Trending

#chronicallyawesome

Latest posts tagged with #chronicallyawesome on Bluesky

Latest Top
Trending

Posts tagged #chronicallyawesome

Post image

reminder-- get your #vaccinations -- for you AND your family. it not only protects you -- it protects a lot of others, too. #vaccine #vaccination @alt-hhs.altgov.info #dis #chronicallyill #chronicallyawesome #communityimmunity @immunedeficiency.bsky.social

2 0 0 0
Preview
An unusual coincidence solved the mystery of the scary nosebleeds and low platelet counts Doctors couldn’t figure out what was causing her scary platelet count, but Sheryl Stein had a theory.

Sitting in the airport trying not to stare at some of the strange agents. Found this medical mystery article from the WaPo about me and how I was diagnosed with #cvid. Posting in case it helps someone. @immunedeficiency.bsky.social #dis #chronicillness #chronicallyawesome #primaryimmunodeficiency

4 0 0 0
Post image

#flu #toddler #dis #chronicallyill #chronicallyawesome #protip

6 0 0 0
Preview
a man in a floral shirt says " this is a disaster " in white letters ALT: a man in a floral shirt says " this is a disaster " in white letters

I forgot I'd taken the cap off of a protein shake, shook it, and just spent 90 minutes cleaning up the results from my kitchen. Thanks, prednisone.

#Dis #chronicallyill #chronicallyawesome #pneumonia #RSV #mess

4 1 1 0
Post image

#Dis #Chronicallyill #Chronicallyawesome #CVID #PI #dis

1 0 0 0
Post image

My #Halloween #costume this year is lady who fights highly resistant bacterial infection w/an ER trip & 4 IVs of some really tough-ass antibiotic.

Wanna know scary, boos & ghouls? Antibiotic resistance.

#raredisease #dis #chronicallyill #chronicallyawesome #spooky @ylepidemiologist.bsky.social

3 0 1 1
Preview
Leatylrs Friends GIF ALT: Leatylrs Friends GIF

FUN FACT: Some of us manage to contract highly resistant bacterial infections &it's not as fun as you'd think.

Don't overuse #antibiotics fam. It's how we got into this mess. They work on #bacteria. Not in any #virus.

#dis #chronicallyill #chronicallyawesome #raredisease #cvid #PI

1 0 0 0

Today, we get to play the game: Where is my lifesaving medicine that was supposed to be delivered by noon today (sig req)?

A: On a plane in Indianapolis. Maybe the perishable stuff will show up tomorrow? Still cold?

#UnsuckFedex #Chronicallyill #Chronicallyawesome #chronicillness #raredisease

0 0 0 0

ICYMI #CVID #PI #DIS #Chronicillness #chronicallyawesome @immunedeficiency.bsky.social

2 0 0 0
Post image Post image Post image Post image

I am sharing this in solidarity with everyone that has any chronic illness or disability. We all struggle with something. Let’s all try to understand each other’s reality and apply our empathy.
#FibromyalgiaAwareness #FibroWarrior #ChronicallyAwesome
#DisabledArtist #InvisibleDisability

1 0 0 0
Woman with post-op eye patch

Woman with post-op eye patch

Ready for my close up, Mr. DeMille. #post-op #eye #surgery #ow #pirate 🦜 #chronicallyill #chronicallyawesome #dis

3 0 0 0
Preview
a close up of a person 's eye with a few spots on it Alt: a close up of a person 's eye with a few spots on it

About a year ago my left eye developed crazy pressure and I had to have eye surgery. Right eye has decided it is now its turn. πŸ™ I have so much to do RN but my body has other ideas. #Dis #writing #chronicallyawesome #chronicallyill #writingcommunity #BookSky πŸ“–

11 0 0 0
red pan filled with yummy blondies. two are missing. yeah, i them.

red pan filled with yummy blondies. two are missing. yeah, i them.

Hello, and welcome to today's edition of Stress Baking with Sheryl. Today was particularly tough. Bourbon Blondies.

So yeah. Be sure to underbake so they're nice and gushy.

#rarediseaseday #rarediseaseday2025 #cvid #chronicallyill #chronicallyawesome #dis #slavaukraini

7 0 0 0
Preview
Common variable immune deficiency (CVID) | Immune Deficiency Foundation Common variable immune deficiency (CVID), previously known as adult-onset hypogammaglobulinemia, is one of the most frequently diagnosed primary immunodeficiencies. It is characterized by low levels o...

Today is Rare Disease Day. I am one of millions of people living with a rare disease. Find out more about my condition #cvid
#dis #rarediseaseday #disability #chronicallyill #chronicallyawesome #immunedeficiency #illness @immunedeficiency.bsky.social

3 0 0 0

I'm sorry you have to be this strong. But know that YOU are VALID.

I face and defeat lupus and Sjogrens symptoms every day. Sometimes I don't win. That's okay. One day at a time. #rarediseaseday #chronicallyawesome #lupus #sjogrens #immunecompromised #chronicillness #spoonie

3 0 0 0

It's been so long since I had a terrible cold/upper respiratory infection that I'd forgotten how much it sucks.

Bleh.

In other news, my body comp at present is about 60% decaf tea. #sick #sickofbeingsick #chronicallyawesome

3 0 1 0
A graphic novel page with a woman smoking and insects with flowers.

A graphic novel page with a woman smoking and insects with flowers.

A graphic novel page with a woman in a wheelchair.

A graphic novel page with a woman in a wheelchair.

A graphic novel page with a woman contemplating her thoughts about the healthcare system failing her.

A graphic novel page with a woman contemplating her thoughts about the healthcare system failing her.

A graphic novel page with a woman and a chart of her arm describing ulnar nerve entrapment.

A graphic novel page with a woman and a chart of her arm describing ulnar nerve entrapment.

I really enjoyed taking the time to read Brittle Joints, a #graphicnovel by Maria Sweeney. She writes a lot of things that I feel when it comes to illness. #ChronicPain #ChronicallyAwesome #DoNoHarm #MyDisabledLifeIsWorthy#USHealthcare

2 0 0 0
Preview
Meet Roxann Murray - Bold Journey Magazine We recently connected with Roxann Murray and have shared our conversation below. Hi Roxann,

I didn’t hold back on how I’ve been feeling these past few months. #TacomaPhotographer #MyDisabledLifeIsWorthy #ChronicallyAwesome #CapitalismKills #EatTheRich

1 0 0 0
A poster with a dark turquoise background and bullet points of the 10 principles of disability justice.

A poster with a dark turquoise background and bullet points of the 10 principles of disability justice.

#ableism #medicalgaslighting
#medicalmisogyny #mydisabledlifeisworthy
#actuallyautistic #chronicallyawesome #lymewarrior #disabilityjustice #healthcare #captalismkills #collectiveliberation #intersectionality #bodyautonomy

10 5 0 0
Poster with a turquoise background and yellow and white text describing manifestations of ableism. These include β€œinternalized”, β€œinterpersonal”, and β€œinstitutional”.

Poster with a turquoise background and yellow and white text describing manifestations of ableism. These include β€œinternalized”, β€œinterpersonal”, and β€œinstitutional”.

#ableism #medicalgaslighting #medicalmisogyny #mydisabledlifeisworthy #actuallyautistic #chronicallyawesome #lymewarrior #disabilityjustice #healthcare

12 6 0 1
women in glasses holding a glass of Guinness Stout

women in glasses holding a glass of Guinness Stout

Hi to new #writingcommunity people joining us here on BlueSky! #amquerying #amwriting #amreading #BookSky I'm Sher. I write #WF straddling commercial and #upmarket. I'm obsessed w/music and family and comedy and living fully w/my rare disease. #chronicillness #chronicallyawesome Who are you?

5 0 0 0