Latest posts tagged with #VASCERN on Bluesky
It was a great annual #Crick #Rare Disease Conference 2026. Learned so much new, made novel contacts, and of course, discussed #precision #therapies for #vascular, and more specifically, #lymphatic anomalies. Organised by @Veronica K. #VASCERN #vascapa #hevas #eurordis #CMTC
Can you exercise with primary lymphoedema? What's safe and what needs caution?
VASCERN webinar with 3 experts sharing practical guidance + live Q&A.
📅 2 March | 17:30 CET
Register: ec.europa.eu/eusurvey/run...
#RareDiseases #Lymphoedema #VASCERN
The VAS European Book on Angiology/Vascular Medicine
(ISBN: 978-3-031-82232-2) is now published accessible in print and online ! #VASCAPA #HEVAS #CMTC #VASCERN #EURORDIS
#PIK3R1 and PIK3CA mutations with Capillary Malformation with #DilatedVeins (CMDV) lnkd.in/e2UAUKJr JID cover video lnkd.in/eUSWXYFN features #MRI with #hyperintense slow-flowing blood in dilated veins. A great collaboration within our #VACure and #Leducq networks. #VASCAPA #HEVAS #CMTC #VASCERN
Congratulations Emmanuel on showing how #sirolimus treatment can be adapted. #patients with #slow-#flow #vascular #malformations have #symptom reduction even with #intermittent dosing. A big step forward in the #multimodal management of VAs. #VASCERN #VASCAPA #CMTC #HEVAS #ISSVA #EVDays #Lymph
The virtual #European #Angiology Days (EADays) 2025 are just over. Great presentations and discussions. And easy access - no travel !! Stay tuned for the #EADays – VAS-INT 2026 meeting, which will take place virtually from 27 to 29 November, 2026. #VASCERN #VASCAPA #HEVAS #CMTC #ISSVA #NAVBO #EVBO
Congratulations to all 3 young investigators who received the 1st International Joint Young Investigator/Clinician Awards in #Vascular #Medicine during the virtual #European #Angiology Days 2025 Dr #Annegret Holm, Dr J Mangulabnan, and Dr Anne Miralles-Amora. #VASCERN #VASCA #VASCAPA #HEVAS #CMTC
Great 2 days at #French Society of #Lymphology in Toulouse on lymphatic malformations, lymphoedema and lipedema. Illustrative presentations, pertinent questions and collegial discussions. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #lymph #LM
What a great session at the #BRAIN 2025 in London on fast-flow vascular malformations in the brain. Intense discussions and data sharing. Humbling to be part of the faculty. #vascapa #hevas #CMTC #Welbio #eshg #revamp #VASCERN #eurordis #Radiorg
Great two sessions this morning at the mammouth size 2025 #AHA on various aspects of lymphatic and vascular situations of interest to cardiologists. Naturally I was addressing the #genetic basis and pathophysiology of #primary #lymphedema. #vascern #eshg #hevas #cmtc #welbio #theralymp #lymph
Learning of complex regulatory affairs in rare disease field at World Orphan Drug Congress Amsterdam. Great to see #EMA discussing with clinicians, patients and industry. But a lot to be done to accelerate development of drugs for orphan diseases. #vascapa #welbio #hevas #cmtc #eshg #vascern #esl
Happy to be part of the annual pediatric hemato-Oncology meeting of Czechia and Slovakia. #vascern #vascapa #hevas #cmtc #issva
✨ Last day at the #VASCERN Summer School 2025: no slides, no case discussions — just role plays, reflections, and practice in what matters most for patient care: communication.
📢 Apply now for 2026 👉 vascern.eu/training-and...
Day 1 of the #VASCERN Summer School 2025 wrapped up
🔹 HTAD: genetics, diagnosis, treatment, daily life & patient perspectives
🔹 MSA: Vascular EDS & arterial dissection
Talks, case discussions, coffee breaks and a networking event to come 🌍
#RareDiseases #MedicalEducation
🙌 It begins! #VASCERN Summer School 2025 kicks off today in Paris.
From packing goodies to welcoming a new cohort, the week ahead is all about rare vascular diseases, learning, and connection 💡
👉 Applications are now open for the 2026 cohort: vascern.eu/training-and...
It was great to be able to add a small human bit to the story. # VASCAPA #vascern #cmtc #Hevas #vascapa #evbo #navbo
The great #ISSVA debates meeting 2025 meeting has come to an end. Nothing compares to F2F discussions and networking. Looking forward to the ISSVA World Congress 2026 in #Philadelphia #vascapa #hevas #CMTC #VASCERN #LE&RN #ESL #ISL #vascular #lymphatic #syndrome #hemangioma #theranostic #repurposing
Great First European #Lymphatic Forum in Toulouse by #theralymph. Active participation by our group as well. Looking forward to the second edition in 2027 in #Budapest. #vascern #lymph #hevas #cmtc #le&rn #ESL #ISL #welbio
#VASCERN participating in discussions on lymphatic diseases at the biannual Polish Lymphatic Meeting in Wroclaw. VASCERN has been referred to by several Polish speakers as well. 🤩 #vascapa #hevas #lymph #cmtc
Great WCPD with several sessions on vascular anomalies. Launch of the Vascular Anomaly book with M. Cordisco, D. Teplisky and N. Torres as Editors. Happy to meet again the Garrahan Hospital VA-team and many other colleagues, to make progress the care of VAs. #VASCAPA, #HEVAS, #CMTC, #VASCERN, #LE&RN
Can better patient care start with learning from others?
Dr. Bosshardt joined the #VASCERN Exchange Programme at @vallhebroncampus.bsky.social to see how experts in Barcelona integrate #research into #Marfansyndrome care.
Here’s what he learned: bit.ly/4kKkevc
#RareDiseases
I hope these pathways will help both junior and senior physicians to manage these patients , and to those affected by these vascular diseases to obtain faster a definite diagnosis. #vascapa #vascern #cmtc #hevas #vascern #capillary #malformation #evbo #navbo #issva #leducq #theralymph
#VAC2025 is now over. Fantastic presentations with lively discussions from basic science to clinical applications. Congratulations to the poster award winners: Antonio Queiro Palou, Maya Alvared-Harmon, Apeksha Shapeti and Favour Onyeogaziri! See you in Barcelona 2027! #VASCERN #vascapa #HEVAS #cmtc
