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Posts tagged #Pots

There’s an idea when you’re healthy that if you get a serious illness people will rally around you, donate to medical research, educate themselves, that surely if they love you that is how they will respond.
It is not. And so we do it for ourselves. #LongCovid #LongCovidAwarenessDay #MECFS #POTS

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Research suggests that around 7% of people with Long Covid may meet diagnostic criteria for PoTS. Many more experience broader autonomic symptoms and abnormalities beyond PoTS.

❤️‍🩹 To find out more watch this short 4-min video: www.youtube.com/watch?v=XoKm...

#LongCovidAwareness #PoTS

3/3

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Oh, MCAS...

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Spring can be tough for people with MCAS.

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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It's 5PM and my body almost works now.

#mecfs #myalgicencephalomyelitis #POTS

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Doctor Raises Awareness for Hypermobility Spectrum Disorder - Stanford Medicine Children’s Health Blog Mekhla Varma, MD, discusses Hypermobility Spectrum Disorder (HSD), a little-known condition affecting connective tissue throughout the body.

Representation is important and so is awareness.

#ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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This one goes pretty hard

#Saturday #dance #party #EDM #heavy #thrash #dreamcore #groovecore #phonk #plugg #dril #trap #PsyPhonk #phonk

#focus #ADHD #ASD #AuDHD #ASMR #frisson #NeuroDNB #POTS #joy #love #SoundHealing #meditation #VagalShift #CNSregulation #long #LongCovid #covid #Covid19 #werk

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Chronic Illness and Friendship Chronic illness can create barriers to making and keeping friends. Learn why this is so and ways to challenge these barriers.

Chronic illness can make a lot of things more challenging, including friendship.

#Friends #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth 💕 #Wellness

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One step forward with a heard heavy as ice cold stone.
Living with invisible disabilities can be gruesome at times and downright scary at others.

#mentalhealth #audhdartist #pots #art #mentalhealthart #audhd #depression #anxiety

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“Ehlers-Danlos Syndrome, Tui Na, and You” Revisited (Some Thoughts on the OG Blog Post) It seems unbelievable when I look at it, but the first blog post I wrote about tui na and EDS went live in September of 2017. …

My first blog post one EDS and tui na went live almost ten years ago--time flies! This blog post replies to that initial essay.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TuiNa
💕 #Wellness

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Are you taking extra good care of yourself during the spring season?

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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Picture of the infamous RuPaul's Drag Race Drop meme captioned "Never have I ever had a syncopal episode and wound up like this on his thang"

Picture of the infamous RuPaul's Drag Race Drop meme captioned "Never have I ever had a syncopal episode and wound up like this on his thang"

When I had a Facebook account I was almost perm'd from one of the #POTS groups over my OC. Now I don't know if this has happened to everyone or if I'm an anomaly 😩😭

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Being double jointed might mean weaker connective tissue, raising your risk for long COVID & POTS.

US doctors warn that viruses can break down this fragile collagen. Monitor your health!

#TheLolgic #hypermobility #LongCovid #chronicillness #POTS

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a man in a plaid shirt and khaki pants is standing in front of flowers and trees and says please . Alt: Sam Richardson, wearing a plaid shirt and khaki pants, in the Pacific Proposal Park sketch from I think you should leave is saying “PLEASE! STOP” (text in white all caps) Pacific Proposal Park, the perfect place to propose, has gardens and gardens of roses and a few can be seen in the background in front and on a white fence. Behind the fence, it’s kinda blurry so maybe out of focus trees and grass grown with a special spongy soft soil.

My heart keeps coming in and jumping around from 70 to 140 BMP like it’s a wrestler practicing slams on proposal ground

#POTS #POTSFlareUp

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Today is my coronaversarry. Six years straight of being sick with Covid/long Covid.

Terrible irony to be sick again for it

Just trying to keep breathing

#Covid
#LongCovid
#FirstWave
#NotRecovered
#MillionsMissing
#ME
#CFS
#PASC
#POTS

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Autonomic dysfunction and concussive #TBI, #POTS, lots of interesting new information by @meeryo.bsky.social
Distinct from #dysautonomia after severe TBI. @ucla-pedsneuro.bsky.social @neurotrauma.org @uclaneurosurgery.bsky.social @childneurosoc.bsky.social @kevinbickart.bsky.social

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Living With the Seasons According to Chinese Medicine: The MCAS & EDS Version (Are You Ready For Spring?) Most of the posts on this blog start with hEDS as the baseline and expand outward to include MCAS and/or dysautonomia.  In th…

Are you taking extra good care of yourself during the spring season?

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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A Poetic Reflection on POTS Here I sit

I wrote this #poem about a year ago, before my #POTS had been "officially" diagnosed.
Recently, I've started a Substack, where I'll be posting poems, musings, and reflections on chronic and mental illness.
I would love it if you'd take a look :)
#chronicillness #mentalhealth #amateurwriter

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Living with MCAS always requires strategy but during the spring? That much more so.

buff.ly/cxiajEs

#NewBlogPost #MCAS #SeasonalLiving #Spring #EDS #POTS #HolisticHealth
💕 #Wellness

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Screenshot of temperatures & other weather conditions in my area

Screenshot of temperatures & other weather conditions in my area

Picture of a very blue waterfall 
Type over it says: 
This too shall pass.

And then some other bullshit will come and take its place.

It never fucking ends.

Picture of a very blue waterfall Type over it says: This too shall pass. And then some other bullshit will come and take its place. It never fucking ends.

Screenshot 
All text

Screenshot All text

Screenshot of an article from a few years ago about a former soldier & his wife who both got Long Covid.
The important quote says:
“I’ve been blown up, stabbed and shot at… but long Covid is worse”

Screenshot of an article from a few years ago about a former soldier & his wife who both got Long Covid. The important quote says: “I’ve been blown up, stabbed and shot at… but long Covid is worse”

Someone please send me an air conditioner🥵

Summer temps & at least a week long #heatwave have begun🥵

I’m stuck in bed, upstairs, due to my #ChronicIllnesses & there’s no ceiling fans or a/c in my apartment.

One shitty thing after another.
#LongCovid #ME/CFS #POTS #ChronicPain #2026Sucks

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Lipedema: What It Is, What You Can Do About It Do you have lumps and bumps or symmetrical pockets of fat on your legs?  What about your arms, hips, abdomen, or buttocks?&nb…

Got puffy lumps and fat pockets that may even hurt? It could be lipedema.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #Lipedema
💕 #Wellness

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From Ehlers-Danlos Syndrome and Gastroparesis Diagnosis to Successful Feeding Tube Business Owner Anna Hörster’s Inspiring Journey

Yes, gastroparesis can be quite serious and--no surprise--it is not necessarily rare amongst the hypermobile community.

#EDS #MCAS #POTS #Gastroparesis #ChronicIllness #GutHealth #HolisticHealth
💕 #Wellness

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This or Iris van Herpen are really the only right answers.

Even as I know I’ll be wearing my compression suit.

Because I’m ALWAYS wearing my compression suit 🙄 Thx #POTS

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