Latest posts tagged with #RareTogether on Bluesky
⏰ Reminder: There’s still time to apply for the Bionews Rare Disease Community Connection Scholarship! https://bionews.com/community-scholarship/
#RareDiseaseDay #Bionews #RareCommunity #RareDiseaseAwareness #RareTogether
#TTSummit2026 #TBDCommunity #TelomereBiology #RareDiseaseCommunity #AdvocacyAndResearch #MissoulaMontana #Missoula #TelomereBiologyDisorders #RareTogether #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #DyskeratosisCongenita #IPF #ILD #Liver #AplasticAnemia #AdvocacyInAction
Photo of a preschool child standing on a woodland path. They are wearing a winter coat, red hat and wellies, and looking down at a patchwork bear that’s dropped in a puddle. Around the photo is a red triangle and Big Give Christmas Challenge branding.
We're just £300 away our #RareTogether @biggive.bsky.social #ChristmasChallenge target!
Please donate, like & share b4 12 noon on 9 Dec to double your impact and help us build a world where everyone with a rare condition feels connected, empowered & supported. 🧡
donate.biggive.org/campaign/a05...
Two Polaroid photos taped to a red Christmas wrapping paper style background. The first photo shows five children and the second shows ten children and young people. Text says: One donation, double the difference.
Across the UK, 3.5M people live with a rare condition. We’re here to ensure no one walks that path alone.
Help us build connection, community & change!
#RareTogether
Until 9 Dec your donations via our @biggive.bsky.social #ChristmasChallenge page are doubled!
donate.biggive.org/campaign/a05...
Photo from a dance performance. A teen girl in the centre of the image is pointing upwards at text reading: get ready to have your donations doubled.
Get ready to double the difference!
During the #ChristmasChallenge (2–9 Dec), every donation made via CamRARE's BigGive portal is doubled.
Your gift this Christmas will help families find connection, community, and people who truly understand.
#RareTogether
donate.biggive.org/campaign/a05...
#TeamTelomere #TBDawareness #TelomereBiologyDisorders #RareTogether #CitizenHealth #RareDisease #PulmonaryFibrosis #DyskeratosisCongenita #IPF #ILD #AplasticAnemia #AdvocacyInAction
Grab your bib 👉 teamtelomere.org/volunteer/#teamtelomere
Start a fundraiser & tag your pics #TurkeyTrotForTT
Community > Research > Advocacy > Cure
#TeamTelomere #TBDawareness #TBD #RareTogether #DyskeratosisCongenita
#TeamTelomere #TBDawareness #TelomereBiologyDisorders #CommunityStories #RareTogether #GivingTuesday #TBDCommunity #TBDawareness #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #CommunityStrong #DyskeratosisCongenita
#TeamTelomere #CitizenHealth #AIAdvocate #TBDawareness #RareTogether #TelomereBiologyDisorders #TelomereBiologyDisorders #TBDCommunity #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #DyskeratosisCongenita
So much heart at this year’s Community Summit at Camp Sunshine! 💙
Thank you to all who joined us, to Camp Sunshine for the magical setting, and to our donors for making it possible.
Marshmallows, karaoke, wishboats & community. ☀️
#TeamTelomere #RareTogether
