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Was ist so schwer daran Masken zu tragen und Luftfilter zum Standard zu machen?
#LongCovid #MEcfs

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$275 needed to meet my goal in time and avoid eviction next week!

$maelee21
V: @ Maelee-Johnson
PayPal.me/maeleeJ
ko-fi.com/maedaej

#neisvoid #mecfs #DisCo #spoonie

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Article Link

Impaired VLCFA-peroxisome-mediated intestinal epithelial repair causes gastrointestinal sequelae of long COVID — Man Wang et al

#MECFS

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"X" is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WomensHistoryMonth #horror #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies

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Article Link

Persistent SARS-CoV-2 Spike is Associated with Localized Immune Dysregulation in Long COVID Gut Biopsies — Salim Abraham Soria et al

"We confirmed the persistence of SARS-CoV-2 Spike transcript and protein in the gut tissue of all LC cases and controls tested."

#MECFS

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#Pearl just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#WomensHistoryMonth #neisvoid #mecfs #DisCo #ForTinu #spoonie #MutualAidMovies

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Article Link

Persistent Gut-Immune Axis dysregulation in long-term Post-COVID Syndrome: Insights from a prospective, observational, cross-sectional case-control study — Augustin et al

"we observed persistent viral proteins in the terminal ileum"

#MECFS

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Dr Jane McKay explains how long COVID ....is as common as diabetes.  #longcovid #longcovidtheanswers
Dr Jane McKay explains how long COVID ....is as common as diabetes. #longcovid #longcovidtheanswers YouTube video by Long Covid The Answers

Dr Jane McKay explains how long COVID ....is as common as diabetes.
#longcovid #longcovidtheanswers #mecfs

www.youtube.com/shorts/xsG1k...

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Identifying post-exertional malaise subtypes: Differentiating physical and mental PEM manifestations — Katherine Tuzzolino et al.
"our results indicated that an increase in age is associated with reduced (i.e. less burdened) symptom scores. One explanation for this finding could be that as our sample aged, they had a better understanding of their functional capacity and could better manage the illness and its symptoms." "Notably, we found that the ME/CFS groups were not as burdened by emotional issues compared to the Control group"

Identifying post-exertional malaise subtypes: Differentiating physical and mental PEM manifestations — Katherine Tuzzolino et al. "our results indicated that an increase in age is associated with reduced (i.e. less burdened) symptom scores. One explanation for this finding could be that as our sample aged, they had a better understanding of their functional capacity and could better manage the illness and its symptoms." "Notably, we found that the ME/CFS groups were not as burdened by emotional issues compared to the Control group"

Identifying post-exertional malaise subtypes: Differentiating physical and mental PEM manifestations

journals.sagepub.com/doi/10.1177/...

Screenshot from Science for ME weekly update

#MEcfs #PEM #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

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I got COVID on April 22, 2022. Earth Day! Like millions of others, a mild infection developed into #LongCOVID with #Dysautonomia #MECFS. My life is different now, learning to live with disability & invisibility. The world is so beautiful, I mask because I want to see more of it.

#LongCOVIDawareness

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The association between hair cortisol levels, Epstein-Barr virus infections and chronic fatigue in adolescents — Berit Elise Bergem Kongsnes et al.
"elevated hair cortisol levels prior to EBV infection were not associated with an increased risk of developing chronic fatigue" "Chronic fatigue at six months following acute EBV infection is associated with reduced levels of hair cortisol" "our findings suggest that symptomatic fatigue precedes these physiological changes rather than resulting directly from them."

The association between hair cortisol levels, Epstein-Barr virus infections and chronic fatigue in adolescents — Berit Elise Bergem Kongsnes et al. "elevated hair cortisol levels prior to EBV infection were not associated with an increased risk of developing chronic fatigue" "Chronic fatigue at six months following acute EBV infection is associated with reduced levels of hair cortisol" "our findings suggest that symptomatic fatigue precedes these physiological changes rather than resulting directly from them."

The association between hair cortisol levels, Epstein-Barr virus infections and chronic fatigue in adolescents

www.tandfonline.com/doi/abs/10.1...

A biopsychosocial theory turns out not to be true

Screenshot from Science for ME weekly update

#MEcfs #CFS #PwME #ChronicFatigueSyndrome

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George and his ME/CFS

3-panel cartoon

1st panel:
George on his phone in a taxi: "today I'm starting graded exercise therapy at the ME/CFS clinic… Scientific studies prove it helps recovery".
Woman talking to him on the phone: "okay… I hope it helps."


2nd panel:
you see George walking away from a taxi into the ME/CFS Accredited GET clinic with graded exercise therapy on the window

3rd panel:
weeks later
George is being pushed in a wheelchair by the woman in the 1st panel walking away from the graded exercise therapy unit.
He is angry with a thought bubble of swear words blocked out.

George and his ME/CFS 3-panel cartoon 1st panel: George on his phone in a taxi: "today I'm starting graded exercise therapy at the ME/CFS clinic… Scientific studies prove it helps recovery". Woman talking to him on the phone: "okay… I hope it helps." 2nd panel: you see George walking away from a taxi into the ME/CFS Accredited GET clinic with graded exercise therapy on the window 3rd panel: weeks later George is being pushed in a wheelchair by the woman in the 1st panel walking away from the graded exercise therapy unit. He is angry with a thought bubble of swear words blocked out.

7/

More from a series of comic strips about life as a person with ME/CFS.

"George and His ME/CFS"

🎨Rick Menard

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

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Video

Dr Jane McKay explains how long COVID ....is as common as diabetes. 
#longcovid #longcovidtheanswers #mecfs

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Original post on mastodon.online

Gerade geschaut, informativ nicht nur für Betroffene.

Schade, dass es auf der Seite keine Möglichkeit zum Teilen im #Fediverse gibt.

Wäre doch mal ein Zeichen @maithink

---
MAITHINK X - Die Show
www.zdf.de/play/shows/mai-think-x-d...

#maithink […]

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Es ist erstaunlich und erfreulich, dass gerade viel zum Thema #MECFS und #LongCovid berichtet wird, aber das Thema Prävention kommt nach wie vor kaum zur Sprache.

Danke für Ihren Einsatz! Es muss noch so viel passieren…

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今日は案内板の裏をお届けします😃

筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。

#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge

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Irish ME/CFS Association - for Information. Support & Research logo
Might you be available for interview? Please let us know
We will be sending out a press release to local and national media in
late April/early May in advance of Dr Bansal's 5 talks (in
Cork/Dublin/Galway/Limerick/Sligo) in May.
We would particularly like to have local people from (a) Cork city and
county (b) Galway (c) The Mid-West (d) the North West, but people
everywhere are welcome to reply.
You are not committing to anything at this stage but sometimes we need
to act fast so it's useful to know who might be available.

Irish ME/CFS Association - for Information. Support & Research logo Might you be available for interview? Please let us know We will be sending out a press release to local and national media in late April/early May in advance of Dr Bansal's 5 talks (in Cork/Dublin/Galway/Limerick/Sligo) in May. We would particularly like to have local people from (a) Cork city and county (b) Galway (c) The Mid-West (d) the North West, but people everywhere are welcome to reply. You are not committing to anything at this stage but sometimes we need to act fast so it's useful to know who might be available.

If you prefer not to use the link below, you can contact us/Tom Kindlon if you prefer

docs.google.com/forms/d/e/1F...

#MEcfs #CFS #PwME #MyalgicEncephalomyelitis

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📣👇🏼 #MECFS #MaithinkX

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Original post on med-mastodon.com

Our latest News in Brief summary has headlines and links to further reading for ME/CFS, Long Covid, and related news for the week of Mar. 9 - 15:

Topics:
News, advocacy and articles
Coming events
Research news and commentary
Published research […]

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Auch andere Corona Viren, nicht nur #SARS-Cov2 o #SARS, auch hCOV/Corona gerade bei 14% der Sentinel Proben in Deutschland können #LC und #MECFS verursachen.

Genau wie ein Recht auf sauberes Wasser, sollte es ein Recht auf saubere Luft geben. Wenigstens dort, wo man hin muss. Schule, Krankenhaus..

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Blue promotional graphic titled “Parliamentary Friends of ME/CFS Meeting” with a “Watch Today” banner saying "Recording now available". Headshots of all ten speakers. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Blue promotional graphic titled “Parliamentary Friends of ME/CFS Meeting” with a “Watch Today” banner saying "Recording now available". Headshots of all ten speakers. Partner logos appear along the bottom (Bridges & Pathways, Emerge Australia, MEANA, ME/CFS Australia, and Myalgic Encephalomyelitis Group Australia).

Thank you to everyone who joined us at Parliament House and online for Fluctuating Energy, Fixed Systems.

Speakers shared powerful experiences and insights on how rigid systems fail people with #mecfs & #longcovid.

Watch the recording: zurl.co/qThaI

#mecfsadvocacy

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News in Brief - March 2026 This thread has a Science for ME 'News in Brief' post for each week in March 2026 by a team including @Trish, @Kalliope, @ahimsa and @SNT Gatchaman. Scroll down to see this week's news.

Our latest News in Brief summary has headlines and links to further reading for ME/CFS, Long Covid, and related news for the week of Mar. 9 - 15:

Topics:
News, advocacy, articles
Coming events
Research news and commentary
Published research

www.s4me.info/threads/news...

#MEcfs #LongCovid

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At the center of the image is some new purpleish growth on the branch of a blueberry bush. In the background is a brown wired fence and some blurry green of new primrose growth, just waiting to spring tall

At the center of the image is some new purpleish growth on the branch of a blueberry bush. In the background is a brown wired fence and some blurry green of new primrose growth, just waiting to spring tall

Life on the blueberry bush I planted last year. I was super sick at the end of last season and wasn’t able to keep up with watering, so I’ve been worried about some of my dudes returning 🌱

This year I plan on setting up a watering system that won’t rely on my health to function.

#spring #mecfs

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Ich war heute in zwei Leben unterwegs.

Mit meinem gesunden Kind bei ihrem Tanz-Auftritt vor 5000 Menschen. Laute Musik und Lichtshow.

Etwas, das sich ihre ältere Schwester und ihr Papa nur leise und mit Abstand dann zuhause auf dem Handy ansehen können.

2 Welten… 💔

#MECFS #PostCovidKids

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🧵 of highlighted #MECFS and #LongCovid research papers being discussed this week on the Science for ME forum.

9 - 15 Mar 2026

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Bei unserem Kind waren es etwas über zwei Jahre bis zur #MECFS Diagnose. Doch auch mit dieser sollte er „seinen inneren Schweinehund überwinden und sporteln“, was ihn in die Bettlägerigkeit brachte.

Seine Worte damals: Mama, sie verstehen es gar nicht! Ich will ja, aber mein Körper macht nicht mit.

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Preview
Long Covid & ME/CFS – Blackbox der Pandemie Die Pandemie ist für die meisten vorbei, aber für über Hunderttausende in Deutschland ist sie es nicht. Sie leiden unter den Spätfolgen ihrer Corona-Infektion.

Am heutigen #LongCovidAwarenesday macht #MaithinkX eine Folge über die schwerste #LongCovid Form: #MECFS.
Im Durchschnitt dauert es 6 Jahre bis zur ME/CFS Diagnose!
www.zdf.de/play/shows/m...

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Preview
ME/CFS nach Corona war ein Worst Case mit Ansage - Wissens-Kolumne von NANO und Terra X Hunderttausende leiden nach einer Corona-Infektion an Langzeitfolgen. Die Patienten und ihre Beschwerden werden jedoch weitgehend ignoriert.

#MECFS durch C19 war in der Tat Worst Case mit Ansage.

Und dass Prävention von Aerosol-übertragenen Infektionserkrankungen angesichts dieser häufig Infekt-getriggerten Erkrankung so gar kein Thema ist, verschärft den Worst Case anhaltend.

#LongCovidAwarenessDay

www.zdfheute.de/wissen/mecfs...

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Nochmal Fragen zu #Fibromyalgie und #mecfs THREAD:
Gibt es seriöse Studien, Forschung, Erkenntnisse dazu, ob von Fibromyalgie Betroffene einen (ausgeprägten, langandauernden) Vitalstoffmangel, Mikronährstoffmangel haben,

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Analyse eines Betroffenen: ME/CFS und die Erfahrungen mit Ärzten und Gesundheitssystem Manche Ärzte wissen weniger über postakute Erkrankungen, als sie sollten, resümiert Thomas Pölzler. Der Ethiker an der Uni Graz ist selbst schwer an ME/CFS erkrankt

#LongCovidAwarenessDay #mecfs

Wir sind noch meilenweit weg von einer anständigen Behandlung der mindestens 80'000 #LongCovid erkrankten in Österreich.

www.derstandard.at/story/3000000312217/anal...

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