Thank you @asnpublications.bsky.social !!!
This is a true honor, and a sprinkle of good luck!
#FSGS #rFSGS #raredisease #APOL1 #CAKUT #NephSky #SkyNeph
@asnkidney.bsky.social
@isgd.bsky.social
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#rFSGS
Latest posts tagged with #rFSGS on Bluesky
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Posts tagged #rFSGS
Thank you @opeyemiolabisi.bsky.social and the whole @dukekidney.bsky.social , @gbadegesinlab.bsky.social , Laura Barisoni et al!
It was a great couple of days of scientific excellence mixed with pleasant company and nice weather.
#APOL1 #FSGS #rFSGS #genetics #pediatrics #NephSky #SkyNeph #Medsky
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Nice video! From the 15th #PodocyteConference in #Hamburg
@isgd.bsky.social
@tobias-b-huber.bsky.social
#FSGS #rFSGS #APOL1 #NephSky #MedSky
youtube.com/watch?v=Y6wo...
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Alternative splicing and polyadenylation matter for Glomerular Disease! Great work by @shipraagarwal.bsky.social
#FSGS #rFSGS #podocyte
@asnkidney.bsky.social
@asnpublications.bsky.social
pubmed.ncbi.nlm.nih.gov/40397520/
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At the #PodocyteConference you don’t meet only great scientists, but also interesting personalities, like Brian Kennedy, 4-times Grammy award winner and patient advocate. With Matt Sampson & Elena Martinelli
#NephSky #SkyNeph
@kidneyomicsamps.bsky.social
#FSGS #rFSGS #APOL1
@isgd.bsky.social
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It truly was an amazing conference!
#podocyteconference #Medsky #Nephsky #Skyneph #FSGS #rFSGS #APOL1
@isgd.bsky.social @tobias-b-huber.bsky.social
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More from the #podocyte2025 with @kidneyomicsamps.bsky.social and Laura Mariani
#podocyte #hamburg #FSGS #rFSGS #genetics #Nephsky #Medsky #Skyneph
@isgd.bsky.social
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It’s not just working and giving talks at the 7th International Renal Meeting with @mayoclinic.org in #Sardinia
#FSGS #rFSGS #CAKUT #RareDisease #APOL1 #NephSky #SkyNeph #MedSky
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Great to see @alessiafornoni.bsky.social and Pars in #Cagliari for the 7th renal meeting with @mayoclinic.org in #Sardinia
#FSGS #rFSGS #CAKUT #RareDisease #APOL1 #NephSky #SkyNeph #MedSky
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It's been a good #KidneyMonth! Let's make it a good #KidneyYear2025 for #rFSGS.
#MedSky #NephSky #Skyneph #FSGS #RareDisease #KidneyTransplant #genetics #humangenetics #nephroticsyndrome #pediatrics
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As #KidneyMonth2025 ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️
#rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
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Despite tremendous advancement in the genetics and immunology of #nephroticsyndrome, #rFSGS mechanisms are still mostly elusive. Without mechanisms cures will lag behind.
Help us understanding rFSGS and participate in our World-Wide Task-Force to tackle this condition!
#RareDisease #Nephsky #Medsky
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Help us understand why!
If you or someone you know has #rFSGS and you are interested in learning how you can help and provide a biosample, email us at mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
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Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS.
#KidneyMonth #rFSGS #rFSGSConference
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From my recent visit to #UCLA #Harbor #Cedars ! Thank you Sharon Adler aka GDZ Editor In Chief for the kind invitation to be the 2025 Henry Shavelle Professor!
#Nephsky #Skyneph #Medsky #FSGS #nephroticsyndrome #APOL1 #Alport #rFSGS
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While we work on building a powerful resource to launch research that will lead to new treatments, do not hesitate to sign up to our Facebook group, where we are trying to build a community.
#FSGS #rFSGS #RareDisease #genetics #nephroticsyndrome #pediatrics
@isgd.bsky.social @asnkidney.bsky.social
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Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: www.facebook.com/groups/57871...
#KidneyMonth #rFSGSConference #nephsky #medsky #skyneph
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Simone @genetickidneydoc.bsky.social is a visionary and alliance-building, result-oriented scientist. His #rFSGS biobank will help the whole community. Refer your rFSGS patients to his registry. Together, we can conquer the #rFSGS menace.
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This was an excellent conference that brought advocacy, expertise, vision, and desire for progress in #rFSGS together in one room. Looking fwd to the next steps.
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The executive summary of our 2024 #rFSGS conference are now available! An amazing meeting gathering patients, physicians, advocates and politicians! The conclusions in short? We need a large and diverse biobank to conduct mechanistic studies. No mechanisms = no cure.
www.scgcorp.com/rFSGS2024/do...
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Our #rFSGS biobank is growing and we welcome patients from all over the world! Please reach out to us if you are a patient or a physician caring for one. We are creating a resource for everyone to use with the goal of resolving this disease and find new cures.
#KidneyMonth2025 #RareDisease #genetics
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Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu.
#KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph
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Feedback from the @glomcon.org talk I gave last Sunday!
What an amazing community! On a Sunday at 8am California time, 137 people from 42 Countries participated!! Thank you for being with me and 👏 👏 👏 to you!!
#APOL1 #FSGS #RareDisease #genetics #nephroticsyndrome #rFSGS #Medsky #Nephsky #Skyneph
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We are connecting the world with the common goal of resolving recurrent FSGS. Join the effort and help us populate the map !!
#FSGS #rFSGS #RareDisease #genetics #nephrology #pediatricnephrology #transplant #nephroticsyndrome
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It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure.
#KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph
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Join the #rFSGS Community for updates, activities and events. We are growing and getting prepared for a new year of discoveries!
#RareDisease #FSGS #rFSGS #KidneyMonth #KidneyMonth2025 #Transplant #nephroticsyndrome #genetics
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Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: www.facebook.com/groups/57871...
#KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph
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Thank you for the welcome invitation @glomcon.org !
It was a pleasure, and looking forward to more interactions!
#FSGS #rFSGS #APOL1 #genetics #humangenetics
@isgd.bsky.social @asnkidney.bsky.social @cuimcglomcenter.bsky.social #Nephsky #Medsky
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Refining the picture! Integration of anti-nephrin antibodies (and other antibodies and immune factors) with genetics will unravel to full pathobiological landscape of nephrotic syndrome!
#FSGS #rFSGS #nephroticsyndrome
@tobias-b-huber.bsky.social @rfsgsinitiative.bsky.social @isgd.bsky.social
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Flashback to our #rFSGSConference in December! We brought together patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned! #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph @genetickidneydoc.bsky.social
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