Trending

#autoinflammatory

Latest posts tagged with #autoinflammatory on Bluesky

Latest Top
Trending

Posts tagged #autoinflammatory

Post image Post image Post image Post image

Genetics play a key role in rheumatic diseases, impacting joints, muscles, & connective tissues.

Curious about your risk? Learn how your genes influence these conditions.

➡️ Read more: zurl.co/zR79a

#AiArthritis #Autoimmune #Autoinflammatory #Genetics #GeneticTesting #Rheumatology

2 0 0 0
Post image Post image

Join us on World AiArthritis Day! It's a day for ALL community members and patient organizations to celebrate, DRIVE education and awareness, and "fund-race".

🏎️ Learn more and get involved: zurl.co/VDuJ4

#WorldAiArthritisDay #AiArthritis #HealthAdvocacy #Autoimmune #Autoinflammatory

1 0 0 0
Post image

🌿 Discover Holistic Management for AiArthritis Diseases

Fuel your journey with tools that address body, mind, and spirit — because managing AiArthritis diseases is about living well, not just coping.

👉 Learn More zurl.co/YBaW1

#AiArthritis #Autoinflammatory #Autoimmune #HolisticHealth

0 0 0 0
Post image

Rare Disease Day is Sat.2/28th! We're Showing our Stripes to raise awareness for rare #autoinflammatory and immunedysregulatory diseases w/ advocacy efforts this week. Share, download or print this show your support, &share your story to raise awareness. #RareDiseaseDay

1 0 0 0
Preview
Autoinflammation Symposium Fundraiser & Registration info for 4/16-17/2026 Save the date and fundraising page to support the April 2026 Celebrating Autoinflammation: On The Shoulders of Giants 3rd NIH-WRNMMC Autoinflammatory and Immunedysregulatory Symposium also honoring t...

Please donate to support this symposium and in honor of Dr Kastner's impact! Also, write a tribute with your donation: givebutter.com/c/autoinflam...
Donations are tax deductible & private-no future solicitations. 🤎 Thanks!
#autoinflammatory #rheumatology #immunology #SAIDresearch #Hope4SAID

0 0 0 0
Post image

Come to the FREE April 16-17, 2026 TARN-NIH 3rd #Autoinflammatory Symposium, and get your abstracts submitted by March 2nd if you want to share a poster! Register here: tarnnetwork.org/events/celebra…
#RheumX #Immunology #rheumatology #SAIDresearch #hope4SAID

1 0 1 0
Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

Carousel highlighting what Rare Disease Day is and how it fits into the context of AiArthritis' mission. The post features rare AiArthritis Diseases such as Behcet's Disease, VEXAS syndrome, and Schnitzler Syndrome.

📣 Rare Disease Day is February 28th! In honor of this day, we're driving awareness for AiArthritis diseases, which are often misunderstood, misdiagnosed, and under-recognized.

Learn more:
👉 zurl.co/bsNYs

#Autoimmune #Autoinflammatory #AiArthritis #RareDiseaseDay #ShowYourStripes

2 0 0 0
Post image

The feeling that microscopic colitis is probably the reason for all your symptoms and no one would listen really takes some time to work through and grieve for who I was and who I could be.

Now I wait

#medicalgaslighting #microscopiccolitis #autoimmunedisease #autoinflammatory #chronicillness

1 0 0 0

Tbc, this will knock me on my ass for the next fee days but necessary. #autoinflammatory

8 0 2 0

#genetics #wholeexomesequencing #genepanel #autoinflammation #autoinflammatory #sequencing #geneticdiagnosis #immunodeficiency #medicalgenetics #inflammation

0 0 0 0
An infographic with the community question, what's a piece of advice you wish you'd known earlier in your journey?

An infographic with the community question, what's a piece of advice you wish you'd known earlier in your journey?

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #Blog #AiArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease #HealthAdvice

1 0 0 0
Post image

Some days, courage is loud. Other days, it’s simply choosing to keep going. 💙 Living with autoimmune or autoinflammatory arthritis isn’t easy, but every small step forward matters. Keep showing up for yourself—one day at a time.

#AiArthritis #ChronicIllnessJourney #Autoimmune #Autoinflammatory

0 0 0 0
Video

Second guessing your symptoms doesn’t make them less real. Trust what your body is telling you and use the support you need. ❤️

#AiArthritis #ChronicIllnessJourney #Autoimmune #Autoinflammatory #ChronicIllnessLife

0 0 0 0

I was able to take my kids to a cafe for a treat, then thrifting, then a haircut for my 11yo.

By myself.

Without feeling like total shit.

🥹

I desperately need a nap now, but it was so nice.

#chronicillness #chronicinflammation #longcovid #autoinflammatory

4 0 1 0
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

0 0 0 0
Sometimes I feel a little like Paula I met with my rheumatologist again. Now that this was the second appointment, and we’ve moved onto exploring treatment, I feel like I can actually call him my rheumatologist. It means a lot t…

wp.me/pgY1JP-2Q

Clinician-associated trauma and trying to stay hopeful

#chronicillness #autoimmunity #autoinflammatory #medicalgaslighting #trauma

4 0 1 0
Video

Sometimes the strongest action you can take is the intentional choice to pause. ✨ Take the rest you need to continue the fight.

#ChronicIllnessAwareness #SelfAdvocacy #AiArthritis #Autoimmune #Autoinflammatory

1 0 0 0
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

1 0 0 0
Preview
A tale of two rheumatology clinics So, in the nearly-four years that I’ve been sick, I’ve been to a total of two rheumatology clinics. For the first two full years, none would see me because of my lack of compelling lab …

swimmingthroughthefires.wordpress.com/2025/12/14/a...

#chronicillness #autoinflammatory #postinfectiousillness #rheumatology

4 0 0 0
Quote: I saw 12 rheumatologists over 13 years before I found one who took me seriously about the fevers and knew about autoinflammatory disease, so if it's possible it's really important that you see someone who knows about Behcet's and autoinflammatory disease. They need to know how to screen you for known... genetic variants. There are some that mimic Behcet's.

Quote: I saw 12 rheumatologists over 13 years before I found one who took me seriously about the fevers and knew about autoinflammatory disease, so if it's possible it's really important that you see someone who knows about Behcet's and autoinflammatory disease. They need to know how to screen you for known... genetic variants. There are some that mimic Behcet's.

I read this & feel both comforted & full of dread at the same time. On the one hand, at least it's not just me. On the other, if it took them 13 years, I still have 9 years to go before I get my diagnosis 😑

#chronicillness #autoinflammatory

1 0 0 0

On a 7-day course of prednisone to put down a flare. Omg I love it 🥲

#chronicillness #invisibleillness #chroniclife #autoinflammatory

1 0 0 0
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #Blog #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

0 0 0 0
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #Blog #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

0 0 0 0
Post image

New article to read! Characterizing VEXAS syndrome in women.

➡️ An autoinflammatory disease
➡️ Caused by somatic UBA1 mutations on the X chromosome
➡️ Findings from an international multicenter study

🔗 doi.org/10.1111/joim.70023

#VEXAS #autoinflammatory

2 0 1 0
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #Blog #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

0 0 0 0
Preview
So…What exactly is a rheumatologist? — Haus Health Rheumatology When I tell someone I’m a rheumatologist , I usually get a polite smile and a blank stare—whether it’s from a medical student, an immigration officer, or a relative with a PhD. Even many of my own n...

Ever wonder what a #rheumatologist really does?

New on the Haus Health Rheumatology blog:

“What is a Rheumatologist?”
→ haus.health/blog/what-is...

Learn how we tackle #inflammation — from #arthritis to rare #autoimmune & #autoinflammatory diseases—explained with clarity and a dash of humor.

2 0 0 2
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #Blog #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

0 0 0 0
Preview
The infinite value of a second opinion — Haus Health Rheumatology When faced with a serious diagnosis, the fear and uncertainty can be overwhelming. But sometimes, seeking a second opinion can change everything—offering new hope, clarity, and a path forward. This is...

My father's diagnosis was wrong. A second opinion corrected it, revealing a different disease and a new path forward.

This is the infinite value of a #SecondOpinion.

Read my story here: haus.health/blog/the-inf...

#PatientAdvocacy #SecondOpinion #Rheumatology #Autoimmune #Autoinflammatory

1 0 0 1
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #Blog #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

0 0 0 0
Post image

🚨 Attention all #AiArthritis Community members! Join the conversation 💬 and share your thoughts on this week's Community Question!

#CommunityQuestion #ArthritisAwareness #autoimmune #autoinflammatory #arthritis #chronicillness #invisibledisease

0 0 0 0