Latest posts tagged with #TBDCommunity on Bluesky
#TTSummit2026 #TBDCommunity #TelomereBiology #RareDiseaseCommunity #AdvocacyAndResearch #MissoulaMontana #Missoula #TelomereBiologyDisorders #RareTogether #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #DyskeratosisCongenita #IPF #ILD #Liver #AplasticAnemia #AdvocacyInAction
#TeamTelomere #TBDawareness #TelomereBiologyDisorders #CommunityStories #RareTogether #GivingTuesday #TBDCommunity #TBDawareness #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #CommunityStrong #DyskeratosisCongenita
#TeamTelomere #CitizenHealth #AIAdvocate #TBDawareness #RareTogether #TelomereBiologyDisorders #TelomereBiologyDisorders #TBDCommunity #RareDiseaseCommunity #TelomereBiologyDisorders #TBDawarenessMonth #RareDisease #DyskeratosisCongenita
Join us in building a brighter future:
👉 teamtelomere.org/annual-partn...
#TeamTelomere #TBDcommunity #RareDiseaseAdvocacy #TTAnnualPartner #PartnershipForProgress
We’ve also created new ways to partner with us and power this impact. 💙
Learn more: teamtelomere.org/annual-partn...
#TeamTelomere #RareDisease #Partnerships #TBDCommunity
Graphic titled “Team Telomere Impact Report 2024.” Includes a quote from Executive Director Katie Stevens: “2024 was a landmark year. Together, we are not just hoping for progress – we are creating it.” Below, a section called “By the Numbers for 2024” highlights major accomplishments: 700+ patient families served annually, 300+ clinicians and researchers in the network, 30+ countries impacted by advocacy, 225 summit attendees, $173K in new research funding, 18 Centers of Excellence launched, 40 care packages and legacy boxes delivered, 8 conferences attended, 400+ guidelines delivered, and 425+ educational resources downloaded.
Graphic titled “Team Telomere Impact Report 2024” featuring photos of community members at events. Key stats include: 32 care packages mailed in 2024, 339 total care packages sent, 8 legacy boxes mailed in 2024, 88 total legacy boxes sent, 12 Community Chats hosted, and 141 registrants across chats. Additional highlights include: 11 countries represented at the Summit, 100% of community attendees would recommend it, and 100% of scientific attendees said the content would impact their work. 80+ participants joined the patient registry and 125+ guideline copies were distributed in 2024. Quotes from the community emphasize connection, learning, and advocacy.
2024 was a landmark year. Read the Impact Report to see all that our community accomplished - and the impactful momentum we are carrying forward: bit.ly/TT-Impact-Re...
Together, we are not just hoping for progress - we are creating it. #ImpactReport #TBDcommunity
A cheerful graphic featuring two smiling children forming a heart with their hands. The text reads “Happy Valentine’s Day” with colorful hearts decorating the corners, symbolizing love and community.
A graphic celebrating National Donor Day, February 14th. The text highlights the importance of bone marrow donors for individuals with Telomere Biology Disorders (TBDs), encouraging people to become donors. The image includes a colorful drop symbol with hands inside, representing support and generosity.
❤️ Celebrate love this Valentine’s Day by becoming a donor! Be a hero by registering to be a donor www.nmdp.org/get-involved...! 🌟 #NationalDonorDay #ValentinesDay #BoneMarrowDonation #TBDCommunity #TeamTelomere
A group of smiling Team Telomere members gathered around a dinner table filled with plates of food at a community event. The graphic announces the Washington, DC Community Day happening on Tuesday, February 27th at 6:30 PM at Barrel and Crow in Bethesda, Maryland. Contact information for questions and RSVPs is included at the bottom: kstratton@teamtelomere.org.
📢 Join us for DC Community Day!
Anyone in the TBD community welcome!
🗓️ Feb 27 | ⏰ 6:30 PM
📍 Barrel and Crow Bethesda, MD
💌 Spots Limited, please RSVP by February 20th: kstratton@teamtelomere.org
#TeamTelomere #CommunityDay #TBDCommunity
