Latest posts tagged with #Screen4Rare on Bluesky
As we observe World PI Week 2025, we are pleased to see IPOPI's Executive Director, @johanprevot.bsky.social, featured in an article by rare disease advocate Tom Larmondra.
📖 Read the full article: linkedin.com/posts/tomlar...
#WorldPIWeek #NewbornScreening #SCID #IPOPI #Screen4Rare
Thank you, ISNS, for inviting IPOPI to speak about #Screen4Rare and share the patient perspective on the future of newborn screening at the 13th ISNS European Regional Meeting
Always great to meet with friends like Peter Schielen and discuss how we can advance #NBS together.
#NewbornScreening
