Latest posts tagged with #RareCommunity on Bluesky
⏰ Reminder: There’s still time to apply for the Bionews Rare Disease Community Connection Scholarship! https://bionews.com/community-scholarship/
#RareDiseaseDay #Bionews #RareCommunity #RareDiseaseAwareness #RareTogether
💙 February is Rare Disease Month — a time to come together, raise awareness, and amplify the voices of those living with rare conditions.
#RareDiseaseMonth #RareDiseaseDay #Bionews #RareVoices #RareCommunity
💙 February is Rare Disease Month — a time to come together, raise awareness, and amplify the voices of those living with rare conditions.
#RareDiseaseMonth #RareDiseaseDay #Bionews #RareVoices #RareCommunity
"Your ticket to connection: Grant for rare disease patients & caregivers. Learn how to attend an event for free in 2026."
Bionews announces grants for two patients or caregivers to attend a rare disease event of their choice in 2026.
Bionews contest offers up to $2,500 for attending rare disease events. Text: "What YOU CAN WIN. We've got you covered from start to finish!"
Bionews offers 2 grants for 2026 events covering registration, travel, and accommodation costs.
Get the details: https://bit.ly/4kAEQ9M
As we celebrate Rare Disease Day 2026, we’re honoring the power of advocacy, connection, and community. 💜
We’re proud to introduce the Bionews Rare Disease Community Connection Scholarship.
#RareDiseaseDay #RareCommunity #Bionews #PatientAdvocacy
"Your ticket to connection: Grant for rare disease patients & caregivers. Learn how to attend an event for free in 2026."
Bionews announces grants for two patients or caregivers to attend a rare disease event of their choice in 2026.
Bionews contest offers up to $2,500 for attending rare disease events. Text: "What YOU CAN WIN. We've got you covered from start to finish!"
Bionews offers 2 grants for 2026 events covering registration, travel, and accommodation costs.
Get the details: https://bit.ly/4kAEQ9M
As we celebrate Rare Disease Day 2026, we’re honoring the power of advocacy, connection, and community. 💜
#RareDiseaseDay #RareCommunity #Bionews #RareDiseaseAwareness #PatientAdvocacy
Join Citizen Health by Nov 30 + be entered into the $5,000 giveaway. Centralize your medical records + get clearer answers in seconds. 👉 [www.citizen.health/unlock]
#ShareForRare #TheGreatUnlock #RareDisease #RareCommunity #AccelerateCures #Neurodev #Neuromuscular #BlackFriday
gradient blue to yellow background. Team telomere logo on top, great nonprofits logo in center and a review button sticker on bottom.
💙 Team Telomere is powered by YOU! Help us keep our nonprofit status by completing our quick community review 🧬
Your feedback keeps us supporting families & driving rare disease research.
✅ Do it here: greatnonprofits.org/write-review...
#TeamTelomere #RareCommunity #NonprofitSupport
It’s always a pleasure to meet with other members of the #RareCommunity As well as advocates, researchers, friends & allies of a community that is #StrongerTogether
@22qirl.bsky.social @rarediseasectn.bsky.social @cassandradinius.bsky.social
“Colorful awareness poster for Rare Disease Day, dated February 28, 2025. The poster features the phrase ‘I Love Someone Rare’ in large, bold, pink and purple text, followed by ‘More Than You Can Imagine’ in white. The background has a watercolor-like blend of blue, purple, and pink. In the top left corner, there is a pink banner with ‘#RARE DISEASE DAY’ written in white. In the top right, there is the Rare Disease Day logo, a multicolored handprint with an eye in the center. Below the text, there are four individuals of diverse backgrounds, including a young girl with braids, a smiling person with short hair and painted hands, a young man in a white t-shirt, and a child and woman engaged in a playful face-painting activity.”
I ❤️ Someone Rare
💡Did you know that rare conditions are not really rare… 1 in 17 people in Ireland are living with a rare condition.
#RareDiseaseDay2025 #IndividuallyRareCollectivelyCommon #RareCommunity
#RareDiseaseDay2025 #IndividuallyRareCollectivelyCommon #RareCommunity #300MillionReasonsWhy #RemoveTheBarriers #RareDiseaseMonth #MultiModalCommunication
Pale yellow background featuring a diverse range of AAC users. Text ‘Communication Bill of Rights’ images by ‘drawn to AAC’ ‘I have the right…’ ‘to make my own friends and build social relationships’ ‘to say how I feel and what I like’ ‘to say no, refuse, or protest what you offer me’ ‘to comment and express my opinions’ ‘to ask for what I want, who l want, where I want to go, and what I want to do’ ‘to be an active member of my community’ ‘to give and be told info that matters to me such as changes in my day’ ‘to access communication tools and strategies’ ‘to be informed about people who work with me’ ‘to be acknowledged and responded to’ ‘to always have access to working AAC/AT’ ‘to make choices from meaningful options’ ‘to be treated with dignity and respect’ ‘to be talked to, not about’ ‘to be talked to in a way I can understand’
There are many children & adults living with a rare condition who are non-speaking or have communication differences. This ‘Communication Bill of Rights’ is spot on 🙌
www.apraxia-kids.org/wp-content/u...
#CommunicationIsAHumanRight #AAC #RareCommunity
