#caredata

Owen Boswarva

@owenboswarva.bsky.social

2 months ago

The current National Data Opt-out, introduced in 2018, has been taken up by over three million people. However, exemptions granted for essential planning and operational work mean it no longer reflects what many believe it offers. This risks undermining trust. It also reflects a simple truth: the NHS cannot function in ways the public should be able to expect without reliable information. This information helps shape safe, effective, sustainable services and improves the care people receive. Being open about this reality, clear about the safeguards that protect people's data and ensuring these are strong and credible, remains vital if we are to maintain public confidence.

National Data Guardian* 2024-2025 report www.gov.uk/government/p...

* for Health and Adult Social Care in England

#NHSdata #patientdata #caredata #datasharing #dataprotection #datapolicy

Matt Buys

@mattbuys.bsky.social

2 years ago

Cool APIs and workflows being developed to link indigenous communities with their data. localcontexts.org #CAREdata

Hetan Shah

@hetanshah.bsky.social

4 years ago

I think there are huge benefits that can come from improved data linkage and access but this looks like it has not learned the lessons from #caredata in terms of maintaining trustworthiness through public engagement
https://on.ft.com/3uo5dDQ

Hetan Shah

@hetanshah.bsky.social

9 years ago

#Caredata is dead. Long live caredata theconversation.com/care-data-has-been-scrap... @ConversationUK

Hetan Shah

@hetanshah.bsky.social

9 years ago

More coverage of #caredata closure & Caldicott review in @thetimes
www.thetimes.co.uk/article/ea7f0ce0-43be-11...

Hetan Shah

@hetanshah.bsky.social

9 years ago

Coverage in @DailyMailUK on closure of #caredata www.dailymail.co.uk/health/article-3677466/C...

Hetan Shah

@hetanshah.bsky.social

9 years ago

Here's our overview on how well intentioned #caredata got itself into a mess www.statslife.org.uk/features/1921-care-data-... https://x.com/hetanshah/status/750678739651010560

Hetan Shah

@hetanshah.bsky.social

9 years ago

Blog from @Freeman_George on Caldicott including the closure of #caredata www.gov.uk/government/speeches/revi... (HT @roelandb)

Hetan Shah

@hetanshah.bsky.social

9 years ago

NHS told to strengthen data security - Caldicott review trailed in @thetimes
www.thetimes.co.uk/article/358561dc-21e9-11... #caredata

Hetan Shah

@hetanshah.bsky.social

9 years ago

Minister @freeman_george calls for greater #datasharing in health, noting failures of #caredata www.ukauthority.com/news/6164/minister-says-... (HT @michaelcross)

Hetan Shah

@hetanshah.bsky.social

9 years ago

Principles for data infrastructure from @odihq - good start. Need to say more on governance? (CF #caredata) theodi.org/blog/seven-principles-to...

Hetan Shah

@hetanshah.bsky.social

10 years ago

The botch up of #caredata continues to have implications: @hscic now withholding data from other NHS bodies: policyskeptic.blogspot.co.uk/2015/12/in-planning-to-r...

Hetan Shah

@hetanshah.bsky.social

10 years ago

Here is a bit of background on #caredata www.statslife.org.uk/features/1921-care-data-... @oiioxford @turinginst

Hetan Shah

@hetanshah.bsky.social

10 years ago

Looking forward to speaking @oiioxford @turinginst workshop on data ethics today about the #caredata fiasco http://www.oii.ox.ac.uk/events/?id=746

Hetan Shah

@hetanshah.bsky.social

10 years ago

#bigdata is a necessity in improving our health reckons @jameskirkup (But see #caredata etc - execution counts) www.telegraph.co.uk/news/health/11961415/Goo...

Hetan Shah

@hetanshah.bsky.social

10 years ago

A timely feature on #caredata from @CSWnews www.civilserviceworld.com/articles/feature/caredat...

Hetan Shah

@hetanshah.bsky.social

10 years ago

I see Tim Kelsey is leaving the NHS. Where does that leave #caredata? Here's our overview of that programme again: www.statslife.org.uk/features/1921-care-data-...

Hetan Shah

@hetanshah.bsky.social

10 years ago

#Caredata pilots delayed until January www.civilserviceworld.com/articles/news/caredata-p... @cswnews

Hetan Shah

@hetanshah.bsky.social

10 years ago

Patient data must be safeguarded @guardian letter from @AMRC @wellcometrust & others http://gu.com/p/4b2zm/stw #caredata

Hetan Shah

@hetanshah.bsky.social

10 years ago

#Caredata concerns dismissed as ‘scare stories’ by NHS data chief https://shar.es/1sZUkW

Hetan Shah

@hetanshah.bsky.social

10 years ago

We should do more to facilitate sharing of health data for medical research says @timberners_lee http://on.ft.com/1IOewmb #caredata

Hetan Shah

@hetanshah.bsky.social

10 years ago

NHS #caredata still leaks like a sinking ship, but ministers set sail regardless theconversation.com/nhs-care-data-still-leak... @ConversationUK @EerkeBoiten

Hetan Shah

@hetanshah.bsky.social

10 years ago

#Caredata MPA ‘red’ risk rating may be out of date central-government.governmentcomputing.com/news/caredata-mpa-red-ri... HT @owenboswarva

Hetan Shah

@hetanshah.bsky.social

10 years ago

NHS patient data plans unachievable, review finds http://gu.com/p/4a6f3/stw #caredata #datasharing

Hetan Shah

@hetanshah.bsky.social

10 years ago

Major Projects Authority rates #caredata project near unachievable: http://on.ft.com/1BFZ9dE #datasharing

Hetan Shah

@hetanshah.bsky.social

10 years ago

#caredata picked up in @guardian today as well: http://gu.com/p/49hb8

Hetan Shah

@hetanshah.bsky.social

10 years ago

#caredata in @Telegraph - continues to damage perceptions of #datasharing for public good - http://t.co/OleX1dA8l4 HT @medConfidential

Hetan Shah

@hetanshah.bsky.social

10 years ago

#CareData @MailOnline picks up story on failure to action opt outs - http://dailym.ai/1McA4HK

Hetan Shah

@hetanshah.bsky.social

10 years ago

Are #caredata pilots heading for a breech delivery? http://jenpersson.com/direction/ via @TheABB

Hetan Shah

@hetanshah.bsky.social

10 years ago

Baroness Ludford: Respond to the 700,000 requests to opt out of medical data sharing https://shar.es/12gY2W #caredata