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Posts tagged #patientdata

The issue emerged because journals and funders increasingly require researchers to publish the code they have used to analyse large datasets. When intending to upload code, some researchers have also accidentally published partial or entire Biobank datasets to GitHub, a popular online code-sharing platform. UK Biobank prohibits researchers from sharing data outside their systems and says it has introduced further training for all researchers.

In the past year, the data leaks appear to have become a more urgent concern to UK Biobank. Between July and December 2025, it issued 80 legal notices to GitHub, which has complied with requests to remove data from the internet. Yet much still remains available.

The issue emerged because journals and funders increasingly require researchers to publish the code they have used to analyse large datasets. When intending to upload code, some researchers have also accidentally published partial or entire Biobank datasets to GitHub, a popular online code-sharing platform. UK Biobank prohibits researchers from sharing data outside their systems and says it has introduced further training for all researchers. In the past year, the data leaks appear to have become a more urgent concern to UK Biobank. Between July and December 2025, it issued 80 legal notices to GitHub, which has complied with requests to remove data from the internet. Yet much still remains available.

Confidential health records from UK BioBank project exposed online www.theguardian.com/science/2026...

@ukbiobank.bsky.social statement www.ukbiobank.ac.uk/news/a-messa...

Article highlights potential for re-identification in datasets shared by researchers

#patientdata #healthdata #dataprotection

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Privacy Campaigners Sound Alarm Over NHS Palantir Deal Medical and legal groups raise privacy concerns over £330m NHS Federated Data Platform contract with US tech firm Palantir, citing risks of government access to patient records.

Privacy Campaigners Sound Alarm Over NHS Palantir Deal

#Palantir #NHS #DataPrivacy #PatientData #AusNews

thedailyperspective.org/article/2026-03-12-priva...

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A senior NHS official privately urged colleagues to add more patient data into a Palantir-built platform at the same time as he was being paid to advise the US technology company.

Matthew Swindells has been joint chair of four major hospital trusts in north-west London since April 2022 and has also since then acted as an adviser to Palantir through the now-defunct lobbying firm Global Counsel, which was co-founded by Lord Peter Mandelson.

A senior NHS official privately urged colleagues to add more patient data into a Palantir-built platform at the same time as he was being paid to advise the US technology company. Matthew Swindells has been joint chair of four major hospital trusts in north-west London since April 2022 and has also since then acted as an adviser to Palantir through the now-defunct lobbying firm Global Counsel, which was co-founded by Lord Peter Mandelson.

NHS official pushed to add patient data to Palantir platform while also advising company www.ft.com/content/6c54... (£)

Federated Data Platform (FDP) contract, awarded in 2023 www.contractsfinder.service.gov.uk/notice/0f8a6...

#NHSdata #patientdata #datasharing #publicprocurement #revolvingdoor

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NHS study will pick apart mental illness with data science Volunteers with schizophrenia, bipolar disorder, and depression will take part in an NHS study that will use genetic and health data to find new therapies.

#mentalhealth #Schizophrenia #bipolardisorder #depression #patientdata #genomics #NHSEngland #AkriviaHealth #NationalCentreforMentalHealth #GlobalMindsstudy #DigiTrials #DigiTrialsservice #mentalhealthtrusts #mentalhealthdatascience #Precisionmedicine #personalisedmentalhealthcare
zurl.co/Nshyd

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QualDerm Faces Patient Data Breach Probe
Read More: buff.ly/aTnnGXy

#QualDerm #HealthcareBreach #PatientData #PHIData #DataBreachInvestigation #CyberLitigation #MedicalPrivacy #Infosec

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Duly Health and Care Settles Data Breach Lawsuit for $3.1 Million - Defensorum HIPAA-covered entity, Midwest Physician Administrative Services, LLC doing business as Duly Health and Care agreed to a $3.1 million settlement to resolve class action litigation related to the use of...

🏥 Duly Health and Care settles tracking pixel lawsuit for $3.1M 💻 Healthcare website tracking practices under legal scrutiny 📊 Patient portal activity allegedly shared with third parties 📅 Claims deadline: March 2, 2026 #Healthcare #PatientData #WebTracking 👉 www.defensorum.com/duly-health-...

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ApolloMD Breach Impacts 626,540 People
Read More: buff.ly/vjNkkx4

#ApolloMD #HealthcareBreach #QilinRansomware #PHIData #PatientData #DataBreach #RansomwareAttack #HealthcareSecurity

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Georgia Healthcare Data Breach Exposes
Read More: buff.ly/KmSJVOe

#HealthcareBreach #RansomwareAttack #PatientData #PHIData #DataBreach #CyberIncident #HealthcareSecurity #BreachDisclosure

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UK moves ahead with GP patient data sharing plan The UK government has asked the NHS to start putting together the platforms to allow anonymised primary care patient data to be used by researchers.

#populationhealth #patientdatasharingplan #UKgovernment #NHS #populationbasedresearchprojects #GPhealthrecords #UKBiobank #OurFutureHealth #GenomicsEngland #100000GenomesProject #NHSGPdata #humanhealth #deidentifiedhealthdata #AMRC #healthinformation #realworldevidence #patientdata
zurl.co/rw8IC

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The problem: Healthcare systems that don't talk to each other 🤔

Labs, imaging, pharmacy, billing—all siloed.

The solution: Robust EHR integration connecting everything into one unified system.

When data flows freely, everyone wins—especially patients!

https://ravcare.com/electronic-health-records-ehr-integration/

#Interoperability #HealthcareIntegration #EHRSystems #HealthTech #PatientData

The problem: Healthcare systems that don't talk to each other 🤔 Labs, imaging, pharmacy, billing—all siloed. The solution: Robust EHR integration connecting everything into one unified system. When data flows freely, everyone wins—especially patients! https://ravcare.com/electronic-health-records-ehr-integration/ #Interoperability #HealthcareIntegration #EHRSystems #HealthTech #PatientData

The problem: Healthcare systems that don't talk to each other 🤔

Labs, imaging, pharmacy, billing—all siloed.

When data flows freely, everyone wins—especially patients!

ravcare.com/electronic-h...

#Interoperability #HealthcareIntegration #EHRSystems #HealthTech #PatientData

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Mandelson.
Palantir.
Peter Thiel.
Funny business?
Corruption?
Money?
Government contracts.

How much more to know?
Will McSweeney go?
Hope so...

#r4today #Starmer #Labour #UKPolitics #bbcnews #NHS #patientdata

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Man Faces More Charges In Geisinger Breach
Read More: buff.ly/IMRxV9e

#HealthcareBreach #InsiderMisconduct #FederalCharges #PatientData #HIPAARisk #CyberCrime #LegalProceedings #InfosecNews

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Patient data saves lives: Cancer
Patient data saves lives: Cancer YouTube video by Understanding Patient Data

On this #WorldCancerDay we want to highlight that when accessed securely through controlled environments such as the #SDE, #NHSdata can support vital cancer research. Watch this video from @Patient_Data: youtu.be/y0P2qriA5dw?...
#CancerCare #PoweredByData #CancerAwareness #PatientData

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Does Zack Polanski have a view on Palantir and this man Thiel being given contracts with our #NHS?

Can Labour justify it?
On what grounds?
And Palantir's links to the tyrants Trump, Musk, etc.?

#bbclaurak #ukpolitics #skynews #Palantir #PatientData #Streeting

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Maine Healthcare Breach Exposes Data
Read More: buff.ly/O17q2oJ

#HealthcareBreach #HealthDataSecurity #HIPAA #PatientData #RansomwareRisk #MedicalIdentityTheft #HealthcareCyber #DataProtection #BreachNotification

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Patient and clinical researcher discussing data. Image credit: Halfpoint via Shutterstock.

Patient and clinical researcher discussing data. Image credit: Halfpoint via Shutterstock.

🙋FACILITATE developed a framework on how best to return #PatientData without compromising the results of #ClinicalTrials, while also building trust & reducing drop-outs.⚡GSK & Sanofi are running pilots. Want to know more? 👉 link.europa.eu/xfWFVp
#IHITransformingHealth #HorizonEU #HealthResearch

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Canopy Health Hit In Major Cyber Attack
Read More: buff.ly/TRDKGAt

#HealthcareBreach #DelayedDisclosure #PatientData #PHIData #CyberIncident #MedicalPrivacy #RansomwareRisk

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New Zealand is reviewing a cybersecurity incident involving a medical portal used by many patients and providers.
The focus is on understanding access gaps, improving safeguards, and reinforcing the importance of protecting personal health information.

#CyberSecurity #PatientData #Infosec #Health

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The current National Data Opt-out, introduced in 2018, has been taken up by over three million people. However, exemptions granted for essential planning and operational work mean it no longer reflects what many believe it offers. This risks undermining trust. It also reflects a simple truth: the NHS cannot function in ways the public should be able to expect without reliable information. This information helps shape safe, effective, sustainable services and improves the care people receive. Being open about this reality, clear about the safeguards that protect people's data and ensuring these are strong and credible, remains vital if we are to maintain public confidence.

The current National Data Opt-out, introduced in 2018, has been taken up by over three million people. However, exemptions granted for essential planning and operational work mean it no longer reflects what many believe it offers. This risks undermining trust. It also reflects a simple truth: the NHS cannot function in ways the public should be able to expect without reliable information. This information helps shape safe, effective, sustainable services and improves the care people receive. Being open about this reality, clear about the safeguards that protect people's data and ensuring these are strong and credible, remains vital if we are to maintain public confidence.

National Data Guardian* 2024-2025 report www.gov.uk/government/p...

* for Health and Adult Social Care in England

#NHSdata #patientdata #caredata #datasharing #dataprotection #datapolicy

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Awakenings Center Reports Data Breach
Read More: buff.ly/6wOcIW9

#Cybersecurity #DataBreach #HealthcareBreach #PHIData #PatientData #Privacy #Infosec #CyberIncident #SecurityAwareness

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Patient data saves lives: Cancer
Patient data saves lives: Cancer YouTube video by Understanding Patient Data

#November is Lung and Pancreatic Cancer Awareness Month
#Patientdata plays a vital role in understanding risk factors, improving diagnosis, & developing better treatments for #cancer.

Watch this video from #UnderstandingPatientData
: youtube.com/watch?v=y0P2...

#PoweredByData #HealthResearch

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Microsoft Forms

Are you an NHS staff member living in the East of England?
Do you have any suggestions, opinions, or concerns about researchers accessing anonymised NHS datasets for their studies?
Let us know: shorturl.at/5KI4u

#Survey #NHSData#HealthResearch #HealthData #PatientData #PoweredByData

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Villa Health Center in Florida collecting #patientdata and motives to put an end to #mRNA injections and taking care of the #vaccineinjured.

"For the first time, long-term immune system function can be compared between four key exposure groups". Doctors Appeal

makisw.substack.com/p/breaking-n...

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Microsoft Forms

Deep into the #patientdata and #privacy work with my project @VitaniumOnline . I'm running some market research and very much hoping you all can help me by completing this short survey and sharing with family and friends for reach. Thank you, Brian
forms.cloud.microsoft/r/ZYVbqiLYgg

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Megaphone icon with text about the ALS Association launching the ALS Focus Data Dashboard, a tool for exploring ALS data to improve care and policy.

Megaphone icon with text about the ALS Association launching the ALS Focus Data Dashboard, a tool for exploring ALS data to improve care and policy.

Explore the new dashboard: https://bit.ly/47m2X5F

The ALS Association has launched a free interactive data tool offering access to five years of real-world ALS survey data from over 4,000 patients and caregivers.

#ALS #ALSNewsToday #ALSResearch #ALSCommunity #ALSAwareness #PatientData #Bionews

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SimonMed Imaging reports data breach affecting over 1.2 million patients   U.S.-based medical imaging provider SimonMed Imaging has disclosed a cybersecurity incident that compromised the personal data of more than 1.2 million patients earlier this year. The company, which operates nearly 170 diagnostic centers across 11 states, specializes in radiology and imaging services such as MRI, CT scans, X-rays, ultrasounds, and mammography. Details of the breach  According to information shared with regulators, unauthorized individuals gained access to SimonMed’s internal systems between January 21 and February 5, 2025. The breach came to light on January 27, when one of SimonMed’s third-party vendors reported a security incident that also affected the company. An internal investigation confirmed suspicious network activity the following day. SimonMed stated that once the attack was detected, the organization acted swiftly to contain the intrusion. Measures included resetting employee passwords, activating multifactor authentication, adding endpoint detection and response (EDR) tools, cutting off third-party vendors’ direct system access, and restricting external network connections to only verified sources. Law enforcement authorities were notified, and cybersecurity specialists were brought in to assist in the investigation and recovery process. Data possibly exposed While SimonMed has not disclosed the full scope of data accessed by the attackers, the company confirmed that patients’ full names were among the exposed information. Given the type of data typically stored in radiology systems, the breach may also involve sensitive records such as identification details, medical reports, and financial information. As of October 10, SimonMed reported finding no evidence that the compromised data has been used for fraud or identity theft. Affected individuals have been offered free identity theft protection services through Experian as a precautionary step. Ransomware group claims responsibility Shortly after the breach, the Medusa ransomware group claimed responsibility, listing SimonMed on its leak site on February 7. The group alleged that it had stolen 212 gigabytes of data and released a small sample online as proof. The leaked files reportedly contained ID scans, patient information spreadsheets, billing details, and diagnostic reports. Medusa demanded a ransom of $1 million, along with an additional $10,000 fee for each day the company delayed payment before full data disclosure. SimonMed’s name has since been removed from the group’s website, which often suggests that negotiations may have taken place. However, the company has not confirmed whether any ransom payment was made. Growing threat to healthcare organizations The Medusa ransomware operation, which surfaced in 2023, has been linked to several high-profile attacks on critical infrastructure, including the Minneapolis Public Schools and Toyota Financial Services. In March 2025, the FBI, CISA, and MS-ISAC jointly warned healthcare and education organizations about Medusa’s ongoing targeting campaigns. Cybersecurity experts emphasize that healthcare institutions remain vulnerable due to the volume of sensitive data they handle. Experts recommend strengthening authentication protocols, monitoring system activity, and maintaining up-to-date security measures to minimize the risk of future incidents.

SimonMed Imaging reports data breach affecting over 1.2 million patients #DataBreach #MedusaRansomware #PatientData

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Graphic promoting HDR UK Conference 2025, 15-16 October/Glasgow.

Graphic promoting HDR UK Conference 2025, 15-16 October/Glasgow.

We are heading to Glasgow this week for the #HDRUKConference. If you are planning to be there, please do drop by our stand in the exhibition area and say hello.
www.hdruk.ac.uk/about/hdr-uk...
#Healthdata #PatientData #Research

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Is it not just a way to try and hide what they do not want the public to know?

#Covidvaccines #vaccineinjury #healthdata #patientdata

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Cyber Countdown: New York Hospitals Face New Data Security Mandates | JD Supra The time has come. Last year, the New York State Department of Health (DOH) published a notice of adoption of new hospital cybersecurity requirements,...

NY #hospitals - 10 NYCRR § 405.46 enhancing protection of #patientdata that already existed under HIPAA. NY Regulated entities are already required to report cybersecurity incidents, but the balance of the regs go into effect Oct. 2. Outsource to us to be #compliant www.jdsupra.com/legalnews/cy...

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Why Faxing Still Matters in U.S. Healthcare?

staffingly.com/why-faxing-s...

#HealthcareFax, #MedicalCommunication, #HIPAACompliance, #HealthTech, #PatientData, #MedicalRecords, #SecureFax, #DigitalHealth, #HealthIT, #HealthcareEfficiency

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