Latest posts tagged with #WorldPIWeek on Bluesky
During #worldpiweek, let’s highlight the importance of registering our patients. We are proud to present the LASID registry! This not only helps us understand our patients better, but also helps us to fight for their access to treatment. In other words, see the unseen!
70-90% of people with primary immunodeficiencies remain undiagnosed.
Early detection is life-changing, as it enables treatment and self-management. Help to #SeeTheUnseen this #WorldPIWeek and join the conversation! 🤝
Visit bit.ly/4b2wIsw to learn more and take action.
As we observe World PI Week 2025, we are pleased to see IPOPI's Executive Director, @johanprevot.bsky.social, featured in an article by rare disease advocate Tom Larmondra.
📖 Read the full article: linkedin.com/posts/tomlar...
#WorldPIWeek #NewbornScreening #SCID #IPOPI #Screen4Rare
People with immunodeficiency get the same kinds of infections other people get like ear infections, sinusitis & pneumonia. The difference is their infections occur more frequently, are often more severe & have a greater risk of complications. #PIAwareness #WorldPIWeek
www.aaaai.org/tools-for-th...
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi
🌍 World PI Week 2025 | #SeeTheUnseen
This week, we lift the blindfold on primary immunodeficiencies (PIDs). Watch our video, share the message, and help make us #SeeTheUnseen — for awareness, for access, for all!
#WorldPIWeek #SeeTheUnseen #PrimaryImmunodeficiencies #IPOPI #WorldPIWeek2025
