.com/pub/dawnlevi...

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‘Join Me On a Journey with No Beginning and No End’ was my first attempt at an entirely scrap paper collage with experimental mark making and stitching onto card. I spent weeks on it, playing without expectation, at carefully paced intervals. I thoroughly enjoyed the process - which is what it was all about -  and was surprised that I love the outcome too. 

The effect is a busy collection of colours and marks linked with drawn spirals, topography/fingerprint patterns, dots and acrylic paint applied using a small vintage woodblock stamp. 

Materials used: blue and white index from an old road map, lilac tissue paper, scraps of old painting experiments, kitchen paper that had been used for blotting green, yellow and purple paint from brushes, leftover purple and red coloured paper from previous uses, plain white paper with blue pen scribbles on, white acrylic paint, purple felt tip, blue fine liner pen, purple embroidery thread, and glue stick.

‘Join Me On a Journey with No Beginning and No End’ was my first attempt at an entirely scrap paper collage with experimental mark making and stitching onto card. I spent weeks on it, playing without expectation, at carefully paced intervals. I thoroughly enjoyed the process - which is what it was all about - and was surprised that I love the outcome too. The effect is a busy collection of colours and marks linked with drawn spirals, topography/fingerprint patterns, dots and acrylic paint applied using a small vintage woodblock stamp. Materials used: blue and white index from an old road map, lilac tissue paper, scraps of old painting experiments, kitchen paper that had been used for blotting green, yellow and purple paint from brushes, leftover purple and red coloured paper from previous uses, plain white paper with blue pen scribbles on, white acrylic paint, purple felt tip, blue fine liner pen, purple embroidery thread, and glue stick.

‘Join Me On a Journey with No Beginning and No End’

Tiny scraps of time/energy, discarded materials, and a desire to play are as conducive to creativity as I’d hoped!

See alt text for image info.

#art #collage #craftsky #recycledart #chronicillness #chronicpain #chronicfatigue #mecfs #ME/CFS

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Why Do I Pretend To Be Well? Why Do I Pretend To Be Well?

“I tend to put pressure on myself to ‘power through’ pain to prove that I am capable: But powering through pain can cause more harm than good, and it is okay to not ‘power through’!” Why Do I Pretend To Be Well? #ChronicPain #InvisibleIllness

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“Ehlers-Danlos Syndrome, Tui Na, and You” Revisited (Some Thoughts on the OG Blog Post) It seems unbelievable when I look at it, but the first blog post I wrote about tui na and EDS went live in September of 2017. …

My first blog post one EDS and tui na went live almost ten years ago--time flies! This blog post replies to that initial essay.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness

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Had another rough night with a lot of pain, so I slept until 11 am CET.
Now having my coffee while watching Gardeners' World from last night. So soothing.
#chronicillness #chronicpain #mecfs #fibromyalgia #arthritis #spoonielife #pwme

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We're restarting #Bloodhounds season one, in anticipation of the season 2 premier on April 3rd!

Hop in for a late night binge of an excellent series @ mzelo.com/app/rooms/ch...

#neisvoid #mecfs #action #Thriller #spoonie #MutualAidMarathon #insomnia #ChronicPain

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One of the #ChronicLoaf stream's favorite animes, #MichikoandHatchin, just started from S1E1!

Hop in and watch with us @ mzelo.com/app/rooms/ch...

#animation #cannabisculture #spoonie #neisvoid #anime #mecfs #chronicpain #longcovid

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I hate how often “I’ll try” really means “I’ll hurt later.” #ChronicPain

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Can’t go to urgent care so would love to get some 💨 to manage pain. @/rabbitfripp on venmo and cashapp #mutualaid #weed #chronicpain

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How Do I Describe Chronic Pain to My Doctor? How do I describe chronic pain to my doctor? As a patient who has lived with pain for 12+ years, I've got advice for you! [UPDATED FEB 2023]

" #Radicular #pain is a specific type of pain that radiates from the back & leg..can be felt deep in the leg and it’s a steady pain. Walking, sitting, and other activities make this type of pain worse.": buff.ly/NUSiZMB

by @carriekellenberger.bsky.social
#ChronicPain #InvisibleIllness #disability

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Chronic Illness Acupuncture and Chinese Herbal Medicine (CHM) have been used for centuries to treat a wide variety of health conditions, including chronic illness, fatigue, and neurological disorder. Recent research…

Yes, acupuncture is an excellent option for people with chronic pain.

#Acupuncture #ChronicIllness #ChronicPain #InnerPeace #HealingJourney #HolisticHealth #SelfCare #Transformation 💕 #Wellness

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Made tentative plans for tomorrow and was thinking I’d shower tonight but I’m so sleep deprived, which is probably the reason for this morning, that I’m thinking very early bedtime and morning shower to get me going. Everything is such a crap shoot when you live with #ChronicPain

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I got myself a shop vacuum! With the garage drywall repair work this weekend and the upcoming bookshelf projects (lots of dust from sanding), I decided a shop vac was a good investment. A broom would work fine but whatever helps my wrist stay unpained is helpful!

#houserepairs #chronicpain

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Digital Phenotyping of Pain Modulation and Associations Among Personality, Attachment, and Behavioral Signatures: Cross-Sectional Study Background: The transition from acute to chronic pain often reflects a persistent dissociation between physical tissue damage and subjective reports. In alignment with the 2020 International Association for the Study of Pain definition, pain is a personal experience filtered through a latent “susceptibility architecture.” While clinical assessment currently relies on static, text-based questionnaires, these are often confounded by linguistic interpretation bias and cognitive literacy. We hypothesized that an individual’s internal psychological substrate—traditionally captured via text—can be characterized through real-time behavioral signatures during physical challenge. Objective: This study aimed to demonstrate that the “pain-prone” phenotype can be identified through high-frequency digital assessment of pain ratings. By correlating established psychometric traits with dynamic behavioral signatures, we sought to establish a foundation for “digital phenotyping” that moves beyond the limitations of linguistic self-reports. Methods: A cohort of 534 healthy volunteers (mean age 38.62, SD 22.35 years; n=336, 62.9% male and n=198, 37.1% female) underwent a controlled thermal stimulation protocol (36 °C, 44 °C, 46 °C, and 48 °C). Continuous pain intensity was recorded via a high-frequency (1000 Hz) digital visual analog scale (VAS). To establish a psychological baseline, participants were profiled using the Revised NEO Personality Inventory (NEO PI-R) and the Relationship Questionnaire. Two behavioral indexes were then derived from the digital VAS: the temporal augmentation index (TAI), reflecting within-stimulus physiological sensitization, and the cognitive contrast effect (evaluative instability). Statistical significance was adjusted using the false discovery rate. Results: Repeated-measure multivariate ANOVA confirmed a highly significant main effect of time for all noxious conditions (P

JMIR Formative Res: Digital Phenotyping of Pain Modulation and Associations Among Personality, Attachment, and Behavioral Signatures: Cross-Sectional Study #PainManagement #DigitalHealth #ChronicPain #MentalHealth #BehavioralScience

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Any other #chronicillness or #chronicpain warriors out there reading my feed?

I have several diagnoses that necessitated medical retirement at the age of 46.

If you too live with #disabilities seen or unseen - sending you a little bit of #magic today! #goodvibesonly

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What I treat.

#ChronicPain #AcuteInjury #GutHealth #EDS #MCAS #CosmeticAcupuncture #Skincare #ScarRevision #MensHealth #PreventiveCare 💕 #Wellness

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