Latest posts tagged with #ppie on Bluesky
Richard’s stroke happened four and a half years ago and abruptly changed an active life. To watch the full story, follow the link in our bio.
#StrokeRecovery #NeuroRehabilitation #XRRehabilitation #DigitalHealth #PatientStories #CoDesign #PPIE #MedTech #TeleHealth #TeleHealth #XR #XRneurorehab
Today we're celebrating the 4th anniversary of the Shared Commitment to Public Involvement 🎉
We are grateful to be part of a community working together to make public involvement stronger & more meaningful. More here: bit.ly/4liVZoN
#PPIE #SharedCommitment @nihr.bsky.social @hralatest.bsky.social
Last week we hosted the @kingshealth.bsky.social Rare Disease Network PPIE event at @kingscollegelondon.bsky.social.
Patients, researchers, clinicians, charities and industry came together to discuss one key question:
How do we make rare disease research truly inclusive?
#RareDisease #PPIE
🔗To see the full poster visit: www.iamcharlene.com
🧡
#PatientLedResearch #RareDisease #RareDiseaseResearch #PosterPresentation #ResearchCommunity #RareCancer #IAmCharlene #RareGems #BionicWarrior #PPI #PPIE #PatientInvolvement
An great opportunity to explore #PPIE in #healthresearch with the excellent @penarc.bsky.social team.
Registration is now open for the PPIE Summer School!
Exeter | 1–3 July 2026
A 3-day, in-person event bringing together researchers & public contributors to explore meaningful involvement in health & care research.
Find out more: tinyurl.com/37x32cy4
#PPIE #HealthResearch
Over the coming days and weeks, we'll be sharing some more opportunities to get involved in research through our #JIA VIP Research panel.
So if you haven't already signed up, you can join the 280 families who are already part of the panel at www.jarproject.org/vip/families
#PPIE
A graphic featuring an image of people meeting up and having a cup of tea, sitting outdoors in a circle. Text reads: Public voices are embedded at the heart of decisions about how NHS data is accessed and used. NHS South West Secure Data Environment, part of the NHS Research Secure Data Environment Network.
📣 The South West SDE is putting public voices at the heart of NHS data decisions. Our new #PPIE strategy, co‑produced with our #DigitalCriticalFriends, sets out how we embed transparency and ethics in decision‑making.
www.southwestsde.nhs.uk/public-invol...
#DataSavesLives #PoweredByNHSData
Friday March 6th the @kingshealth.bsky.social Rare Disease Network will be hositing a #PPIE Event focused on demystifying the connection between patients, researchers and industry, strengthening the partnerships that drive inclusive and impactful rare disease research.
tinyurl.com/khprdnppie
We spent the morning at PenARC’s PPIE Celebration event. From highlights & shared successes to interactive sessions, there’s huge pride in what’s been achieved & real ambition for the future. Five years of impact, collaboration and learning to build on💬✨
Stay tuned for more reflections!
#PPIE
How can we better support people with dementia as active partners in research? 🧠 Our latest SPCR masterclass, “Let’s Talk Dementia,” explored inclusive communication strategies to strengthen research partnerships: https://bit.ly/4aQmnl0 #DementiaResearch #InclusiveResearch #PPIE #PrimaryCare #Research
How can we better support people with dementia as active partners in research? 🧠 Our latest SPCR masterclass, “Let’s Talk Dementia,” explored inclusive communication strategies to strengthen research partnerships: bit.ly/4aQmnl0
#DementiaResearch #InclusiveResearch #PPIE #PrimaryCare #Research
Increasing diversity in research participation: A good practice guide for engaging with underrepresented groups.
www.england.nhs.uk/aac/wp-conte...
#researchparticipation #PPIE #diversity
Clear and consistent reporting of the involvement of patients and the public is essential for building trust and improving research quality. Our work highlights the need for universities and research institutes to reflect on the practice and provide better support for #PPIE
We worked alongside a group of patient co-authors to better understand our findings and together we developed 7 recommendations to help improve future reporting of #PPIE in research and inclusion of #PPIE in publishing. We created a flow diagram to show them visually
Our study looked at over 500 research papers published by authors from @qmul-wiph.bsky.social at @qmul.bsky.social to see how well #PPIE was reported.
1 in 5 papers mentioned how PPIE were involved within the main text of the paper, 10% included a plain English summary & nearly all were open access
I’m really excited to be able to share the early access version of our new review: A rapid evaluation of the reporting and publishing practices of #PPIE in health research within a UK university institute. Published #OpenAccess in Research Involvement and Engagement rdcu.be/e4VAX
The webinar-hosted by @skourkos.bsky.social & @elspethma.bsky.social was part of an 'Importance of #PPIE in Research' series organised by @arceastofengland.bsky.social @arc-southlondon.bsky.social & @penarc.bsky.social.
Recording & notes will be posted here: arc-eoe.nihr.ac.uk/importance-p.... 2/2
📣3 days left for extended abstract deadline Feb 20th!
Join us on March 6th at at King's College London Strand Campus Great Hall for the @kingshealth.bsky.social #RareDisease Network #PPIE event
#RareDiseaseDay
@kingscollegelondon.bsky.social @gstt-nhs.bsky.social @medicsforrare.bsky.social
Website redevelopment for NIHR SSCR, combining accessibility, usability and bespoke functionality. Designed around real user needs and built to support research dissemination and engagement at scale.
#NIHR #webdevelopment #websitedesign #research #ppie
The Alberta PROMs and #EQ5D Research and Support Unit operates across the health system. Read about the development of its engagement network, that aims to connect those whose experiences reflect the broad scope of PROMs use in Alberta
link.springer.com/article/10.1...
#PPIE #PatientCentered #HRQOL
Reading all about PPE / community / stakeholder involvement in research today, and how to put this into practice - looking forward to my next supervision discussion where I can talk about my plans! #phdsky #psychscisky #academicsky #ppie #mentalhealth
Tomorrow is a #FOG2026 Genomics Café special!
We’ll be joined by Alice Frenken, GPW, and Jennifer Griffiths, who are sharing how patient involvement is embedded in genomics in Wales.
📅 12 Feb 2026 | ⏰ 11:00–12:45 | 📌 Teams
🔗 Book here: bit.ly/4o3a3Dg
#PPIE #Cymru #GenomicsPartnershipWales
Join us on 11 Feb (5–7pm) for an inspiring online event showcasing creative, inclusive ways to involve #youngpeople in #mentalhealth #research.
Hear directly from youth, carers & researchers as they share innovative #PPIE ideas—£400 awarded to the top pitch!
Register: tinyurl.com/ChildrenandY...
New PPIE in Practice blog explores inequalities in awareness, diagnosis & treatment of genitourinary symptoms of the menopause, and why meaningful public involvement in research is key to improving care and reducing inequalities: https://www.spcr.nihr.ac.uk/news/blog/-inequalities-in-the-awareness-diagnosis-and-treatment-of-genitourinary #Menopause #HealthEquity #PPIE
New PPIE in Practice blog explores inequalities in awareness, diagnosis & treatment of genitourinary symptoms of the menopause, and why meaningful public involvement in research is key to improving care and reducing inequalities: www.spcr.nihr.ac.uk/news/blog/-i...
#Menopause #HealthEquity #PPIE
The Patient and Public Involvement and Engagement (PPIE) members of the AI Multiply project on stage, sharing their insights and perspectives on AI and Health Data. #AI #PPIE #healthdata #multiplelongtermconditions
@ai-multiply.bsky.social
@nihr.bsky.social
@newcastleuni.bsky.social
Sonia Newman, Patient & Public Involvement (PPI) Officer at @unisouthampton, reflects on meaningful involvement and engagement through The Listening Café and Community Conversations. 👂💬 https://www.spcr.nihr.ac.uk/news/blog/PPI-the-listening-cafe-and-community-conversations #SPCR #PPIE #Research @uos-primarycare.bsky.social
Sonia Newman, Patient & Public Involvement (PPI) Officer at @unisouthampton, reflects on meaningful involvement and engagement through The Listening Café and Community Conversations. 👂💬
www.spcr.nihr.ac.uk/news/blog/PP...
#SPCR #PPIE #Research
@uos-primarycare.bsky.social
📣 Are you a researcher? Interested in #PPIE?
👀 Watch the NIHR PPI webinar: How to develop a PPI group
🗓️ 18 Feb, 10.30am
Find out about the Bristol-based PPI group, working as part of the #HeartSurgery #prehabilitation research team
👉 Register: bit.ly/4t31evY
📣 Are you a researcher? Interested in #PPIE?
👀 Watch the NIHR PPI webinar: How to develop a PPI group
🗓️ 18 Feb, 10.30am
Find out about the Bristol-based PPI group, working as part of the #HeartSurgery #prehabilitation research team 👇
▶️ Register: bit.ly/4t31evY
⏰Ending soon Round 3 Call: The SPCR Public Involvement, Engagement & Dissemination Enablement Fund applications. 💷 Up to £2K for projects | £5K for dept-wide activities 📅 Deadline: Thurs 29 Jan 2026 by 5pm 🔗 Learn more: bit.ly/4qYzUNC #funding #PPIE #PrimaryCare #Research
⏰Ending soon Round 3 Call: The SPCR Public Involvement, Engagement & Dissemination Enablement Fund applications.
💷 Up to £2K for projects | £5K for dept-wide activities
📅 Deadline: Thurs 29 Jan 2026 by 5pm
🔗 Learn more: bit.ly/4qYzUNC
#funding #PPIE #PrimaryCare #Research
It will be a great event, partnering with @medicsforrare.bsky.social and supported by GSTT Charity @gsttfoundation.bsky.social and Chiesi
#RareDisease #RareDiseaseDay2026 #PPIE #PatientEngagement #PatientCollaboration
