Latest posts tagged with #Als on Bluesky
“Hearing from others who’d lived through those same emotions and could both normalize them and offer practical advice felt like the ultimate gift of empathy and compassion” -Juliet Taylor: https://bit.ly/44bgFI2
#ALS
“Each of us develops our own means of coping with heartbreak” -Juliet Taylor: https://bit.ly/4a8B2cF
#ALS
“We have an ongoing effort at the Pranger ALS Clinic to increase enrollment so we can get a clear picture of who is getting ALS and the magnitude of the disease, which we believe is grossly underreported.” - Dr. Steven Goutman, researcher. Learn more at cdc.gov/als.
#ALS #ALSClinic
Daily life adapts: https://bit.ly/403tku9
Small adjustments to routines, nutrition, movement, and support can make everyday living more manageable.
#ALS #LivingWithALS #DailyLife #CaregiverSupport #ChronicIllness #RareDisease #Bionews #ALSNewsToday
Today is Disabled Access Day—a reminder to create inclusive, accessible spaces for everyone. Accessibility means ensuring people with disabilities can fully participate in our communities, workplaces, and events. Let’s keep working to remove barriers and build a world where everyone belongs. ♿💙
#ALS
Four graphs show 'PrimeC' and 'Placebo' effects over time. Graph A: NFL geometric mean ratio to baseline, with GMR@1. 99 and GMR@2. 91 labels. Graph B: Ferritin mean concentration. Graph C: Transferrin mean concentration levels. Graph D: miRNA differential expression.
PrimeC demonstrated comparable safety to placebo and showed slowed functional decline, reduced ALS-related complications, and modulation of iron-regulatory and microRNA biomarkers in adults with #ALS over 18 months of treatment.
ja.ma/4bMkTK4
Promising Results of PrimeC in ALS Highlighted in JAMA Neurology's Latest Publication #USA #Cambridge #ALS #NeuroSense #PrimeC
This experience has many layers, and you’re navigating them the best way you can.
#ALS
⛷️ Hit the slopes for a cause! Register for Ski ALS Utah and join us for an incredible day supporting families living with ALS. Don’t miss the fun—sign up today and be part of the impact. 💙
#ALS #SKI #ALSUnited #TogetherWeEndALS®
Share Your Experience: https://bit.ly/45oQDlD
#ALS #ALSWarrior #LouGehrigsDisease #ALSNewsToday #Bionews
How you process things may change from day to day, and that’s completely normal.
#ALS
ALS United Rocky Mountain is proud to partner with Road Runner Sports. Road Runner has given our ALS community a 10% off, plus a 10% donation from them back to us for any purchases this year!
Buy today at: https://www.roadrunnersports.com/
#ALS #RUN #WALK #RoadRunners #ALSUnited #TogetherWeEndALS®
If only people knew that this is what it can feel like in a wheelchair trying to go about life 🙄
#ALS @alstdi.bsky.social #disabilityrights #accessiblity
Afgelopen vrijdagnacht/zaterdagochtend was het zover. uiteindelijk is er 1,6 miljoen opgehaald door alle deelnemers voor verder onderzoek naar #ALS. Dank voor de support en donaties (kan nog steeds😉) Top! 💪🏻😁
Rebecca Gayheart spoke with NPR about caring for her late husband Eric Dane during his battle with #ALS
She shared the emotional experience of watching him lose his voice—and how new voice technology helped preserve it.
www.npr.org/2026/03/11/n...
#Caregiving #DisabilityAwareness
Finding your own rhythm: https://bit.ly/3KWD7gV
Dagmar Munn reflects on how actions, like balloon-blowing, humming, or mindful breathing, can help maintain a sense of control while living with ALS.
#ALS #ALSNewsToday #Bionews #AmyotrophicLateralSclerosis #ALSCommunity #LungHealth
The way you handle today is enough, whatever that looks like.
#ALS
You’re allowed to acknowledge what today looks like without downplaying it.
#ALS
Your experience is part of a wider story that deserves recognition.
#ALS
Americans of all backgrounds and income statuses are victim to delays and denials imposed by health insurance giants. Months before his death, actor Eric Dane was approved for his #ALS treatment after going through two appeal processes.
Read more via @BuzzFeed >> buff.ly/illiXkl
Three people, one in a wheelchair, conversing; join ALS News Today’s private ALS Conversations support forum.
Looking for a space? https://bit.ly/4s9Ic6B
We’ve created a new private group inside the ALS News Today forums just for forum members.
#ALS #LivingWithALS #ALSCommunity #ALSNewsToday #Bionews
In honor of the day, and in anticipation of Opening Day, I’m wearing my @slangsonsports.bsky.social “Baseball is the Best” #ALS fundraising T-shirt.
Link: rotowear.com/products/bas...
Support is available: https://bit.ly/3MOay6Q
Emotional distress can become overwhelming, but help exists through professionals, support networks, and crisis resources when needed.
#ALS #MentalHealthSupport #CaregiverSupport #ALSSupport #RareDisease #PatientSupport #Bionews #ALSNewsToday
Vanavond, nou eigenlijk vannacht, ga ik lopen om geld in te zamelen voor onderzoek naar #ALS.
Iedereen die een donatie gedaan heeft, ontzettend bedankt! En mocht je nog twijfelen om dat te doen, het kan nog steeds!
www.alssunrisewalk.nl/fundraisers/...
American Red Cross Wsi CertificATIon Exam TEST BANK Latest 2024 2025 Questions Answers For Water Safety Instructors
#testbank #testbankforAmericanRedCross #Wsi #Wsi2026 #AdvancedLifeSupport #ALS #ALS2026 #nursing #hackedexams
www.hackedexams.com
www.hackedexams.com/item/120080/...
RT1999 will be tested in a UK ALS platform trial using NfL blood biomarker; early lab data show neuron protection.
New ALS trial underway: https://bit.ly/4rrupqw
Researchers are preparing to test a new experimental therapy called RT1999 in a ALS platform trial designed to screen potential treatments more quickly.
#ALS #ClinicalTrials #ALSAwareness #ALSNewsToday #Bionews
Your worth isn’t measured in tasks, energy, or output.
#ALS
Understanding disease progression: https://bit.ly/4aGd7jp
ALS affects everyone differently, but learning about common stages can help with planning, expectations, and support decisions over time.
#ALS #ALSStages #ALSAwareness #LivingWithALS #CaregiverSupport #RareDisease #Bionews #ALSNewsToday
Comprehensive Physiology | Review Spotlight 🔦 A look back at impactful work from the lab of Jun Sun 🔬 Last year, their team published in Comprehensive Physiology, advancing our understanding of #gut-brain barrier dysfunction in #ALS. Great science worth revisiting!
https://ow.ly/wGqs50Yqrfj
